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Results from MRI of Orbits
I had my neuro. appt. yesterday to go over the results of my MRI. First my PA, the nice girl that I want to see everytime walked in the room, and then da da DA,,, he (the big man neuro.) walked in. Well,,, I thought, did they see something and are ready to fill me in? NO.
He asked me why I had the MRI done, and the PA explained to him about my VEP test showing abnormal. He asked me if i ever lost my vision in my eye?? I said, yes, 2007 and again in 2008 it was worse for alittle while and then came back but not 100%. He said, well, you don't have MS. Nothing shows on the MRI, so it's not MS. I said ok?
He then started to talk about my EEG's and said, You have had 5 EEG's and all are abnormal , You have a seizure disorder. (Here, I am thinking, I know, you already told me this SO MANY FRICKIN TIMES) he grabbed my arms and started to twist them around, made me squeeze his fingers, and then do the finger follow test with my eyes. That's it!! No other part of the exam was done.
I then mentioned to him about me having cat sratch fever at 17. He said, bartonella can cause loss of vision. I said, could it be possible if I still have this infection lurking in my system causing me so many problems? and he said no, (really quickly). He said, ok, see you back in 3 months. WOW!! That's it!
So, I do not have MS, poor LisaJF, is dealing with "conversion disorder" (lol) we ALL have anxiety!!
Why are they called specialists in neurology? When what they really think they are psychologists/psychiatrists.
Cracking up here in Upstate NY!!!!!!!
He asked me why I had the MRI done, and the PA explained to him about my VEP test showing abnormal. He asked me if i ever lost my vision in my eye?? I said, yes, 2007 and again in 2008 it was worse for alittle while and then came back but not 100%. He said, well, you don't have MS. Nothing shows on the MRI, so it's not MS. I said ok?
He then started to talk about my EEG's and said, You have had 5 EEG's and all are abnormal , You have a seizure disorder. (Here, I am thinking, I know, you already told me this SO MANY FRICKIN TIMES) he grabbed my arms and started to twist them around, made me squeeze his fingers, and then do the finger follow test with my eyes. That's it!! No other part of the exam was done.
I then mentioned to him about me having cat sratch fever at 17. He said, bartonella can cause loss of vision. I said, could it be possible if I still have this infection lurking in my system causing me so many problems? and he said no, (really quickly). He said, ok, see you back in 3 months. WOW!! That's it!
So, I do not have MS, poor LisaJF, is dealing with "conversion disorder" (lol) we ALL have anxiety!!
Why are they called specialists in neurology? When what they really think they are psychologists/psychiatrists.
Cracking up here in Upstate NY!!!!!!!
Best Answer
You are all soooo amazing!!
I was going to look for another neuro. but then I ended up seeing his PA one day. She was awesome. I wish he never came into the room, because, I feel like he took away my progress I was getting from the PA. I think right now, I am going to continue with seeking out the right Lyme dr. I can find. THE BEST! and I won't take anyone less. I will be heard, and if I am not, then i walk away and deal with it the best way i can, because, I honestly become more depressed after seeing doctors.
I forgot to mention that after he talked to me about how I do not have ms, he said if I ever have my vision take the plunge again, then he will order a spinal tap.....
Why bother?? It will be normal,, right ?, since he out and out said its NOT ms about 100 x's. !!
So can my seizures cause all of these problems, or are my seizures the result of the big problem??? Hmmm?? Maybe i should ask my brilliant doctor!
Thanks everyone for letting me rant and rant!!
Still always trying to stay happy though,, lol
I was going to look for another neuro. but then I ended up seeing his PA one day. She was awesome. I wish he never came into the room, because, I feel like he took away my progress I was getting from the PA. I think right now, I am going to continue with seeking out the right Lyme dr. I can find. THE BEST! and I won't take anyone less. I will be heard, and if I am not, then i walk away and deal with it the best way i can, because, I honestly become more depressed after seeing doctors.
