No question, just a brief update.

[Sidesteps]

I had my Rheumatology appointment today. We went through the test, he asked a lot of questions. I do not have Arthritis (except a coule minor injuries which is normal)  Lupus, Sjorgren's syndrome or the biggy that the Neuro put on the table.... Fibromyalgia!  I don't have any tenderness in any pressure points. No tenderness anywhere except my shoulder.  He said, "Your symptoms are Neurological and sound like MS but without lesions on the MRI ..." (I nodded my head.) He asked more questions.  "Without seeing your MRI's...well, it's not this area. You don't have any of the symptoms to make me think it's here." (Meaning anything he can treat.)

I do have rotator cuff tendonitis in a severe form so he gave me a cortizone shot for it so I can get back to using my right arm and building muscle again. I wonder if part of that isn't spasticity since the entire shoulder is a mess. I guess I'll be able to tell in a few days. I suspect if it's spasticity it will still remain tight for the most part. It's amazing how quickly the lidacane worked on the shoulder (still some surrounding stiffness and pain  but it's better.)

There are more mimics confirmed to be ruled out. I am not sure how a Neuro could come up with Fibromyalgia from my symptoms and clinicals but whatever... I am not sure I should be grateful or not but I am not going back to that Neuro again nor am I going back to that radiology clinic. I have serious doubts anyone actually looked at my MRI's in person.

[Sidesteps]

Thank you so very much. I've been struggling with my emotions lately. Bouncing all over the place.

[grannyhotwheels]

It sounds like you have a good plan by going to this doctor... Your symptoms are certainly suggestive of MS... I have a lot of the same symptoms plus a few of my own...lol... When do you get to see this doctor?  I hope it's soon...

Please keep us informed and we are always here for you through it all...

I'll be praying,
Carol

[Sidesteps]

My symptoms started a little over a year ago - twitching then jerking. I noticed some difficulty swallowing (my tongue wasn't coordinated) and I started paying attention. Shortly after, I noticed balance, coordination issues, energy sensation, my eyes skipped and then a full system breakdown -  increase in most of the twitching, jerking, balance, my handwriting and voice changed, misspelled and lost words typing or speaking, incontinence, pain around my ribs, burning, cold spots and buzzing, weakness, fatigue, vertigo and haziness is my eyes with pain. Headache. I could not walk through a store without getting sick or close my eyes to shampoo my hair or hold a blow dryer. This lasted about 2 or 3 months then I got better.

They tested me for a variety of things - lupus, vitamins, thyroid, lymes and sarcoidosis to name a few.

I felt better for a bit but the vision issues persisted and I seemed to never fully recover. I started feeling bad again then noticed double vision, facial pain and itching along with an increase in a lot of my other symptoms in the spring. I've been cycling with symptoms every month with my cycle, exercise or heat. I have tried denial but my vision issues and myoclonus keep me concerned by changing up enough I get worried.

Currently, I have twitching, jerking day and night. Double vision, eye pain,  lack of coordination between my eyes, blurriness, color shade differences at times, fatigue, hearing issues (weird sensations), palatal myoclonus, right arm and leg sluggishness (oh that above too) and facial itching/pain (this is better.)

There are images of questionable areas on my profile. Pretty sure that things were grossly missed on my MRI's. I DID take a leap of faith and schedule my next appointment with the director of the MS facility that works at two of our most respected hospitals. I was informed she treats all Neurological issues but she's very compassionate, loving and approachable and will go through all my images/questions with me. She expects and encouraged her patients to take an active interest in their health so I'm hoping she can figure this out.

[grannyhotwheels]

I think that's a good decision... If there is any way possible you should see a MS Specialist... If they are doing their job they will look at the MRI and probably run another one (depending how old) to compare it too..

What are all of your symptoms that make you think it's MS?  If you could give us a little more back ground I'm sure someone here will have a better idea on the direction you should go in... What did the Rheumatologist see to suggest MS?

Please take care of yourself and stay cool... Also keep us updated on what your next step will be... Let us give you the moral support and help any way we can...

I'll be praying,
Carol