Aa
The Week of the 21st
What is everyone up to?
Not much new in my life this week.
Alex
Not much new in my life this week.
Alex
Yeah!! My tongue was getting awful dry hanging out there like that! Paster and LuLu, it was King's Island! lol I have been to Cedar Point, too...but I really did like Kings Island better!
Gonna go and wet down this tongue of mine now!
Wow, we have a fun and busy week here!
Addi
Gonna go and wet down this tongue of mine now!
Wow, we have a fun and busy week here!
Addi
Finally started Copaxone. I just love the people at shared solutions to death! OK, OK, enough sarcasm. They really have been very nice especially the nurse who trained me. But, God almighty! I could have done with a little less hype about the virtues of the drug.
Neuro gave me a scrpt for low dose of amantadine. Hope it works. Will be seeing a psychiatrist, per request of GP and neuro which when I think about it, is probably a good idea - i've been geting a little loopy lately lol. Hopefully, I can get some resolution on stress, depression and sleep problems. Im also on so much medication, I think a good psychiatrist might be able to evaluate better.
Frank
See pulmonary/sleep dr. this week also.
Neuro gave me a scrpt for low dose of amantadine. Hope it works. Will be seeing a psychiatrist, per request of GP and neuro which when I think about it, is probably a good idea - i've been geting a little loopy lately lol. Hopefully, I can get some resolution on stress, depression and sleep problems. Im also on so much medication, I think a good psychiatrist might be able to evaluate better.
Frank
See pulmonary/sleep dr. this week also.
Lulu: Have to go straight home after the 7T trip? Our 11th Annual Car, Truck, & Motorcycle Show and Bean Dinner is Friday evening. We're a leisurely hour north of the big city. (Anybody who shows up and mentions this site, I will buy you a hot dog!) Oh, do you remember me asking if the cog fog therapy is working for you? Maybe I only thought about asking; can't recall for certain.
Dennis: I know this is a noncommercial site, but when I had DirecTV, I absolutely loved it. We will pray that you do too.
Addi: Were you thinking of Kings Island? I'll bet not even they have a 7T; Lulu's in a very elite class!
Maybe if it hadn't been for the gray, the docs wouldn't have dreamed up the idea that I'm too old for a Dx of MS.
Sparks, we will continue to pray for hubby, as well as for all the boys & girls placed in harm's way for freedom's sake. May they all be home safely and soon.
Okay, I am due at a dentist in an hour, then I journey 20 miles or so for Sunday School materials, I have to find time to pick up the mail and get to the bank, and sometime very soon I must tweak my resume for a job application in a new field, which would employ many of my strengths -- if I can keep them working!
May God be with all this week in such a way that you can't help but know He's minding your every step.
Dennis: I know this is a noncommercial site, but when I had DirecTV, I absolutely loved it. We will pray that you do too.
Addi: Were you thinking of Kings Island? I'll bet not even they have a 7T; Lulu's in a very elite class!
Maybe if it hadn't been for the gray, the docs wouldn't have dreamed up the idea that I'm too old for a Dx of MS.
Sparks, we will continue to pray for hubby, as well as for all the boys & girls placed in harm's way for freedom's sake. May they all be home safely and soon.
Okay, I am due at a dentist in an hour, then I journey 20 miles or so for Sunday School materials, I have to find time to pick up the mail and get to the bank, and sometime very soon I must tweak my resume for a job application in a new field, which would employ many of my strengths -- if I can keep them working!
May God be with all this week in such a way that you can't help but know He's minding your every step.
Well I go back to the neurologist on the 22nd. Having seen the general medical dr who thinks I have RSD. I get the feel he will probabley sign me over to him. Which I'm not keen on. But we shall see.
I am refinancing my FHA loan to take advantage of a lower rate so that I will have more cash when my Long-Term Disability stops at age 65 and all I have is SSD. Finding and faxing documents has occupied my last few days, once I got the computer (a little netbook) set up with a USB hub to accept the printers and got the All-In-One programmed to fax and figured out how to interface a phone splitter with the cable phone setup. One does not think well on Valium and Vicodin.....
We are hosting a mini-family reunion this week since my father is the current Patriarch and the family is coming to see him.
I am playing games with my bladder meds, currently on the fourth one (Detrol-LA). No medical visits, but have set up PT for July. I feel really raunchy. The spasticity is acting up something fierce - this is new. Not sure why, but I don't like it.
The reports are in and it's official: Life is not fair.
Quix
We are hosting a mini-family reunion this week since my father is the current Patriarch and the family is coming to see him.
I am playing games with my bladder meds, currently on the fourth one (Detrol-LA). No medical visits, but have set up PT for July. I feel really raunchy. The spasticity is acting up something fierce - this is new. Not sure why, but I don't like it.
The reports are in and it's official: Life is not fair.
