Thank u so much , u were very helpful . Yes I left the ER with a diagnoses of something that does not explain my problems at all . He did say it still may be MS but if first flair up its hard to see on the MRI , so the facial nerve damage for now pointed to bells . I have another apt mon . The thing is I have no insurance . Racked up 10 000 in hospital bills already and can't afford much more . My fiancee and I have been together 3 years and thinking about doing a court house wedding so I can be added to his insurance . They won't add me and cover me with a MS diagnoses . So I have to wait . How can I help with the pain until then? My doc said he will prescribe more steroids at next apt if not better as that will help it, and we will wait with neuro apt til insured in a month or so . I just can't afford this . My left fingers are no longer responding the way I want , their doing their own thing .
I Had A CT Scan That Was Clear As My D-dimer Was High THEy Thought blood cloth in lungs . Had 2 ekg , 2 full blown blood tests , 2 xrays rays,1 MRI where nerve damage was spotted . Not sure what other testing they can do other then spinal test and as of now I can't afford that . So what could I do to ease it? I quit smoking , on day 3 now lol . And stopped drinking energy drinks . Any other tips in diet change or anything ?
Thank you so much for responding
Hi and welcome to our little MS community,
Yes MS is definitely possible, because your sx's are all on your left side of your body (unilateral) and MS most commonly presents unilaterally..........BUT that doesn't necessarily mean MS is the only possible explanation!
Your questions....
1: Is this MS symthoms og a flair up ?
A: possible
2: How long do they last?
A: IF it is MS, then that is too difficult to say because technically a relapse can last for as little as 24 hours to as long as months and months, so unfortunately no one can really tell you for sure.
3: Do they come often ?
A: Again that's too difficult to say, MS is unique to each person and it's possible to go years and years between relapses or a matter of months.
4: Will it be hard to diagnose it ?
A: MS can be difficult and complicated to dx, there are a lot of conditions that first need to be ruled out and the dx is based on all your sx and presentation, combined test results, clinical signs, medical history etc and that can take some time, although it's also possible to dx straight away.
You really need to be seen by a neurologist, preferably one that specialises in MS because MS is possible due to your sx type, unilateral presentation, young age, gender and brain MRI results so far. Keep in mind that MS does have many mimics you'll need testing to rule out, clinical neuro exam for any noted clinical signs of lesion damage, another brain MRI using MS protocol with and with out contrast and also a full spinal MRI. With you already having 4 children, there is the possibility of some structural issues that need to be ruled out too.
I find it rather strange that the ER neuro(?) would be thinking MS but then only dx bells palsy based off the MRI results, especially considering you not actually complaining of facial issues or having the typical physical problems associated with it. Something definitely seems odd with that dx and its your left arm, chest and leg that's the problem, so i 100% believe you need a second opinion with a competent neurologist!
Cheers............JJ