Not a question

[teenyturner]

My neuro ordered Diazapam for spasticity.  The rehab doc changed the dose and times and told me to take extra if I need it.  The haem doc has now asked me to go off it.

Ahhhhhh!

[teenyturner]

I asked my haem if he wanted me off the Diazapam because it was addictive, he said that it had nothing to do with it.  At this stage in my illness addiction to anything isn't a problem, there are worse things to worry about.  He's just afraid it will make me fall and my bones are very weak, I'd never recover. My haem doc is my saviour I like, trust and respect him. The rehab doc was okay but I don't know her well and the neuro is a tool.

I tried taking Baclofen but I vomited every day.  I persevered with that sucker for weeks until I gave up.

I get a rigid spasticity in both legs ( won't bend at all and the feet invert) and also at times my back and neck is effected too.  Diazapam works and allows me to take a couple of supported steps to my wheelchair, toilet etc.  I can sit in the wheelchair with my feet on the footrests, otherwise they'd be sticking out in front of me.

I will stop the Diazapam by tapering down, simply because the haem doc is the one I trust the most.

Any suggestions out there for alternatives that don't cause drowsiness or cognitive problems?

Regards

Chirley

[debgen]

I have really bad spasticity in my left leg. I take 60 mg of Baclafen every day and one 5 mg of Diazapam right before I go to bed at night. The Diazapam has been a life saver for me because I can now sleep through the night without dealing with severe leg cramps. I'm sure it is addictive, but I'm not having any negative side effects, only positive results!
Good luck!
Deb

[Guitar_grrrl]

I use Diazepam only occasionally, when my spasticity is more than my Baclofen can handle.  I try not to make a habit of it, just because it IS habit forming!  ;-)

[supermum_ms]

Agghhhhh indead!

Can you call a meeting with all your docs and knock their heads together, throw hot coffee on them, then ice, then a bucket of bull ants and tell them to hang on you'll get back to them later.lol ok a bit drastic but sheeesh your docs are toools!

Hugs............JJ