My Neurology Appt TODAY!!!

[VictoriaDouglas83]

Well, I have my neurology appt. today at 11am.  I am kind of nervous.  I wrote down all my symptoms on a piece of paper so I don't forget anything.  

I told my husband last night that I was nervous for today and he asked me why.  I said because I am afraid that he is just going to write me off like everyone else.  He told me to stand my ground and insist that he help me.  I told him it's not that easy.  But I am going to insist that he look into my problems and not just write me off.

I really hope he is a good neuro. even though he isn't a MS specialist.  I just want to get my MRI's and if I have to a LP.  If he doesn't, then I guess I am headed 1/2 way across the state to a MS specialist, since there doesn't seem to be any close to me.

I hope that I can get some answers before my husband leaves on Sept 12th.  I know it's basically impossible to move that fast in this case, but I am crossing my fingers anyway.  

I got some blood drawn yesterday to check for low B12, Lyme and a few other things.  So I'm on my way to rule out things.

I'll post again after my appointment, probably to cry to all of you because he told me I am crazy or something.  Wish me luck and send prayers!

Victoria

[VictoriaDouglas83]

Hey Red,

I do not know any new information as of right now.  I was hoping to get a call from either my PCP or  my neuro, but alas, I am still waiting. :S

I will post new information as soon as I get it, I promise! :)

Have a good night all!!

Victoria

[RedFlame]

OK we are waiting Victoria!!  If you have info. now or not we want to hear from you:-)

Red

[michelleislay]

hey victoria,

totally understand wanting the results to come back as positive in some regard.  

i think i read in one of quix's posts that she was just so happy to know the name of her enemy.  this makes complete sense to me.

i do hope you get some answers, and then some relief soon!!!

xo  michelle

[VictoriaDouglas83]

Thank you.  I will look those evoked potentials up on the internet and ask about them at my appointment next week.

I am also waiting on my Lyme Disease test to come back.  All the other blood work, vitamins, CBC, and all that came back normal.  

I hope this weekend goes by quickly (they always do even when I want it to go by slowly), but I hate playing the waiting game.  Especially since I've been playing it for way too long.  I'm sure everyone here can relate.

Thanks for the suggestions Red!  I really appreciate it, because I wasn't even thinking about evoked potential, I don't even know what they are yet.  Google...here I come!!

:) <3 Victoria <3 :)

[RedFlame]

It doesn't sound wierd at all to sort of want something to show up on the MRI.  When you suffer for a long time without a diagnosis it becomes more frustrating not knowing than to know what it is.  

I hope that you do get answers soon.  Treatment now can make a huge difference in your life and get you get back to your life and hopefully halt the progression.  

It's a very bid deal that your doc is already thinking about a possible LP in case the MRI is inconclusive.  Also, maybe he will order the evoked potentials too, that could make the LP unecessary.  

There are a number of things that may be done to exclude every other possibility.  

Hang in there and we will be here for you!


Red

[VictoriaDouglas83]

I had my MRI last night.  My neurologist said it would take around an hour to two hours.  It only took 45 minutes.  I hope they didn't skimp on anything.  I don't know if it is a T1, T2 or T3.  I have no idea.

He said I should have my results at my doctors by mid next week.

I know this sounds weird, but I just hope it shows something.  It sounds weird saying it, but I am so sick of being in limbo.  I just want to know what and why and how.  And I really want to start some kind of treatment so I can run around and play with my kids without having to take a 4 hour nap in the afternoon, rest every few minutes and be able to take them to the park even if it is 80 degrees outside.

I'll let you all know what the results are next week.  My neuro said that if they don't know anything that he would like to do a LP on me.  Which I would do, if the MRI doesn't show anything.

Have a wonderful day everyone!!!

Victoria