PAIN AND MS

[young at heart]

I DON'T REMEMBER IF WE HAVE DISCUSSED THIS TOPIC OR NOT . JUST OUT OF CURIOUSITY , HOW MANY HERE HAVE PAIN WITH YOUR MS OR THE ONES NOT DIAGNOSED?

MANY NEURO'S DISMISS PAIN WITH MS , EVEN THE ONES UNDIAGNOSED.

WE ALL KNOW THAT MS CAUSES NEUROPATHIC PAIN,PAIN IN THE LOW BACK,OPTICAL NEURITIS CAUSES PAIN WHEN MOVING THE EYES AND SO FORTH.

I'M FORTUNATE THAT MY NEURO BELEIVES IN PAIN WITH MS,BUT I ALSO HAVE AA (ADHESIVE ARACHNOIDITIS)

MY NEURO HAD ME ON OXYCODONE 10/325 I THINK AND HAS CHANGED IT TO METHADONE.WHICH I DON'T KNOW HOW I FEEL ABOUT IT.MY WHOLE SYSTEM IS WONKY RIGHT NOW.DON'T KNOW IF ITS THE PAIN MED OR THE SINUS INFECTION.

HOPING OTHERS WILL SHARE THEIR STORIES OF PAIN AND HOW YOUR DRS.TREAT IT.I THINK IT WILL HELP MANY HERE.

T-LYNN

[smittygirl]

Not dx but have severe pain in legs, mostly quads and a lot of lower back pain.  I also have severe reactive arthrtitis.  My new neuro says my symptoms are a huge puzzle which he is determined to put together and is running every test there is for MS, he was very annoyed that the last neuro didn't order a new MRI ( last one was 06) or any other tests.  If anyone remembers me she is the one that told me to breath in and out and all my symptoms would go away!   He told me it's a good thing I don't have numbness in my skull because.........  that would make me a "numbskull"!  His attempt at humor and to put me at ease, it worked!  Anyway I have pain now that I never had with the arthritis so down the road I go with the rest of you.


Sue

[Amyloo]

ME TOO.  I'M LIKE HEATHER, ALL DAY EVERY DAY.  MOSTLY LEGS AND SPINE.  I HAVE FIBROMYALGIA TOO, THOUGH.  WHO KNOWS WHERE THE LINE IS DRAWN, IF AT ALL, BETWEEN THE TWO.  GOD BLESS YOU, AMY

[young at heart]

YOUR BONE HEAD NEUROS NEED SLAPPED AROUND THE BLOCK AND BACK AGAIN.

THAT HONKS ME OFF,BEINGS THEY NEED TO MAKE THEIR PATIENTS COMFORTABLE.DIAGNOSED OR NOT.

I'M GLAD  YOUR FAMILY DOC HAS A BRAIN AND HE HAS THE SENSE TO HELP RELEIVE YOU.

YOUR NEVER LATE, SWEETIE,
THANKS FOR THE THOUGHTS FROM YOU AND YOUR LITTLE GREEN MEN,YA KNOW HE HAD A NAME.I GOTTA FIGURE THAT ONE OUT.

I DON'T KNOW IF I LIKE THE METHADONE,3 DAYS WITH A FEVER,  ER  ,SAYS ITS A VIRAL INFECTION,I DON'T KNOW,I THINK ITS A SIDE EFFECT FROM THE NEW MED.

HOPE ALL IS WELL WITH YOU.

AWAYS IN MY THOUGHTS.

T

[mokibear]

HEY THERE T, AS ALWAYS OF LATE I'M LATE COMING IN HERE.HAHA YES I DO HAVE PAIN AS WELL FROM LEG AND BUTT SPASMS AS WELL AS THAT FUN HUG I JUST RECENTLY HAD. I ALSO PERIODICALLY GET THE PIN AND NEEDLE PAIN AND I GET SOME PAIN THAT I JUST CAN'T DESCRIBE BUT SEEMS TO BE THERE JUST FOR THE FUN OF IT.

I HAVE PERCOCET THAT MY FAMILY DOC HAD GIVEN ME BUT THE BONEHEAD NEUROS SAY THEY DON'T WANT TO GIVE ME ANYTHING UNTIL THEY KNOW WHAT IS WRONG WITH ME.

MY THOUGHTS (AND THE LITTLE GREEN MEN'S THOUGHTS LOL) ARE ALWAYS WITH YOU.

HUGS
MOKI

[young at heart]

I AGREE NEURO'S DO NEED HUNG,BUT YOU DO HEAR OF NEURO'S STATING THAT MS DOESN'T CAUSE PLAIN.

HEATHER YOU ARE BLESSED TO HAVE A GREAT NEURO.MY NEURO IS AWESOME IN CONTROLLING MY PAIN.HE WENT FROM OXYCODONE TO METHADONE BECAUSE MY PAIN LEVEL WAS OUT OF CONTROL.

MY NEURO IS SENDING ME TO A PAIN CLINIC TO SEE IF THEY HAVE SOME BETTER OPTIONS.BUT I'M NOT ONLY DEALING WITH MS BUT ADHESIVE ARACHNOIDITIS- AN INCURABLE NERVE DISEASE IN THE LUMBAR.VERY PAINFUL.

JUST LIKE YOU I PRAY EVERY DAY FOR A CURE FOR BOTH,I FEEL MY FAITH HAS KEPT ME GOING THROUGH ALL THIS.MY FAMILY AND FRIENDS HAVE BEEN SO SUPPORTIVE.I HAVE BEEN BLESSED WITH A SUPPORTIVE NEUROLOGIST AND NEUROSURGEON.

T

[Heather3418]

I unfortunately have daily, chronic, sometimes unbearable pain that I have had non-stop for years.  I FORTUNATELY have doctor's that listen to my cries for help and are doing everything in their power to try and help me.  Despite medication, I have not known a day without pain for a very long time.

I pray for a cure and a reversal of the damage from MS.

No need to get your crying towels out for this lady though, I manage my life through my faith, my friends and good doctor's that really do care.

Heather