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376513 tn?1217858105

I am here just not around right now....

Well to answer your ? I am okay I have been removed from my medicine was on Betaserum this was on August 26th as my white blood cells dropped to 1.3 my dr didn't have a choice she was "babysitting" me as I call it lol as my neurologist came back Sept 2 which I seen her that day and asked to be put on leave from work until we get my body figured out, I did see her being my neurologist in the later of Sept but she wasn't receiving my weekly blood work to make sure my white cells were going back up they have been up and down since I started the meds...so right now I am a guinea pig and go for weekly blood work will go back and see her on the 20th and hoping to start meds then probably Rebif I am thinking I am off work until Dec/Jan just until the majority of my side effects are gone then back as I am missing work huge!!! so I have been busy with organizing my house as we bought this house almost a year and it needs to be organized lol so each day I do little by little...other then that which I think is enough not a whole lot more to say...sorry I didn't realize the policy and procedures where do I go to read the list so I know...thanks so much!!!Shell
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293157 tn?1285873439
Hi Shell, nice to hear from you, but I'm sorry to hear your going through such a bad time with this.... I hope it gets better soon.

I understand about missing work, I do too..it's be along time for me and wish I could just go back to how it was a year and a half ago...I loved my job and co-workers were such a fun challange..hehehe

Keep in touch once in awhile and let us know how your doing...we missed you around here..

take care hon
wobbly
undx
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335728 tn?1331414412
Thanks so much for getting back to us my dear!  So sorry to hear about the trouble you are having with the betaseron...hope they can get that all figured out soon!  Well at least you have the time to get the house together which will be a definite plus with the holiday season coming as well I guess eh?  There really is no policy and procedure list...Quix just likes to tell us what to do..hehe  not really.  I am glad that you checked in with us though and let us know how things are going...hope you will pop in occasionally and keep us up to date!

Lots of Hugs,

Rena
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