Regroup...

[Heather3418]

I need to regroup.  I need your assistance.  With as fast as people are coming to the board, I cannot keep up with everyone.  So I'd like to ask, maybe it would be easier for all of us, if we could list our "forum names;" "diagnosed or undiagnosed;" and if not MS, then what your doctors are saying that you have.  If you would like, also put your age if you feel comfortable doing so, so it can give us all an idea just by looking, what "age group" these symptoms and diagnosis are affecting.

I'll start....

Heather3418 (Heather) age 54......diagnosed-1995 ......MS

[Ley5792]

Ley5792.....age 24.........un-diagnosed.......doc's believe MS.

[dowma]

Dowma (Mary Beth)
Dx with seizures, no MS dx (yet) 42, female, NY.
doctor says "Neuro Autoimmune disease" currently being treated with IVIG monthly and just started Keppra.  MRI 2 brain lesions, spinal tap negative, labs negative, PET scan with hypometabolism.  VEEG with seizures and abnormal neuropsych. eval.  
Love the forum!!!
Mary Beth

[LATW]

LA(Lee Ann) 44 I am a full time at home mom of 7 children.  Our two older daughters are biological children ages 24 (married 3 year and has a one month old baby girl) and a 22 year old college student.  Five adopted at birth.  11 year old health son.  11 daughter, 9 son, 5 daugher, 2 son.......all whom have Down Syndrome.  My husband and I have been married almost 26 years.
We also have two pomeranians, one rat terrier and one hampster! My daughter has a cat that is not allowed in the house and has to stay at her boy friends house because we think it is possesed!! Evil cat!

I have had health problems as long as I can remember. I always wondered why others thought exercise was so great and how they felt so good after working out.  All I got from a workout was blurred vision, a vibrating body, and itchy hands and feet!!  

I had mono when I was 18 and again when I was 27. My doctor suspected lupus or ms when I was in my late 30's.  In the past 5 years I developed Trigeminal Neuralgia and then Optic Neuritis.  Most recenly my reflexes have become abnormal.  I was diagnosed with MS on Feb 13 2008.  I started medication for Trigeminal Neuralgia and I am feeling better. I am due to start Avonex this week.  

And that you for doing this!  I was actually wondering if we could all include in our signature line if we are dx'd with something everytime we post. I get confused and am not sure how to respond sometimes. It would help to know if there is a dx or not.  


Lee Ann

[TiredPT]

TiredPT (Teresa) . . . . 33 y/o female, Virginia resident.  Momma of 2 beautiful children and wife of an amazing man.  Physical Therapist by trade and I love my job but all this nonsense has seriously affected my ability to work at times.

No official diagnosis other than chronic high EBV titers and reactivation -- definite strange symptoms onset after the birth of my first child in 2002.  Been to a neuro last year that dismisssed me and my symptoms when MRI and LP were clear for brain tumor and pseudotumor -- went back to look at reports and seems all they looked at with the CSF was for malignancy, protein, and glucose.  Changed PCPs and new doc is sending me to a new neurologist in April.  Just playing the waiting game now.

[Barbie51]

Barbie51...51 year old female, diagnosed 2002, MS, neurogenic bladder, fatigue, cognitive issues

Bless both you, Heather and Quix keeping track of all of us, don't know how you do it.  Thanks!

[biowham]

Emily, female, 39. Biologist. Mother of three boys. Presented in October 2007 with foot numbness and paresthesia, bilateral upper extremity parasthesias. Hx of RSD in left hand. Thought it was CTS in right hand. Electrophys negative for CTS. Grandmother has had PPMS since 1950s. Heat intolerant, +rombergs, lower extremity hyperreflexia. Member of the "little mouse" club. Vertigo/dizziness, balance issues. Fell down stairs. Extremely weak in right leg. Weak right hand.

MRI: Several foci, three of which are >/= 3mm or more. Spine was clear on1.5T. No nerve entrapment. Compression at T spine. LP was negative, all normal. Blood all normal--no B12 prob, lupus, etc.

Two neuros, two very conflicting opinions. I have no dx of any kind because I can't even get two doctors to agree on where I'm hyperreflexive. First doc drylabbed part of the report. Second doc wants me to have half of a conversion disorder and half of organic etiology to fit his ideas of what's causing my problems. Am seeking "third" opinion (or second opinion on these two conflicting opinions, as my PCP says) next week.

E