Back from my appt.

[jibjen]

Hi All,


I have to say that I had a wonderful appointment with my doc today. As far as MRI- NO Spinal lesions and no new Brain Lesions. So basically nothing new to report on MRI's

EMG is negative for any Carpal Tunnel or pinched nerve. My Doctor is suggesting the problem is of other issue, maybe a lesion, although he does not know which one. he also did a needle test for numb thumb and nothing is showing a cause for this.

So we will schedule another follow up for MRI 6 months to 1 year. My MS is stable. We discussed the option of starting a DMD despite the fact that i am not showing any progression. He stated if he were to put me on a DMD he would start me on Avonex, sorry for spelling, we talked about pros and cons of being on this at this point and time and where I am at. He was awesome. I asked him if he thought being on this would do me more harm than good right now. He said that it is hard to tell. He can not tell me if I will progress in the next year, 5 years or 20 years..That is the thing about MS. I do not have a definitve dx. of RRMS yet but he is not doubting this.

I told him for me, personally knowing this is where I am, and for me to move forward with my life, I would feel better if I knew I was taking/doing something about my MS so I don't have to worry about progressing. He said he understood.  I asked him if he would be open to talking about it more at my next appt. He said absolutely.

He said let's schedule something for mid Jan. In the meantime He told me about the National Multiple Sclerosis Society Website to learn more (more than he give me there in my appt time). He encouraged me to educate myself and HE was going to do some more homework on ME and my case and re-look at my file. Still do not have DIT/DIS...

I told him I appreciated him for discussing my tests results with me and being open with me. He was so appreciative of that and totally aware of my feelings and concerns. I feel good. scared but good!

Jibs

[jibjen]

Good Luck! I am sending you lots of best wishes and prayers!

Jibs

[kwarendorf]

Stable is good, yes :-) I agree with you on everything and am on my way this afternoon to get my first Tysabri infusion!

[jibjen]

Hello,

i am sorry. This is what I am feeling. I do not want to wait to progress to start anything..Stable is good. yes..but as MS is so unpredictable..as he said, I would rather risk a few side effects and know I started something early than to progress and then start something.He understood my wanting to be "pro-active"

Jibs...

[kwarendorf]

If I knew then what I know now :-)

My first episode was 20 years ago. I had another 2 years ago. I was diagnosed with Secondary Progressive MS in October of this year. Had I started DMD therapy 5, 10, 15 years ago who knows if my disease may not have progressed to it's current state :-)