I forgot to mention that after he talked to me about how I do not have ms, he said if I ever have my vision take the plunge again, then he will order a spinal tap.....
Why bother?? It will be normal,, right ?, since he out and out said its NOT ms about 100 x's. !!
So can my seizures cause all of these problems, or are my seizures the result of the big problem??? Hmmm?? Maybe i should ask my brilliant doctor!
Thanks everyone for letting me rant and rant!!
Still always trying to stay happy though,, lol
OK your EEGs and your VEPs are abnormal. Then what the heck is it? Why bother having the tests if the response from the neuro are going to be the same from him either way - if they were abnormal or normal - you still get nothing out of him. Why does he want you to come back in 3 mos when he doesn't have the answer for you TODAY? Is it going to magically appear to him within the next few months?
Oh, why do we have all of these incompetent neuros that we waste our time and money seeing?
BTW, I love what 17o_bandslater wrote - that was excellent!!!
I'm sorry that the appt didn't go well. I'm actually surprised now when people's appts do go good. I hope you find a better doctor.
Hugs,
Kelly
Oh, why do we have all of these incompetent neuros that we waste our time and money seeing?
BTW, I love what 17o_bandslater wrote - that was excellent!!!
I'm sorry that the appt didn't go well. I'm actually surprised now when people's appts do go good. I hope you find a better doctor.
Hugs,
Kelly
Wow. I empathize with you because dermatologists are like this too. They look at your skin, go over their grocery list in their head while you tell them all the things that don't work, and then prescribe the same medicine you just told them doesn't work. They don't ever do anything diagnostic. Just prescribe a cream that treats symptoms of inflammation. LAZY.
^^^
Oh Gawd! ROFLMAO! There is NO WAY I can top the above post but is there some way to copy and save it to my desktop?! LOL ~ Thank you for the vent without having to type a dang thing.
Pam,
Ditto what every one else said above. What a jerk!!! You deserve better. Find another doctor.
(((Hugs)))
~Barb
Oh Gawd! ROFLMAO! There is NO WAY I can top the above post but is there some way to copy and save it to my desktop?! LOL ~ Thank you for the vent without having to type a dang thing.
Pam,
Ditto what every one else said above. What a jerk!!! You deserve better. Find another doctor.
(((Hugs)))
~Barb
Got to love Dr's Nothing on your MRI is great but no other suggestions of what could be causing your sx? AMAZING! Just come back in 3 months - better make that appt now cause you know he won't have an opening till 3 months from now! LOL
Where are you headed now as far as your sx go - There is something going on to cause all of this - what does your PCP have to say?
Where are you headed now as far as your sx go - There is something going on to cause all of this - what does your PCP have to say?
You are consistently challenging them to find "something" that would explain what you're going through and it is evident they do not know, so therefore, you get dismissive answers, an incomplete and quick assessment with a pat on your head and say, "I'll see you in three months".
Isn't it time for you to change when you are repeatedly getting the same run around time after time?
I understand your frustrations. I understand the emotional turmoil the health care professionals instill in you and/or "us" after an office visit where you prepared yourself emotionally that you will finally get the answers you need.
You're not alone, but you know this already for you have been on this forum longer than I have. So you have us to push you along when you're dragging your heels in the dirt, you have us to listen and care (compassionately and sincerely). You have us here to pick you up when you fall and help you back on your feet and give a gentle push forward again even though you feel like you're walking against a strong insuperable wind. You have us here to guide, (and for some here because they are educated in this field) educate and give their professional opinions on what to do next or even those who have been through this experience themselves.
There's nothing wrong with having anxiety. Everyone experiences this at one time or another in their life.. It is how you use your coping mechanisms and support systems to get your through these times. You' are doing well Pam and you must keep on going no matter how bleak the situation is.
You're allowed to crack up. It's your right and deserving considering what you've been through.
Im here anytime you need me.
Lisa
Isn't it time for you to change when you are repeatedly getting the same run around time after time?
