Regroup...

[Heather3418]

I need to regroup.  I need your assistance.  With as fast as people are coming to the board, I cannot keep up with everyone.  So I'd like to ask, maybe it would be easier for all of us, if we could list our "forum names;" "diagnosed or undiagnosed;" and if not MS, then what your doctors are saying that you have.  If you would like, also put your age if you feel comfortable doing so, so it can give us all an idea just by looking, what "age group" these symptoms and diagnosis are affecting.

I'll start....

Heather3418 (Heather) age 54......diagnosed-1995 ......MS

[6-paq]

6-paq (Pat) .... age 45 .... undiagnosed (Sx started in 2006) .... "possible MS"/sinus disease/lumbar stenosis

[Amyloo]

Amyloo-(Amy)  age 44 (till the 24th!)  diagnosed fibromyalgia and cervical facet syndrome but experiencing CNS symtoms for about 1 1/2 years.  Just started on this forum about two weeks ago.  Love you guys!

[pennst8r]

Pennst8r (Lisa) age 42 ... undiagnosed (Sx started in fall of '06) ... have had a few temporary diagnoses, all later ruled out. No diagnosis @ present (except spasticity and myoclonus, which are symptoms, not diagnoses)

[6-paq]

Hey, technically I'm still 44.  I'll be 45 on the 13th!!!   We're almost twins!!  :)

[Amyloo]

Yay!  We are both turkey 'chicks"!

[Heartshome]

Heartshome (Lisa) age 48 "probable MS" ...symptoms for eight years.

[pennst8r]

Have you noticed there's alot of Lisa's around here? Chris' too.

Penn

[frann]

Frann.... (Frann).... age 54... dagnosed with antiphopsholipid antibody syndrome and peripheral neuropathy... being worked up for MS... symptoms became debilitating since Oct. 2006.
Love you all.
God bless,
Frann

[mokibear]

Mokibear (Monika or Moki) age 43, undiagnosed with anything, symptoms for 4 years,last 2 the worst

[grannyhotwheels]

Grannyhotlegs.....(Carol)..... age 42.....diagnosed with MS in August of 2007
Have had symptoms since August of 2004.   You all are the best.  I love everyone of you and you all stay in my thoughts and prayers.

I'll be praying,
Carol

[kitten o]

KITTEN, AGE 48 DX IN MAY 2007
TREMORS ON LEFT SIDE MADE ME SEE
NERUO.

[TonkaSpirit]

Terrie......age 43.......diagnosed with post concussion syndrome, muscle spasms, migraines, and nerve something in my right arm.  

[BondyinOz]

BondyinOz (Mel)... age 24... DX with CFS and Endometriosis in 2003 (SX 2002-2004)... currently undiagnosed (SX April - current)... Dr says possible MS and possible Temporal Lobe Epilepsy... off to Neuro in exactly 3 weeks

[spankyandrex]

Sandra - undiagnosed.  1st Neuro Appt. 12/5.  I just turned 38 in Halloween.  Symptoms for years I believe, but could also be related to spine problems.  I won't go into my symptoms here - TOO LONG LOL!  Brain MRI essentially normal (I still question that- "Punctate lesions of high signal intensity", but whatever........ he said Neuro would talk to me about that) - I'm just waiting for neuro appt. and cervical/thoracic MRI, if I have lesions, they're there.  Ok, enough from me!  LOL!

[T-lynn]

T-Lynn----age 41----Officially Dx'd 1998---rediagnosed in December 2006.Now SPMS along with lumbar and lower thoracic radiculopathy and 2 failed back surgeries.Also a peripherial vesibular disease.

[essdipity]

Sorry bout the keyboard slip.          ess, age 64 (grande dame or old hag!?!) abnormal MRI, not specific last round. Bunch of symptoms. Had update MRI, have apptmt with neuro Nov. 6. Wish me luck.

[floridamom2]

Kristin . . . . Age 37 (feels currently like 67 though!!!!)  . . .  .Dx with myotonia and peripheral neuropathy but no cause for why I have these Sx's -  waiting to see neuromuscular doctor at Shands at end of month.  
Thanks Heather!!  You guys are all so great!!

[mikemolly]

Mikemolly (Bethany)~~~~Age: 32~~~~~Started 2001: Undiagnosed

On the MRI "Orders" from yesterday (11/3/07), my doctor had this in the Diagnosis box:

"Demyelinating disease of central nervous system unspecified"

Bethany

[Super_sally888]

Super_sally888, 37, Australian female living in Manila.  Undiagnosed.

MS was suspected but the drs have given up for now because they can't find anything specific clinically that fits their definitions. Hypothyroid, pituitary adenoma.   Symptoms come and go more noticeably since the end of last year.

[uk2]

uk2-samantha aged 32    British. surrey. no dx as yet still under going tests. on off sx from after birth of second child in 2000, worse after a car accident in 2006 nov unable to work since may this year flare after flare of nerve pain and muscle weakness.

Hi bethany we are the same age!!

Prayers and love to you all.

[angela5674]

angela5674 (Angela), 30, "Probable MS," multilevel degenerative disc disease, mild stenosis, multilevel bilateral neural foraminal narrowing.  CNS symptoms since at least June 2007 (it's been difficult to know what's been CNS and what's been just back/neck issues).  I finally go to see the specialist on Friday so hopefully I'll have more news.

[Sandpuff]

Sandpuff (Michelle), 35, live in Midwest, undiagnosed, just went back to neuro for the first time in years because of symptoms that have returned/started after a couple years of feeling well (myoclonus, fatigue, night sweats, tingling, stiffness, etc.)

Just joined here and I think this is a great forum.  

[Heather3418]

Hopefully more will post....but gosh, what you all have posted so far, has been a tremendous help to me.  It helps me to know who you are and what you are dealing with.  And I thought "I" had it bad.  My gosh, some of the things that all of you are going through gives me chills up and down my spine.

This has really been interesting and I thank you for responding.  I'll wait to see if there are a few more posts, then I will print this out and keep it by my computer.  It will be helpful to me when I am commenting on some of the posts, knowing what you each are going through..on your way to a diagnosis of SOMETHING.  My gosh you all are brave, brave people and I highly respect what each and every one of you are going through.

Thanks for all your input.. It's SO helpful.  Especially with my short-term memory problems.  This list will really come in handy.  Heather

[Heartshome]

Thanks Heather, No worries, some days it feels like I have no memory left at all! :)