Hey everyone,
I had a MRI of my brain along with cervical and thoracic spine which were negative. Neurologist said he can't help me... go back to my GP. I've seen two neuros...both said if I had MS it would show on the MRI.
I have been having noticeable symptoms for a year, each "episode" seems to be worse. It started last April with visual disturbance, fatigue, and stiffness. Followed by numbness, tingling, and pain around my ribs with shortness of breath like someone had me in a bear hug, burning pain in lower back and flank area (down to my hip flexors)...I even had my gallbladder removed. My short term memory is beyond horrible along with cognitive function, balance is awful like I'm always drunk, abnormal sensations, muscle spasms, twitching, vibrations etc. I've had sexual dysfunction as well, and most recently it seems like my bladder is cramping and not emptying completely which has resulted in a UTI and I'm waiting to hear back to see if I have a kidney infection. At times it seems like my bladder leaks drops shortly after urinating. I was checked yesterday for ovarian cysts which I didn't have any yet I'm still having bladder issues. Blood work ruled out Lupus, Lyme, vitamin deficiency's, diabetes, and thyroid problems.
I've had to find a new job because of hazards associated with my occupation and the changes in my vision/body. Due to muscle weakness in my lower extremities (mostly left leg, hip flexors, and my lower back) I'm unable to hike and I have to limit my physical activity or a pay a huge price. A few weeks ago I went for a walk, near the end of my walk my leg gave out and I fell.
So my question is...what do I do now? I've read many posts from people that didn't get a diagnosis for years and I'm not sure where to go from here. I'm so frustrated and lost....