MS remission

[bigmistake82]

When can someone consider MS to be in remission?  I'll have a couple of days that pretty good, and then a couple of days that aren't so good.  Can I consider the couple of good days remission?

[Sumanadevii]

Sorry but laughing with Bob.  I so feel that way!!!!  I would only add "10 pounds of hammered cow crap stuffed into a 5 pound sack with a mack truck running over me"......

[meg321]

"10 pounds of hammered cow crap stuffed into a 5 pound sack."   That is a good description for how I feel alot of the time. I think all of our lives are uncertain...just doing it one day at a time and trying to enjoy whatever I can...

and "take my meds and keep moving"

hugs, meg

[Jacksmom516]

I am new to all of this recently diagnosed but what you said is profound  Bob Seems to me all we can do is take our meds and keep moving cause from what I have found there is no way of knowing what course this disease is gonna take.  Have a great new year!~

[COBOB]

I know the feeling.  I pushing hard on 50 and work in IT.  My partner and I live on a small 6 acre ranch.  I still go out most days to throw hay to the 6 head of cattle and feed and water the hens.

It may sound dumb or defeated, but all I can do is take my medications, keep moving and cross my fingers.  

Bob

[bigmistake82]

Thanks Bob.  I'm pretty new to this, so I do worry about it quite often.  In fact, I haven't had a good night rest in probably 3 months.  I fall asleep ok, but will wake up in the middle of the night anxious about how I'm going to feel.  I'm a 33 yr old male who's always been very active and physically fit, and for the first time in my life I feel like my future is uncertain...I'm scared...

[COBOB]

I guess by the "criteria rules," 30 days.  For it to be a "new relapse," it has to be 30 days from the previous relapse. So I guess that 30 day period would be the "remitting" phase.

I have days when the spasticity and myoclonic seizure seem worse, but not to the point that I would call them a relapse. "Ken ayina hora" (Yiddish saying to not jinx it,) my last real relapse was about a year ago with my second case of ON.  I've been on Copaxone for a year and would like to think that it is doing some good.  I still have spasticity, myoclonic seizures, blurry vision, TN,  sensitivity to heat, and whatever else...but it is better than the way I feel when ON sets in and I feel like "10 pounds of hammered cow crap stuffed into a 5 pound sack."

So I guess the "new normal" is the remitting phase, and the "hammered cow crap" is my warning for a relapse.  I try not to worry about it day to day.  If I don't feel right for 3-4 days in a row, I call my PCP.  She will usually look for an infection or other cause and if my neuro exam is off, she will get me into the neurologist.

Bob