Regroup...

[Heather3418]

I need to regroup.  I need your assistance.  With as fast as people are coming to the board, I cannot keep up with everyone.  So I'd like to ask, maybe it would be easier for all of us, if we could list our "forum names;" "diagnosed or undiagnosed;" and if not MS, then what your doctors are saying that you have.  If you would like, also put your age if you feel comfortable doing so, so it can give us all an idea just by looking, what "age group" these symptoms and diagnosis are affecting.

I'll start....

Heather3418 (Heather) age 54......diagnosed-1995 ......MS

[Nerve_Wrecked]

Nerve_Wrecked: female 33
Undiagnosed, "probable MS" by 1 PCP, and "I have NO idea" by another PCP.
Clear MRI, waiting to do an LP (waiting for appointment date)
Weird Symptoms since Nov'05

[risnerrose]

Female, Age 43
Diagnosis:  Diagnosed July 2007 by neuro, "Undiagnosed" August 2007 by MS specialist
MRI:  Brain lesions, no spinal lesions
CFS: Elevated IgG, no O-bands
Symptoms:  tingling, numbness, cognitive, episodes of sudden right-side weakness

[Jenn0030]

Jenn AKA Jenn0030

Diagnosed with Epilepsy, TN and ON. I am being treated for a migraine varient and Myoclonus.  I have seen two Doctors one thinks MS, one thinks no MS.  I go for my MS spec. evalutaion in two weeks.  I hope to finally get some answers.

Jenn

[spastic]

Spastic, aka spazie legs (ada), 32, live in Iowa been spastic since July not dx with ms yet but dr's suspect.

[speechgeek]

speechgeek (Rebeccah) age 38 undiagnosed currently being treated for lyme.

Symptoms began November 2007. Axonal peripherial neuropathy . visual disturbances, vertigo severe muscle fatigue in arms and legs. Terrible balance so on and so forth

I have a time line but it takes up too much space.

Rebeccah

[Sonaya]

I think I joined after seeing this post.  Good idea to bump Bellabella.

Ok  HI Im Sonaya, 38 from Australia undiagnosed 5mths since had initial "incident"  Sept 07. Will try to keep this brief. Very Sudden onset of stroke like symptoms. Prior to this, healthy, happy, loads of energy.  Only way can describe it was like something switched in my head, loss of hearing in one ear, blurred vision, speech problems, inability to think straight, weekness in legs, dizzyness, worst headache of my life (no history of migraines ever). All happened like a flick of a switch totally out of the blue. Suspected stroke, brain hem, meningitis. Test ruled out this. Mentioned Vestibular Inner ear problem, shingles,  MS, Lupus, Spinal Stenosis/disc compression.  OVer the months progressive symptoms of more blurred vision, motion sickness/vertigo, although not so much dizzy spells, just some triggers that can cause it,  facial numbness, tingling, pins & needle sensations, extreme muscle aches and pains and weakness. Loss of balance like Im going to fall over or my legs are going to give way. Stiff Neck,head pressure, eye pressure, ear & nose pressure like liquid filling up.  Clear liquid running out of nostril like CSF leak? Heat /burning sensations, chest pain (like angina)profuse sweating,  memory problems, just cant think like I use to, stare into space spells, extreme fatigue. Muscle spasms, twitching feet, legs, arms, face, eye, cheek, twitching with recent uncontrollable jerking mainly leg and arms, triggers similar to epilepsy seizures but not consistent. Unofficial diagnosis is Familial Hemiplegic Migraine with aura, although most of the time I dont get headaches, just the auras, yet sometimes I do.  The very recent symptom is palpitations in sleep with shortness of breathe. . Hot days seem to make muscle twitching worse, yet cold days make muscles ache & pain worse. So far all tests have shown nothing. MRI without contrast brain and spinal, LP CT Head, CT Sinus, Dopplar carotid arteries, ecg, heart stress test, bloods. Not seen neuro yet. Think that covers where Im at.