Mondays follow up.....and I'm still here!!!!

[Ma_of_3]

My latest MRI and follow up.....Monday 26th April 2010

Well my anticipated visit has been rather extended as I am still here until Sunday!  Saw the neurologist who did an a very thorough examination and then promptly sent me off for the MRI.

Everything went fine until the radiologist said I was to go to straight back up with the results instead of just calling later in the day.  My heart started pounding thinking OMG what have they seen.......this is it, this is the end! Well of course it wasn't nearly as bad.

The 3 lesions that were are now 8 lesions, the increased signal in the brain stem has increased - still have no idea what this means! *Note to self to ask today* Based on this the neurologist was leaning towards ADEM as he said the lesions weren't where you would expect them in MS.

They are left frontal and left parietal white matter and right parietal matter. Left posterior parietal white matter and right basal ganglia.  Multiple coalescing high intensities are noted in the pons bilaterally which are more intense and  prominent than in previous scan.

So plan of action blood tests, LP and based on the results 5 days of IV solumedrol. Bloods all came back normal.  CSF showed low chloride, low immunoglobulin, negative for bands and everything else was normal.  So about to have dose 3 of the solumedrol - terrible hot flushes( I like to call them power surges so ppl be warned LOL) am puffed up pink and fed up!

I am going to sit him down this am and ask him what his line of thought is.  This is the second time with unilateral ON which from research doesn't fit in the ADEM but then the lesions are not in the right place....so who knows! Nothing is ever clear cut and I am not the most normal person either LOL!

I will follow this up later today hopefully when I know which direction we are going!

[Ma_of_3]

Morning....twitch twitch......having a tough time with these 'roids' feeling really crappy but am praying they doing what they are supposed to be doing! Hi Shell...3-8 was over a period of 3 years with a few incidentals inbetween which we didn't put 2 and 2 together.  Anyway am trying not to become all too self consuming with all this as hard as it is.......hope you are all having a wonderful week :) xx

[sllowe]

Hi there,

How you make out today?

Belated hello - and please tell us the timeframe between the 3 and now 8 lesions. I'm sorry to have missed your original posts about it. Sorry about the prednisone symptoms- it rots!

-shell

[Wobbly]

Hi there.. keep us informed on how things progress.. its a difficult proces to go through and know your not alone with this.

take care
wobbly

[tonyad]

   Well hey there :)
Yep! Those are some of the lovely sides of Steroids!  
Not so fun.

   I do hope you get some relief soon. I know the Roids can stay in system for a short while after stopping......

   Hope you have an AWESOME week my friend.
Remember, we are here whenever you need to come vent or just need and ear to listen...or even a Long Distance shoulder to cry on..Lol

~Tonya

[Ma_of_3]

Well its sunday and I am eventually back home with my family! I am so manic on these steroids, twitching and jerking, can't sleep, palpitations feel really strange.  The vision in my eye seems worse could it be water retention? Well the discharge sheet said ADEM but have to taper the meds and go back in 3 weeks so will see what is said then.  In the meantime back to the same old routine and try and put the whole incident to the back of my mind....yeah right!!!! Hope you all are having a wonderful weekend :)

[johnniebear]

My prayers and thoughts are with you.

Its seems like your on a path of good care hopefully.



John

[tonyad]

   Hey there, Yes, I would get pen and paper and write down a list of questions so you don't
forget...then leave a space so you can jot down his answers for later...as I always forget what they say ..Lol

    Please let us know what he says. Good Luck to you.
i have you in thought,

~Tonya