Aa
Quix
Quix,
Here is what my previous MRI said. This was in July of last year:
This is my MRI report from 7 months ago:
“Abnormal right optic nerve demonstrating enhancement without mass lesion along its intra orbital segment. Imaging findings compatible with optic neuritis. Additional note is made of a small nonspecific area of increased signal and associated enhancement in the right posterior frontal sucortical white matter. This may represent a concomitant area of active inflammatory disease such as that may be seen with acute demyelination. “
One neurologist told me the spot was likely related to high bp. The other told me it was inconsequential and had no idea why the radiologist even bothered to mention it. Said he was not too bright. So now 7 months later I sit here with ON again and legs that feel like spaghetti.
So now I have anothe bout of ON. I do not have as much pain this time but I am showing pallow in my optic nerve. They didn't have to dialate my eye this time to see it. I have had 3 vision field tests. One last June that helped get me my first ON diagnosis along with the MRI. Another one in September that was significantly improved from the one in July. That showed the ON was getting better. The most recent vision field is a lot worse than the one I had initially back in June with my first bout of ON.I finally have my appointment with an offical MS clinic next month.
Is it a lot more likey that this is MS now?
L
Here is what my previous MRI said. This was in July of last year:
This is my MRI report from 7 months ago:
“Abnormal right optic nerve demonstrating enhancement without mass lesion along its intra orbital segment. Imaging findings compatible with optic neuritis. Additional note is made of a small nonspecific area of increased signal and associated enhancement in the right posterior frontal sucortical white matter. This may represent a concomitant area of active inflammatory disease such as that may be seen with acute demyelination. “
One neurologist told me the spot was likely related to high bp. The other told me it was inconsequential and had no idea why the radiologist even bothered to mention it. Said he was not too bright. So now 7 months later I sit here with ON again and legs that feel like spaghetti.
So now I have anothe bout of ON. I do not have as much pain this time but I am showing pallow in my optic nerve. They didn't have to dialate my eye this time to see it. I have had 3 vision field tests. One last June that helped get me my first ON diagnosis along with the MRI. Another one in September that was significantly improved from the one in July. That showed the ON was getting better. The most recent vision field is a lot worse than the one I had initially back in June with my first bout of ON.I finally have my appointment with an offical MS clinic next month.
Is it a lot more likey that this is MS now?
L
Thank you. I can not figure out what is keeping my doctors I am seeing right now from starting me on the IV treatment. Maybe it is because they are not neurologists?
ON is in my right eye also. The leg I am having trouble with is my right leg. The TN I have experenced in the past is also on my right side. I am right handed and my right eye was dominant. I really struggled with needing to rely more on my left eye. I think I have adjusted now for the most part. Although I still try to look at things more closely out of my right eye. Like through a hole or something, I will use my right eye until I realize I can see better with my left!
L
ON is in my right eye also. The leg I am having trouble with is my right leg. The TN I have experenced in the past is also on my right side. I am right handed and my right eye was dominant. I really struggled with needing to rely more on my left eye. I think I have adjusted now for the most part. Although I still try to look at things more closely out of my right eye. Like through a hole or something, I will use my right eye until I realize I can see better with my left!
L
If it's of ANY comfort to you, I have been diagnosed with MS for 12+ years. Anytime I have had Optic Neuritis, it seems to always be in my right eye. This of course is not to say that is cannot happen in one eye, then the next. I am just trying to offer you a little comfort.
I know how worried you are about the ON. It's not something to fool around with and not treat. My neurologist will ALWAYS suggest a round of Solumedrol to try and get the ON calmed down and quickly. She doesn't fool around with this, as she says that nothing is more important than preserving my eyesight. She feels the Solumedrol is worth the raise in my blood glucose levels and my blood pressure, when I receive the IV treatment.
As is always true, Quix gives you some excellent knowledge and advice. God bless you Quix.
Feel better soon L. You will be in my prayers...you have my word.
