Aa
Please give me advice
There is no dignose of my son and I need help. It is a rare case or even the first time disease appeared.The doctor says nothing can be done at the moment, But we do think that there are still experienced one who can offering help to us. PLEASE!
Here is Kenneth’s disease brief history:
On 27 August 2006, he was found weak in left leg and was not able to walk normally after waked up in the morning. We sent him to the Prince of Wales hospital immediately. And the next morning, he lost his control of his left limbs. And later, he could not control his tongue as well. He was diagnosed of stroke at the first time. He was sent to Intensive Care Unit when he was found difficulties in breathing and was given heparin for the treatment. One week later, he started restoring his functions gradually. Then he learnt how to stand, walk and talk. He nearly totally recovered after few weeks. Unfortunately, on 28 September, he suddenly felt weak and cannot move his tongue in the morning again. The next day, he could not move his right limbs this time. It was the same side which he suffered when he was one and half year old in 2000. He had the herpes encephalitis.
He was sent for MRI again and also did the CSF. Multiple lesions were found in the white matter of the brain and oligoclonal band was found positive from CSF test. He was given steroids and heparin this time for the treatment. He was suspected to be ADEM or Multiple Sclerosis later in October 2006.
Third MRI was done in November 2006 that his lesions were slightly increased and a small cyst was found in his brain. Kenneth started recovering after one week of second relapse. He resumed most of his function and able to walk for a short distance gradually.
Unfortunately, Kenneth has double vision occasionally in this month. MRI was done in 21 August 2007 in the hospital. Lesion was found in his brainstems, but the radiology doctors have different opinions on this. In addition, according to the following up MRIs, as well as the distribution and the persisted lesions, it was found not favored to typical ADEM or MS. Tests on some rare disease and metabolic disease was also carried out for Kenneth. The results were all negative.
Here is Kenneth’s disease brief history:
On 27 August 2006, he was found weak in left leg and was not able to walk normally after waked up in the morning. We sent him to the Prince of Wales hospital immediately. And the next morning, he lost his control of his left limbs. And later, he could not control his tongue as well. He was diagnosed of stroke at the first time. He was sent to Intensive Care Unit when he was found difficulties in breathing and was given heparin for the treatment. One week later, he started restoring his functions gradually. Then he learnt how to stand, walk and talk. He nearly totally recovered after few weeks. Unfortunately, on 28 September, he suddenly felt weak and cannot move his tongue in the morning again. The next day, he could not move his right limbs this time. It was the same side which he suffered when he was one and half year old in 2000. He had the herpes encephalitis.
He was sent for MRI again and also did the CSF. Multiple lesions were found in the white matter of the brain and oligoclonal band was found positive from CSF test. He was given steroids and heparin this time for the treatment. He was suspected to be ADEM or Multiple Sclerosis later in October 2006.
Third MRI was done in November 2006 that his lesions were slightly increased and a small cyst was found in his brain. Kenneth started recovering after one week of second relapse. He resumed most of his function and able to walk for a short distance gradually.
Unfortunately, Kenneth has double vision occasionally in this month. MRI was done in 21 August 2007 in the hospital. Lesion was found in his brainstems, but the radiology doctors have different opinions on this. In addition, according to the following up MRIs, as well as the distribution and the persisted lesions, it was found not favored to typical ADEM or MS. Tests on some rare disease and metabolic disease was also carried out for Kenneth. The results were all negative.
I just receive a mail from the following:
Maria Milazzo MS, CPNP
Pediatric MS Center
Department of Neurology
Stony Brook, New York 11794-8121
It is so happy to hear that she is interested in my son's case and willing to comment. But we need to get the MRI copy to her. So I will talk with my son's doctor to get the information and send to her.
Thanks all for your hugs.
Good health to you all as well.
Maria Milazzo MS, CPNP
Pediatric MS Center
Department of Neurology
Stony Brook, New York 11794-8121
It is so happy to hear that she is interested in my son's case and willing to comment. But we need to get the MRI copy to her. So I will talk with my son's doctor to get the information and send to her.
Thanks all for your hugs.
Good health to you all as well.
Hi, Vera,
I just wanted to say hello, and send a hug your way. I'm sorry it's still so frustrating for you. I want you to know that I'm thinking of you and Kenneth. It sounds like the professor does have some good ideas. It just may take some time. Let's see what Quix says when she's feeling better. I know Kenneth and you are very important to her.
In the meantime, take care of Kenneth, and be good to yourself.
Love,
Chris*
I just wanted to say hello, and send a hug your way. I'm sorry it's still so frustrating for you. I want you to know that I'm thinking of you and Kenneth. It sounds like the professor does have some good ideas. It just may take some time. Let's see what Quix says when she's feeling better. I know Kenneth and you are very important to her.
In the meantime, take care of Kenneth, and be good to yourself.
Love,
Chris*
Hi Vera,
I'm so sorry you and your son have to wait on another collapse to get the help Kenneth truly needs. Did they comment on the cyst? Will they continue to check, or measure it? I'm sure this is all very overwhelming and it's hard to keep all the questions and answers together during Dr. visits, so I apologize if my questions come at a bad time.
I'm praying for your son and for you and your family,
SL
I'm so sorry you and your son have to wait on another collapse to get the help Kenneth truly needs. Did they comment on the cyst? Will they continue to check, or measure it? I'm sure this is all very overwhelming and it's hard to keep all the questions and answers together during Dr. visits, so I apologize if my questions come at a bad time.
I'm praying for your son and for you and your family,
SL
I have been wondering how Kenneth was doing. I'm sorry you still don't know anything. All we can do is keep praying for him and let God take care of it. I am also praying for you to have the strength that you need to get through this. You are a wonderful mother Vera, and Kenneth is very lucky to have you.
I'll keep praying,
Carol
I'll keep praying,
Carol
The professor says he might be MS or ADEM, and there is a new diagnose multi-dem, ADEM is now not only happen once, but repeatedly. And there is no medication nor treatment to him. Only wait for his next collapse and see what the case. If it is infected by virus, then attack virus. If unknown, use "steroi". We can do nothing to prevent. We can only wait to see. Or his case may be changed to MS or something else. Noone know.
In fact, there is no answer also. It is so complicated that I do not know whether it is happy or not. And Kenneth is just like a bomb. I hope that he will be getting healthy and life long.
But I will not give up to keep on checking anything we can do for him.
Love to you all.
In fact, there is no answer also. It is so complicated that I do not know whether it is happy or not. And Kenneth is just like a bomb. I hope that he will be getting healthy and life long.
But I will not give up to keep on checking anything we can do for him.
Love to you all.
Have an Answer?
You are reading content posted in the Multiple Sclerosis Community
Top Neurology Answerers
Australia
ON
Queensland, Australia
Queen Creek, AZ
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease
