Multiple Sclerosis

[neena1967]

I M SUFFERING FROM MS SINCE 1998. OF LATE MY CONDITION HAS WORSENED i.e. LOWER LIMBS ALMOST STOPPED WORKING, STIFFNESS IN BODY AND URINE N STOOL CONTROL FINISHED. I M TAKING AVONEX ONCE A WEEK. THIS SITUATION IS SINCE 10 JUN 2012. I HAVE BEEN ADVISED TYSABR. S IT OK? PLEASE HELP ME REGAIN SOME OF MY STRENGTH.I

[kwarendorf]

Hi Neena ,

I am one of the Tysabri user Shell mentioned. It's the only med I've ever taken fo my MS. I was diagnosed last Ocober following a relapse last July. I was diagnosed with SPMS.

I have had no further relapses since starting Tysabri in November of last year. Follow up MRI's done in late March this year showed no change from my August 2011 images. For now it appears that Tysabri has slowed my progression significantly.

I hope you start to regain your self!

Kyle
PS One big benefit to Tysabri is that it's only once a month!

[sllowe]

Hi Neena!!!

Thanks for joining us :) I'm sorry you are having new worsening problems. Have you alerted your doctor? This may be a relapse for you and a course of steroids may help.  Or, was the Tysabri suggested because the doc feels you may need a switch in meds?

We do have Tysabri users on our forum, and I'll find a discussion about it and post the link here. It would be great if the Tysabri would indeed help you get some strength back.

Welcome to our forum, and hope you stick around.
-shell