Sheesh... still having spasms - and now venous insufficiency...

[jensequitur]

So I've been having spasms for three weeks now.  They started about a week after I began Betaseron, and I thought they were due to the flu-like symptoms I was experiencing.  But the fever and aches are gone, and the spasms are still here.  So maybe it's not the Betaseron.

My leg still hurts like crazy, but the spasm/stiffness has moved from the calf and back of the knee to the upper thigh, and now I can tell that I have a painful area at the bottom of my right calf.  It feels just like the venous insufficiency I get in my left leg, but it's not that bright sunburned red - the calf is mottled and white and pink and purple.

I've scheduled an appointment with the vascular guy for Wednesday - it's crazy, but I'm hoping that it's more VI, because what else could it be?  I don't think it's CRPS or erythromyalgia.  These spasms are getting really old.  I'm having trouble walking - more so than usual - and getting in and out of the tub is dangerous.

So here's the question - would the spasms in my legs have caused the VI?  Or is the VI causing the spasms?  And this is really a question for the vascular guy, but I won't see him until Weds!

[jensequitur]

Yeah, it's crazy!  I just called the neuro too, because while I think I'm doing everything I can, I'm still in a lot of pain.  He's booked until the 30th, but they managed to squeeze me in.

[johnnymutt]

Darnn Jen, sorry to hear you are getting hit so bad with the S-word. Scary to hear of the possibility of a clot in there. Get that cane, or whatever, don't want you getting beat up anymore than you already are feeling.

Hope you start feeling better soon
Johnny

[jensequitur]

That's kinda what I'm concerned about, actually - I want to make sure there isn't a blood clot in my right leg.  That kind of pain is usually because of an insult to the leg - the last time I had spasms this bad, I had broken my toe.  I thought it was the interferon, but the other side effects have disappeared.

It's just really hard to use the right leg right now - I should really be using a cane, or something.  I almost fell over just a few minutes ago.

[sadie405]

I'm assuming you've had all your clotting factors checked, yes?

At any rate, I had my very first *painfu*l spasm last night. I know exactly what you mean about "that muscle behind the knee"-- not sure what it is or if that's even exactly where it was but I was laying in bed last night on my stomach and all of a sudden it clenched up, super-tight.  Oy.

[figuerpa]

I really don't have an answer for your questions, but I can relate to the spasms, I get them also in my leg and they are a killer. I don't get them for as long as you have had them and I do make sure to take my muscle relaxers as soon as they start to help with them.

I hope you find a reason for the spasms and can find a way to get them under control.

As for the mesages...of course the mesages help but for how long? This has me curious, when I get spasms I rub the area and it relieves it a bit and then I feel better but the spasms come back. Let me know what the PT says, I am interested in this concept, heck I may start going for mesages if this will help :)


Paula

[jensequitur]

I got some good information from my Betaseron nurse, actually - she says that she has a friend with FM, who gets regular massages as a prescription.  I need to start pestering my neuro for PT and massage - this is ridiculous.