My Neurology Appt TODAY!!!

[VictoriaDouglas83]

Well, I have my neurology appt. today at 11am.  I am kind of nervous.  I wrote down all my symptoms on a piece of paper so I don't forget anything.  

I told my husband last night that I was nervous for today and he asked me why.  I said because I am afraid that he is just going to write me off like everyone else.  He told me to stand my ground and insist that he help me.  I told him it's not that easy.  But I am going to insist that he look into my problems and not just write me off.

I really hope he is a good neuro. even though he isn't a MS specialist.  I just want to get my MRI's and if I have to a LP.  If he doesn't, then I guess I am headed 1/2 way across the state to a MS specialist, since there doesn't seem to be any close to me.

I hope that I can get some answers before my husband leaves on Sept 12th.  I know it's basically impossible to move that fast in this case, but I am crossing my fingers anyway.  

I got some blood drawn yesterday to check for low B12, Lyme and a few other things.  So I'm on my way to rule out things.

I'll post again after my appointment, probably to cry to all of you because he told me I am crazy or something.  Wish me luck and send prayers!

Victoria

[Lulu54]

Wow - that is so encouraging.  A neuro who listens is a rare find, so hang on to this doctor.

I'll watch for that update on Thursday - remember to get a copy of your MRI.

be well, Lulu

[Sparkysarah]

Hi Victoria

I am also so glad that your appontment went well today and will wait with interest to hear fow the results from the MRI go...it probably all feels a bit surreal. My dx was very quick and with a fairly similar journey...almost told before any results had come through from what I was presenting with.

At that stage I DID NOT think there was any chance it was MS as I had not had many sx..but they all came on thick and fast afterwards. It is a defiinite rollercoaster with ups and downs so be brave, courageous and although I know a part of you wants to have the answers, still be prepared to be surprised whatever the result as the brain has a habit of running away with us either expecting the worst or denying the possibilty of the worst scenario. It sounds like you are almost expecting or hoping for a dx of MS as then you know what is going on....and I hope for you that this is not the case.

Let us know how the scan goes and fingers crossed. I pray for you that it is not ms.

Love and hugs

Sarah x

[Pablo_Morphy]

I am glad you found a good Neuro.  That's one of the most important steps in dealing with our symptoms, whatever condition we have:  Finding somebody who listen to us and cares.  

Hope you feel better soon.  Keep it up!

Pablo

[VictoriaDouglas83]

Thank you for all of you congrats!  

I am so sorry for you who cannot seem to find a doctor to help out or listen to you.  I know how you feel, I've been struggling for years now, but now that these symptoms have been almost constant for 3 months I was really getting concerned.

The neuro that I am seeing is not a MS specialist, but he seems to know what he is talking about and is looking at every possible conclusion without shrugging me off as a hypochondriac.  He wrote down an entire page in a half of notes as I was talking.  

I really hope that all of you find some answers.  And I REALLY hope that this doctor continues to believe me and help me find some answers.  He also said that even if these tests come back normal, I could still have MS.  I almost dropped my jaw on the floor.  After reading everyones horrible experiences with diagnosis, I was totally not expecting this.

My MRI is Thursday at 8:00pm and 9:00pm.  It is with and without contrast, I have no idea what that means though.  He gave me a prescription for a sedative, only one pill though.  I was hoping he would give me several so I could actually get some sleep.

The things he said were abnormal that were pointing to MS were, my reflex in my feet (babinski reflex I think) (toe pointed upwards), my balance when I close my eyes (I almost fell over, but he caught me) and the lhermittes sign.

I'm sorry to repeat myself all the time, but I just can't believe that it is going this easy for me.  Nothing has ever been easy for me.  It's either he is a really good neurologist or he is just acting like he is a caring doctor so he can get paid and get me out of his office.

On a bad note, my neck is killing me!!!!  And the vibration in my head is really frustrating.

Again, I wish everyone had a positive experience like I had today.  

Victoria

[figuerpa]

I am so happy that you found a Neuro that cares and it is your first neuro. Most cases are not that way. That is why I am going through my neuro and PCP.

Good luck and keep us informed, and wobbly has an awesome idea of asking for copies of all your tests. I haven't but I will now that she mentioned it.

Best wishes
Paula

[Wobbly]

I'm glad you found a Dr that will listen and do something to help find out what is happening to your body.  Wow... sounds like you might find answers with this Neuro.. hope you get your MRI done soon and find answers.

let us know how things progress and when things are happening.... ask for copies of your tests...OK

take care
wobbly