OK. I need help...

[Momzilla]

Hey, everybody!  As you know, I don't have a diagnosis of any kind.  I have been posting on this forum since April, I believe.  Although my docs aren't sure what's going on with me, I have severe muscle cramps and tightness ALL over.  It's driving me crazy!

My neuro has observed increased muscle tone in all four limbs, so I know I'm not making it up, at least.  He just doesn't know the cause yet.  So my question is this~~

What do I do???

I know you all have given me your remedies before.  I need them again, please!  I'm in so much pain!  My jaw hurts, my toes are sticking out every which way, my neck is as hard as a rock!  My legs are the same as always -- like a gerbil is climbing around under my skin.  I'm naming him Goober.

I just sent my hubby to the store for tonic water.  Any other suggestions?

Goober's Mom*

[cdvzfr]

I am still new to this so I dont really have any suggestions but I wanted to post and tell you good luck, I hope the people here can help you.
Rae

[AussyRose]

I am in NO WAY chuckling at your discomfort, but I literally LOLed at the sign off, "Goober's mom"

I am excited to see that through all this, you still have a wonderfully charming sense of humor.  

Hang in there!  
Aussy

[doni54]

Thru all the pain you still have your wonderful sense of humor, Goober.......for sure!!!!!

I know exactly what you are going thru and how frustrating it is. Mine started back up yesterday afternoon and while I lay on the sofa last night moaning, my husband looks at me in disgust and says what's wrong with you?!?  Of course I said nothing, and just lay there and moaned to myself.

I don't wish these symptoms on anyone, but don't you guys and gals wish that everyone around you could just feel what you feel for only one day? Maybe then they could understand how miserable we are at times.  Sorry, that was really mean spirited wasn't it?

For a 53 yr old I have the muscle tone of a weight lifter!!!! LOL  Always wanted to be able to bounce a quarter off my tight muscles....................NOT!  Your description of your pain and muscle tightness is exactly the way I feel. No fun at all!!!!  Can I name mine Goober 2, or maybe **ithead?

My heart and prayers are with you and I wish I could take yours and hotlegs pain away, even for a day or two to give you both a break.

I will pray for the pain and tightness to lessen and for Goober to take a hike!!!!!!

Love & (((((hugs)))))
doni

[grannyhotwheels]

By the way what is tonic water?  Zilla -  I hope you are feeling better today.  I prayed for you really hard last night.  I also hope even if you are feeling better to still call your doctor and try to get some relief.

I'll be praying,
Carol

[Momzilla]

Thanks so much, you guys!  Your responses were just what I needed!  As always....

Hot Legs~  You should revisit the women preacher thing...Ever heard Joyce Meyer?  I know what Peter says about men taking the steering wheel, but I think it applies to marriage.  Peter's my favorite Apostle.  I love Paul's writing's.  They're just a little mysoginistic.  Men of their times.  We need to remember what the culture was like at that time....Women rock!  Mary Magdalene preached in Gaul after Jesus' death.

Also--The Scripture from 2 Corinthians is the one my pastor emailed me several weeks ago when he said he was glad to see me in church every week.  "His strength is made perfect in our weakness."  I love that!  Thanks for reminding us!
I digress....

I phoned my endocrinologist this morning, because I never hear back from my neuro for days (he's an associate professor at a university and only is at the hospital a few days.  His nurse takes a few days to get back to me.)  So, the endo called me back just now and listened to what was going on, and said, Hhhhhmmmmmm.  I'm not going to prescribe anything right now, because I don't know what's causing this.  Your tests came back pretty normal.  (I had 13 tubes of blood drawn 2 wks ago to check for hypothalamic dysfunction.  He and my neuro think I may have hormone deficiency causing a type of CFS.)  Your potassium was a little low, but not bad.  That was about it.  What I'd like you to do for the cramping pain, is take Advil, for inflammation.  Then I'll see you next week for the Growth stimulation Study and we'll go over your results.

Oy.......

Thanks for the prayers and good thoughts.  You keep my spirits up, which is all I need!

Goober's Mommy* -- I still got it, Aussey!

[essdipity]

That endo is maddening. Try calling the neuro again, and keep calling until you can talk to HIM and say what's going on. It's a sad reality that the squeaky wheel gets the oil. So what if they think you're a pest. Tough, you're hurting! Sooner or later they'll get tired of your calls and DO SOMETHING. I hate it when I have to be that way, which fortunately is rare, but when I do, I do.

I'm sorry to seem to be yelling, and it's not at you, of course. It's at life, and at these illnesses, and at doctors who need to be horsewhipped. Of all the smug, condescending and self-inflated people on earth, this bunch seems to be the worst.

Well, now I feel better, anyway. I hope you will too, and very soon.

ess