Aa
What a shock
Yesterday I posted the following on the what's happening thread:-
"I am quite excited, I know thats really sad, But tuesday I see the eye specialist, I really hope he can sort out the double vision and pain around the eye as well as the droop and then I will be able to drive my beloved yellow beetle again! Ok so I know it's only my first appointment and there wil be alot of talking and not much happening but a girl can dream!"
I knew the specialist was probabley going to suggest botoxilin injections around th eye what I didn't expect was having discussed the pros and cons he asked if I wished to go down that route and then did it there and then! He has explain that it will take a couple of days to feel the effect but will feel something also I need to return in 2 months for more and they will build up the dose.
On downside he explain that the problems I was experiencing did not completley fall into one catagory some of it would be classes as Hemifacail spasm on the other hand I also hand symptoms indicative of Blepharospasm although quite different both are life long conditions and can not be cured, but the injections were the way forward.
I asked quite a lot of intelligent questions at the appointment but of course when you come away you have time to think about it. How long can I go on having these injections for? "Dr Google" say 5 years approximatley and you become immune, what happens then?
Maybe if they could just sort out what was causing all my neurological issues it could all be resolved as I keep being told that" it's nothing serious" & " I don't have MS or any other life threatening condition"
Opps a bit of a rant there, sorry
"I am quite excited, I know thats really sad, But tuesday I see the eye specialist, I really hope he can sort out the double vision and pain around the eye as well as the droop and then I will be able to drive my beloved yellow beetle again! Ok so I know it's only my first appointment and there wil be alot of talking and not much happening but a girl can dream!"
I knew the specialist was probabley going to suggest botoxilin injections around th eye what I didn't expect was having discussed the pros and cons he asked if I wished to go down that route and then did it there and then! He has explain that it will take a couple of days to feel the effect but will feel something also I need to return in 2 months for more and they will build up the dose.
On downside he explain that the problems I was experiencing did not completley fall into one catagory some of it would be classes as Hemifacail spasm on the other hand I also hand symptoms indicative of Blepharospasm although quite different both are life long conditions and can not be cured, but the injections were the way forward.
I asked quite a lot of intelligent questions at the appointment but of course when you come away you have time to think about it. How long can I go on having these injections for? "Dr Google" say 5 years approximatley and you become immune, what happens then?
Maybe if they could just sort out what was causing all my neurological issues it could all be resolved as I keep being told that" it's nothing serious" & " I don't have MS or any other life threatening condition"
Opps a bit of a rant there, sorry
Thanks guys I guess it's only a short time before I see him again so I can question him about it then.
Yikes. I totally relate to the trying to be on top of it at the appointment and then going home and realizing you didn't hit on half of it-- rant understood, my friend.
No apologies required for rant..you deserve to feel very concerned, frustrated and annoyed. Nothing is definite and you still need answers. Keep positive and it feels like the most worrying thing is that he indicated that he believes after 5 years the injections will cease to be effective.
Take care and we are on your side.
Love and hugs
Sarah x
Take care and we are on your side.
Love and hugs
Sarah x
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