I understand your frustrations. I understand the emotional turmoil the health care professionals instill in you and/or "us" after an office visit where you prepared yourself emotionally that you will finally get the answers you need.
You're not alone, but you know this already for you have been on this forum longer than I have. So you have us to push you along when you're dragging your heels in the dirt, you have us to listen and care (compassionately and sincerely). You have us here to pick you up when you fall and help you back on your feet and give a gentle push forward again even though you feel like you're walking against a strong insuperable wind. You have us here to guide, (and for some here because they are educated in this field) educate and give their professional opinions on what to do next or even those who have been through this experience themselves.
There's nothing wrong with having anxiety. Everyone experiences this at one time or another in their life.. It is how you use your coping mechanisms and support systems to get your through these times. You' are doing well Pam and you must keep on going no matter how bleak the situation is.
You're allowed to crack up. It's your right and deserving considering what you've been through.
Im here anytime you need me.
Lisa
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I think eventually it will be proven that the Neurobots are the cause of Conversion Disorder. If the MS Society really wanted to help us "self-advocate" they'd send us all copies of the DSM 5 (Diagnostic and Statistical Manual of the American Psychiatric Association.) This would serve a dual purpose: First, we could turn to the chapter on Somatoform Disorders (Conversion) and ask Dr. Neurobot to detail how we meet the criteria. Second, the book is rather hefty, so when they pull their pompous God routine, we can hit them over the head with the book.
And since they've already told us we're nuts, we can plead insanity if they press charges.
This, I believe, would do much to "convert" our helpless frustration at being invalidated and "gaslighted" (from the film in which a woman's husband convinces her she's crazy by gradually lowering the lights in their house, hiding things from her, denying conversations, etc.). The Neurobots have poor Lisa thinking she actually might have Conversion Disorder. The fact is, if she's ready, willing and able to consider this seriously, it's a very strong indication she does not have it. The prime hallmark of conversion disorder is complete denial, or what the Neurobots like to call "la belle indifference".
So...Limbolanders, repeat after me: "Dr. Neurobot, please stop projecting your indifference on me. I will no longer tolerate your disrespect, and I really must insist that you stop gaslighting me." Or, alternatively, "Dr. Neurobot, I did not fall off the turnip truck yesterday. So please stop micturating on my leg and telling me it's precipitating." (They really hate it when you use big words.)
Conversion disorder is a diagnosis of exclusion: The exclusion of the offending neurologist from the consulting room usually results in complete remission.
Really, what's with these guys? Psychiatrists and neurologists get essentially the same training. So what happens to turn the Neurobots into such passive-aggressive, pompous, dismissive, ill-informed nitwits? Are they injected with essence of jerk? Are they given a lifetime supply of "eau d'arsehole" when they finish their residencies? Is it a genetic mutation? And now, neurologists have taken to suing those of us who protest, for "defamation of character." Don't you have to HAVE character before it can be defamed?
And meanwhile, we get sicker and sicker, lose more and more of our lives, only to be told we think about our symptoms too much. Nitwits, our symptoms are riding us into the ground. We have to decide if we have the energy to go to the grocery store, or not. All we want is relief. Personally, I have decided to call my MS/notMS/MS/probableMS "Fred". And all I want is something to make Fred shut the h-ll up long enough for me to put some of my life back together.
What, a Dx of MS is this fancy carrot we all want? None of us want it. MS is the stick, and I bet you can guess where I'd like to stick that stick... ;) We shouldn't have to rehearse going to the doctor; it isn't an audition..."Hi, I'm Ann and I'm auditioning for the role of Compliant MS Patient #1." ??!!!! I was an actor in LA and I had more success finding acting work than I've had in finding a neurologist. Seriously, we need to find a way to let the neurobots know that collectively, we're on to them, and we won't accept this kind of treatment anymore.
"Conversion Disorder" my lily white tuchas. Dr. Neurobot, would you like to bite me now? Or would you prefer to stand in line, which is forming to the left?
Sorry. One really shouldn't speak that way to G-d...
Hang in there.