Aa
Please give me advice
There is no dignose of my son and I need help. It is a rare case or even the first time disease appeared.The doctor says nothing can be done at the moment, But we do think that there are still experienced one who can offering help to us. PLEASE!
Here is Kenneth’s disease brief history:
On 27 August 2006, he was found weak in left leg and was not able to walk normally after waked up in the morning. We sent him to the Prince of Wales hospital immediately. And the next morning, he lost his control of his left limbs. And later, he could not control his tongue as well. He was diagnosed of stroke at the first time. He was sent to Intensive Care Unit when he was found difficulties in breathing and was given heparin for the treatment. One week later, he started restoring his functions gradually. Then he learnt how to stand, walk and talk. He nearly totally recovered after few weeks. Unfortunately, on 28 September, he suddenly felt weak and cannot move his tongue in the morning again. The next day, he could not move his right limbs this time. It was the same side which he suffered when he was one and half year old in 2000. He had the herpes encephalitis.
He was sent for MRI again and also did the CSF. Multiple lesions were found in the white matter of the brain and oligoclonal band was found positive from CSF test. He was given steroids and heparin this time for the treatment. He was suspected to be ADEM or Multiple Sclerosis later in October 2006.
Third MRI was done in November 2006 that his lesions were slightly increased and a small cyst was found in his brain. Kenneth started recovering after one week of second relapse. He resumed most of his function and able to walk for a short distance gradually.
Unfortunately, Kenneth has double vision occasionally in this month. MRI was done in 21 August 2007 in the hospital. Lesion was found in his brainstems, but the radiology doctors have different opinions on this. In addition, according to the following up MRIs, as well as the distribution and the persisted lesions, it was found not favored to typical ADEM or MS. Tests on some rare disease and metabolic disease was also carried out for Kenneth. The results were all negative.
Here is Kenneth’s disease brief history:
On 27 August 2006, he was found weak in left leg and was not able to walk normally after waked up in the morning. We sent him to the Prince of Wales hospital immediately. And the next morning, he lost his control of his left limbs. And later, he could not control his tongue as well. He was diagnosed of stroke at the first time. He was sent to Intensive Care Unit when he was found difficulties in breathing and was given heparin for the treatment. One week later, he started restoring his functions gradually. Then he learnt how to stand, walk and talk. He nearly totally recovered after few weeks. Unfortunately, on 28 September, he suddenly felt weak and cannot move his tongue in the morning again. The next day, he could not move his right limbs this time. It was the same side which he suffered when he was one and half year old in 2000. He had the herpes encephalitis.
He was sent for MRI again and also did the CSF. Multiple lesions were found in the white matter of the brain and oligoclonal band was found positive from CSF test. He was given steroids and heparin this time for the treatment. He was suspected to be ADEM or Multiple Sclerosis later in October 2006.
Third MRI was done in November 2006 that his lesions were slightly increased and a small cyst was found in his brain. Kenneth started recovering after one week of second relapse. He resumed most of his function and able to walk for a short distance gradually.
Unfortunately, Kenneth has double vision occasionally in this month. MRI was done in 21 August 2007 in the hospital. Lesion was found in his brainstems, but the radiology doctors have different opinions on this. In addition, according to the following up MRIs, as well as the distribution and the persisted lesions, it was found not favored to typical ADEM or MS. Tests on some rare disease and metabolic disease was also carried out for Kenneth. The results were all negative.
I pray you get the specialist you need for your son, and I hope it's very soon. I believe many on the forum would agree, it's not greedy, nor selfish, to pray for these things for yourself and for loved ones, and be sure to add the words, "quickly!"
Be well, I'm glad you are a part of the forum,
SL
Be well, I'm glad you are a part of the forum,
SL
Fatigue is a very common symptom in people with MS, I have not read about the pediatric side of the disease and I think I remember treading that they really do not totally understand why the fatigue is so extreme. I have not been diagnosed yet but my symptoms seam to match or mimic MS. The fatigue I feel is unlike any exhaustion I have ever felt, it is tiring just to lay down some days! I would have Kenneth learn how to listen to his body, when he feels tired he should rest, when he feels strength again he can get up and do a bit more. When he overdoes it you may notice that he needs a longer recovery time than he ever has before, this is common and part of the disease. I have 2 children myself and I cannot imagine the anguish you may be going through! I will pray for strength for you, your husband and Kenneth. Try to read all that you can about the disease and stay positive, I know it is hard but it will help him stay strong too.
Take care and I will be praying,
Kristin
Take care and I will be praying,
Kristin
I have send to the MS society and the link provide by nicest Quix. And hope that they will come back to me. And I would like to ask whether feeling tired easily is also a symptom of MS? In the first minute, he is active., Suddenly another minute, he tells me he is tired. The tiredness sudden pop up in a minute? I ask the doctor that they say he will be easy to be tired only.
Many prayers for your son and your family. I pray that your doctors will be able to get in touch with some of the docs that Quix has provided and that they are able to get answers and a diagnosis for your Kenneth.
As a parent, my heart goes out to you. It is so difficult to see a child that is ill.
Please keep us updated on how your son is doing.
Take care, Pat
As a parent, my heart goes out to you. It is so difficult to see a child that is ill.
Please keep us updated on how your son is doing.
Take care, Pat
Thank you for your warmth and love to me and my son. God bless us all.
My heart goes out to you. We love our children so much that we would give anything to make them well. I will pray for Kenneth and also add him to my church prayer list.
You also need to take care of yourself so you will be strong for him. This is a little boy who needs his mommy to be sharp and on top of things. I will pray for you to have the strength you need.
Keep us updated,
Carol
You also need to take care of yourself so you will be strong for him. This is a little boy who needs his mommy to be sharp and on top of things. I will pray for you to have the strength you need.
Keep us updated,
Carol
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