Heather
I know how worried you are about the ON. It's not something to fool around with and not treat. My neurologist will ALWAYS suggest a round of Solumedrol to try and get the ON calmed down and quickly. She doesn't fool around with this, as she says that nothing is more important than preserving my eyesight. She feels the Solumedrol is worth the raise in my blood glucose levels and my blood pressure, when I receive the IV treatment.
As is always true, Quix gives you some excellent knowledge and advice. God bless you Quix.
Feel better soon L. You will be in my prayers...you have my word.
Heather
Well, reassuring, maybe in a way. I just want to know and then get on with my life. I have too many other things in my life to do. Going here and there to different doctors does not fit well into my schedual. I can deal with a dx if that is what I get. I have a more difficult time dealing with not knowing.
My bp has been considered very mild. 140/100 untreated. I was put on medicaition years ago and have ALWAYS taken if very faithfully. My treated bp generally runs 120/75. It goes as low as 95/60. The high bp reasoning did not make sense to me or my PCP who has been treating me for more than 16 years now.
Well, I do not look forward to another MRI, or probing by another doctor, but I do just want to know why my eye is going out on me. My worst fear is my other eye will go too.
L
My bp has been considered very mild. 140/100 untreated. I was put on medicaition years ago and have ALWAYS taken if very faithfully. My treated bp generally runs 120/75. It goes as low as 95/60. The high bp reasoning did not make sense to me or my PCP who has been treating me for more than 16 years now.
Well, I do not look forward to another MRI, or probing by another doctor, but I do just want to know why my eye is going out on me. My worst fear is my other eye will go too.
L
Well, it looks you you got ahold of a couple of Dodo-Docs, too. The MRI does, indeed, show acute optic neuritis. Any doc that saw that and knew you had other symptoms and referred to another hyperintense lesion as automatically from high blood pressure is not looking at the whole picture. Yes, lesions from uncontrolled high BP do often (usually) appear in the subcortical area, but that is also a common area for demyelinating lesions in MS. To automatically dismiss it is stupid. The fact that it enhances, I believe, is much more an indicator of demyelination and not ischemia from the blood pressure.
Yes, with a second episode of ON and neurologic symptoms in your legs you are much more likely to have MS. The recurrent symptoms do sound like MS. A lot of people complain about muscles aching. The easy fatiguing is what I noticed before the limbs actually got weak on exam.
This is from my definitive best ever resource book on MS. "Optic neuritis is one of the most common manifestations of MS, occurring in 14% to 23% of cases." With your history of ON x2, abnormal MRI, and other neuro complaints - if you have objective abnormalities on your neuro exam that point to a lesion in the brain or spine - you have met conditions for CIS, Clinically Isolated Syndrome (which puts you in a greater than 80% likelihood of developing MS in the next few years)
I am so glad you have the appointment with an MS Neuro coming up. I think (and I may well be wrong) that you likely have a diagnosis coming up.
I don't know if this was reassuring or not. But, thems the facts, Maam.
(((HUGS))) Quix
Yes, with a second episode of ON and neurologic symptoms in your legs you are much more likely to have MS. The recurrent symptoms do sound like MS. A lot of people complain about muscles aching. The easy fatiguing is what I noticed before the limbs actually got weak on exam.
This is from my definitive best ever resource book on MS. "Optic neuritis is one of the most common manifestations of MS, occurring in 14% to 23% of cases." With your history of ON x2, abnormal MRI, and other neuro complaints - if you have objective abnormalities on your neuro exam that point to a lesion in the brain or spine - you have met conditions for CIS, Clinically Isolated Syndrome (which puts you in a greater than 80% likelihood of developing MS in the next few years)
I am so glad you have the appointment with an MS Neuro coming up. I think (and I may well be wrong) that you likely have a diagnosis coming up.
I don't know if this was reassuring or not. But, thems the facts, Maam.
(((HUGS))) Quix
bumping up post for quix to read and possibly offer some advice...where I do not know the answer myself......
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