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Avatar universal

nervous

I was diagnosed with RRMS the end of April after my first attack, prior to it all my "symtoms" had been strange, left side of my face, body, ect. stuff and only lasting seconds to a minute.  Not so on April 14.  I was walking an talking like I was drunk and could not control my right arm.  Not good, I'm right handed.  Spent 3 days in hospital for tests, went home to wait for 3 more days for LP results.  We got results and then went to get iv steroids, felt better somewhat the first day, talked better!  
Because of my heart issues (cardiomyopathy and afib) and the fact that the night after my fourth steroid iv my heart rate kept dropping til it was in the 35 range.  I stopped taking one of my heart meds on my cardiologists say so (the meds lowers my heart rate) and a few days later my heart rate soared and I went back on it.   It hurt my hands and chest when my pulse jumped to 90.  
  My neurologist wants me IN the hospital not as an out patient should I need more steroids. Well, since my first attack I still haven't "regained" all the stuff it took away.  I still have some issues with my hand, talking is hard especially if tired or stressed, walking is iffy (I messed up my left knee, oops!)   I'm still hopeful that more gets back, on Rebif as well as my heart meds.
But today I got scared, we were done shopping at Costco and when walking out my legs started feeling heavy, more each step I took.  By the time my husband realized I was not with him, he was 20 feet ahead.  By the time I reached him I could not lift my feet, I was dragging them.  We drove home okay, I could lift them a bit better when getting in the house and I rested all evening.  But it freaked me out, and hubby is watching for any more problems to appear.  
Is it unusual for steroid meds to cause heart rate to drop?  
Best Answer
1689801 tn?1333983316
Hi and welcome to this forum. I´m sorry about your diagnoses, and all that is going on. It must be overwelming. I have not had steroids, so I hope you will hang around for someone else to help you about that. There are not many of us here on a weekend.
I´m not diagnosed, so I am just here because I have all kinds of symptoms that point to MS. Maybe more like what you had before your "real" big attack, tingling in half of my face and hands and feet. Musclespasm and twiches and so on.

Because of some stuff happening to me, I am often wondering if MS (or at least the nerveproblem that I have) can also cause heart problem and many more strange symptoms in organs, from some kind of spasm maybe from the Vagus nerve. I once stumbled on a article from a neurologlist about this. Everyone´s MS can be SO different.

I hope this attack will go away quickly, it is great that you seem to be in such a good hands with this caring neurologist.
So my best wishes to you for now,
Dagun
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Avatar universal
thanks Lisa, yeah, I have talked to my docs (them all) about the meds, possible reactions between them, ect. no one has an answer so far.  I was just wondering if anyone here might possibly have Afib issues and had the same reaction with steroids I seem to. it would be great if my husband could relax a bit. he watches me so carefully. he needs a break.
Helpful - 0
Avatar universal
thanks, well I think, that is I hope! that my walking issue was because of the heat. I really, really do hope so. I have had some headache issues again but so far that's all.
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352007 tn?1372857881
Hi and welcome to the forums.  It's a great  place to be to extract input from many people that can share their experiences and provide emotional support.

Sounds like you've been going through a lot and to answer your question in regard to your history of cardiomyopathy and Afib and being on steroids that made your heart rate low, that is a question YOU should ask your DOCTOR.  

We can't say or not say. You can also call your local pharmacy (the one you use) and ask the pharmacist as well.  But I think its best to write down your questions and ask your doctor because it concerns you.

Best wishes to you here as well.

Lisa
Helpful - 0

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