Quix
Monday and Tuesday- recoup from the "vacation" to "FL. Too hot and I did too much. But , I got to visit with my 87 year old mom who is as stubborn as I am. Truly enjoy those 2 days even if I worked my butt off.
Wed. -PT and meet another MS friend at PT and go to lunch after our workout.
Rest of week - file SSDI papers , deal with my company disability company and their sister company who wants to manage my SSDI application. Get my oldest signed up for COBRA. Finish tapering off my Trileptal as it is causing a blood dyscrasia.
Wed. -PT and meet another MS friend at PT and go to lunch after our workout.
Rest of week - file SSDI papers , deal with my company disability company and their sister company who wants to manage my SSDI application. Get my oldest signed up for COBRA. Finish tapering off my Trileptal as it is causing a blood dyscrasia.
I had 2 MRI`s thurs and one on Saturday Brain T&C spine. I am anxious to see if there has been any change will probably get report thursday.
All the best Linda
All the best Linda
COMMUNITY LEADER
Ha i didn't even notice the date was off, sheesh i cant even tell you what day it is lol!
DH is in Singapore with his boss for the week, trying to not burn the house down, put the rubbish out on the right day etc. With him away, i thought i'd arranged enough food for DS and my self, not so apparently, it makes me realise just how many things he picks up on the way home lol.
DS so kindly shared his bug, so i'm feeling like a mack truck ran over me, ah the joy's of kids and what they are willing to share. We'll plod along, DS will learn a good lesson of doing with out, or should that be if you eat a weeks worth of groceries in 3 days, the remaining 4 will end up pretty boring.
DH is pressing me for birthday presant ideas, i'm fine and can't think of anything i want or need, oh i did come up with a segway but it wont fit in his luggage so thats out, any ideas?
I've learnt that inside the glass weather thingy is oil and not water, pitty jasmine (puss)broke it at 2:30am and i thought someone had smashed a window so came running (ah hobbling, wobblying and shaking lol) with baseball bat in hand. Only to find my self flat on my back with little slivers of glass in unmentionable places, oil, floor boards and my balance issues are not a good mix lol.
Funny last night my hole left leg went numb and i didn't even feel it, I always get up using my left leg because my right knee gives out on me with out warning, so its always safer to make that first step with the left. Dont know what happened but i made the step and it didn't hold me, it was all rubbery like i had no joints from my waist down, no tingles nothing but rubber. ha tried to save myself with the right leg and I went down like a pack of cards, all i could do was lie on the floor like a dead fish and laugh my head off trying to work out how i was going to get up. I wish i could blame it all on the oil but no such luck lol.
So i'm not doing much at all, trying to not get in to too much trouble!
Cheers........JJ
DH is in Singapore with his boss for the week, trying to not burn the house down, put the rubbish out on the right day etc. With him away, i thought i'd arranged enough food for DS and my self, not so apparently, it makes me realise just how many things he picks up on the way home lol.
DS so kindly shared his bug, so i'm feeling like a mack truck ran over me, ah the joy's of kids and what they are willing to share. We'll plod along, DS will learn a good lesson of doing with out, or should that be if you eat a weeks worth of groceries in 3 days, the remaining 4 will end up pretty boring.
DH is pressing me for birthday presant ideas, i'm fine and can't think of anything i want or need, oh i did come up with a segway but it wont fit in his luggage so thats out, any ideas?
I've learnt that inside the glass weather thingy is oil and not water, pitty jasmine (puss)broke it at 2:30am and i thought someone had smashed a window so came running (ah hobbling, wobblying and shaking lol) with baseball bat in hand. Only to find my self flat on my back with little slivers of glass in unmentionable places, oil, floor boards and my balance issues are not a good mix lol.
Funny last night my hole left leg went numb and i didn't even feel it, I always get up using my left leg because my right knee gives out on me with out warning, so its always safer to make that first step with the left. Dont know what happened but i made the step and it didn't hold me, it was all rubbery like i had no joints from my waist down, no tingles nothing but rubber. ha tried to save myself with the right leg and I went down like a pack of cards, all i could do was lie on the floor like a dead fish and laugh my head off trying to work out how i was going to get up. I wish i could blame it all on the oil but no such luck lol.
So i'm not doing much at all, trying to not get in to too much trouble!
Cheers........JJ
Addi, You can put your tongue away - you are thinking Kings Island down by Cinci or Cedar Point in Sandusky. Maybe both?
not much this week, tired today we had a busy weekend. It's funny how even going out for an hour on my Power Chair really tires me out. Maybe it's the fresh air too?
take care
wobbly
take care
wobbly
hmmm...don't know too much right now...having a stinkin "sleepy" day...it's been a while so I guess I shouldn't be surprised! Doesn't mean I have to like it either. Have to put in my bedding plants and clean my house. Have to get hubby ready for him to leave for Newfoundland on Friday. NO doctors appointments!! Hope everything goes well for all here...I'm gonna go back to bed I think! Talk to ya laterr!
