Symptoms worse lying down?

[wonko]

Hi, I have been confused for the last several months as new sensations appear and disappear.  I've posted before about tests/dr's, but have another Q that I would love some insight on, if people can offer any help.

My symptoms, particularly paresthesias (sp?) get worse within moments of lying down.  When I get up, they lessen, again in moments.  So an example is, I may have tingling in my face/hands/feet while up, but within minutes of lying down, the tingling spreads throughout my torso, and goes pretty much head to toes (except my ears and the top of my nose, to be precise).  Even weirded, if I lie on one side or the other, than that side gets more symptoms/tingling than the other side.  On my back, it's just all over.  

This has lead to me sleeping sitting up, or at least propped up, on days when I have a lot of symptoms.  I do this because there were a few times I went to sleep on my back and my symptoms woke me up and had me so out of whack that it frightened me.

Could this be a "clue" as to what is going on in me?  Has anyone heard of or experienced this?  Thanks all so much for taking the time to read.

[cjacks]

Hi Wonko

Have you seen an ENT . Maybe inner ear problem??  Some of that stuff is positional.
Just a thought.

Take care

Jo      

[wonko]

Hi All,

Thanks for the ideas.  I did have an EMG, and it came back normal.  MRI of my brain & c-spine with and without contrast were fine, and showed that my spinal cord is not pressed upon.  All the blood tests were fine as well.

My doctor says if my back was pinching something, I would have symptoms in one spot, whereas I get tingling from head to toe.

My neurologists says to try anti-depressants, but I am hesitant since I've discussed this all with 2 therapists would said they would not recommend them.  

I just deleted a bunch of thoughts about possibly taking anti-depressants, since it might be more coherent to post that separately.  So see ya'll in a few minutes once I write that up!  

Thanks all for the advice, I am glad to hear that this lying down thing is not an MS-thing, maybe all this weirdness will be temporary for me?  

Thanks again.

[kasilogan]

I have almost the same problem for the past 8 years and all mris and catscans have been negative so very frustrating.  Just now had connective tissue disorder suggested as a possible factor.

[wingnut19]

Hi there!

Wonko, slightlybroken has a good point when she asks if it has anything to do with the position of your neck....Is there any relationship in that???  


SB--Wow, thanks for the description of the difference between "novocaine" and "sleeping" numbness...I never could figure out how to describe that....You hit it dead on!  When I say, "My leg is numb", people say, "then how are you walking?"...I don't think they understand that the numbness (mine anyway) doesn't render my leg "useless"...(Except for one time)
Thanks!
Tammy

[CtResident]

In writing out my issues here, I noticed a theme. When I woke up, my legs were numb. When I woke up, my arms felt paralyzed. When I woke up, my face felt numb. When I woke up, my back felt like it hand deep banding pressure.

I don't have a clue as to what this means, if it is a back pressure issue?

I just had a neuro appt. today and will be getting some nerve testing done and when I have more info, I'll be sure to post it.

Suzanne

[slightlybroken]

Hi!! :)

Boy it's no fun when something messes with your sleep? I went back and looked at some of your previous post. Have you ever had an EMG? Do you feel like the problem is related to you back or the position of your neck?

I'd say it is a clue to what's going on but to what, I'm not sure. Sorry I couldn't be much help. Maybe someone will come along and have some answers for you. I know a few times when I've sleep flat on my back some of my fingers and the side of my arm has been numb. "Novocaine numb" not I'm asleep numb.

Take Care