Rena
Rena
Thank god it's not the 21st!
More house disassemble and reassemble.
Going to work real hard at liking debris between my toes.
And, use it all as an excuse to eat ice cream each night -- you know in keeping w/the treating myself good suggestions!
-shell
More house disassemble and reassemble.
Going to work real hard at liking debris between my toes.
And, use it all as an excuse to eat ice cream each night -- you know in keeping w/the treating myself good suggestions!
-shell
Today is my daughter's 15th birthday and we are just about to go out for a family meal with my hubbie who has a few days left before he returns to Afghanistan.
I go for my screeening for my drug trial ACT-128800 so lots of testing on 16th June and I will make a journal entry so will have to see if I am accepted onto the trial when test results are all done.
I go for my screeening for my drug trial ACT-128800 so lots of testing on 16th June and I will make a journal entry so will have to see if I am accepted onto the trial when test results are all done.
last time i wrote my whole year calendar. I will be careful this time and say
I am working on getting the company budget related software and fixes.
I am working on getting the company budget related software and fixes.
I am blaming it on starting Lyrica. I take 75mg at night but it leaves me loopy all day. I am seeing the Doctor today yesterday I ran a red light! I realized it right after wards.Thank goodness it was Sunday and no traffic on the road.
Alex
Alex
I'm asking my neuro for a lab slip for liver function tests tomorrow. I'm exhausted and weak, and I just want to make sure the Tysabri isn't trashing my liver.
Work today, Thurs. and Fri. Dinner tonight with my daughter, my DH, sister, her partner, etc. It's my big 52!!
Work today, Thurs. and Fri. Dinner tonight with my daughter, my DH, sister, her partner, etc. It's my big 52!!
Monday - Returned to work part-time after a 2 month absence recovering from a relapse and surger.
Tuesday - ENT appointment
Wed - Friday - Working part-time.
Julie
Tuesday - ENT appointment
Wed - Friday - Working part-time.
Julie
You make it sound like an amusement park ride. lol Okay kids, lets go get in line for the 7T!
Well heck, what is the name of that amusement park over by you? It's going to drive me crazy cause I can't remember the name. lol I went a couple of times before moving out this way, but sure enjoyed it then.
I'm sticking my tongue out...can you see the name on the tip of it?? It is there, I swear!
Keep enjoying your company!
Addi
Mon, Tue, & Thur are PT... Not sure how well that will go with swollen left foot from ant bite and the recent addition of tremors in my right leg. Couldn't I have just one leg working right for a change? :)
But lets not leave out Wed... That is when they are going to install DirecTV in my home...Have to get up early that day so probably no sleep the night before :(
Dennis
But lets not leave out Wed... That is when they are going to install DirecTV in my home...Have to get up early that day so probably no sleep the night before :(
Dennis
You scared me, Alex,because I leave on vacation June 25 and thought I had lost a week! LOL
This week - last day of work for the summer is tomorrow. :-)
Company is here until Thursday and I really am enjoying every moment.
Friday I take the road trip to Columbus for what is probably my last cog fog therapy and another ride through the 7T.
So yes, my week is crammed full. Somewhere in there I need to do my hair, too - not the gray but the roots are showing!!!
be well, Lulu
This week - last day of work for the summer is tomorrow. :-)
Company is here until Thursday and I really am enjoying every moment.
Friday I take the road trip to Columbus for what is probably my last cog fog therapy and another ride through the 7T.
So yes, my week is crammed full. Somewhere in there I need to do my hair, too - not the gray but the roots are showing!!!
be well, Lulu
lol, Alex ;0)
I am going to Pulmonary Function test today at 1 pm.
Tuesday daughter has pre-op appointment for surgery on toes
Saturday great-niece 2nd birthday party I am going to try to go to (she wears me out!)
I am coloring my hair this week, darn it!! Too much gray!
Keep working on timeline for USC appointment and get all med records together
Read a book - just because it sounds like a good idea...
Addi
Just back to the Monday work grind. I do work at home, which is nice. Also trying to just stay in the cool air-conditioning a lot.
Yesterday, I tried to sweep my above-ground pool, which put me in bed early afternoon with right eye pain, head/neck/shoulder pain, and had to take the old muscle relaxant. I woke up early with that darn old base of skull headache, but once I readjust my neck in bed, I can get it to go away.
Feeling pretty good now today.
Bye....
terri
Yesterday, I tried to sweep my above-ground pool, which put me in bed early afternoon with right eye pain, head/neck/shoulder pain, and had to take the old muscle relaxant. I woke up early with that darn old base of skull headache, but once I readjust my neck in bed, I can get it to go away.
Feeling pretty good now today.
Bye....
terri
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