Trying my luck here ...

[Eagle6205]

Hi everyone,

My names Steve Im relatively new to the Forums.

I'm posting here in the MS forums as it seems that I could be experiencing symptoms of MS.
I Originally posted a long post Primarily due to symptom listing. And Its been almost a month and not a single reply but my own. So here is a link if you want to read the Original post in which I explain my symptoms in detail with followup posts to update what the doctors say.

http://www.medhelp.org/posts/Neurology/Nuero-SurgeonNuerologist-Stumped-Pineal-Cyst/show/2172469#post_10375256

However. This one is not just about MS symptoms I have a pineal Gland Cyst in my head and I had many attacks before I actually had an MRI and found out about the cyst. Before anyone gives me the whole spill about how these don't cause symptoms, You may want to do some more research. I cant stand how when something is labeled rare everyone acts like that means never.  But although I say this..I'm not so certain it is the cyst. I never said it was to any of my doctors yet they are the ones who made the fuss. However through my own Long tedious research I discovered that there are surgeons who believe these cause a lot of the symptoms that come with MS however Not.

Up until March 15th I was fine. Then I began having attacks. The first 3 brought on all the symptoms of stroke but the sloping jaw or face. Now after a while a lot of the symptoms have chilled out. and a few remain however are very extreme.  Currently I have Severe Pain in one or both knees and legs and sometimes hips that on occasion after a severe days pain in which my legs LITERALLY feel as if they've been beaten with a baseball bat. They pain resides some and there is mild tingling and numbness as if god actually had mercy on me. So Now Im just back to ask people who have similar symptoms what their take is. I dont sleep much anymore and they wont diagnose me or give me any medicine for my pain. Hope yall can offer me some insight. Also why do you all usually see a GP instead of going to a neurologist first? Seems the GPs from what Ive read are more apt to help you then the Neuros,

[PeninaD]

Rather than a "pain-killer" medication, would you consider a medication that dulls or blocks nerve pain, such as Neurontin, Lyrica, or Cymbalta?

[aspen2]

And the wait continues.  So sorry.  It's a frustrating journey, for sure.

Thanks for the update, Eagle.

[Eagle6205]

Update - I had my appointment today. I saw the MS Specialist I went to the website for the MS community Research Facilities and found the local chapter was Originally gonna see the man who made the facility here but he was out so I saw an afilliate who was as qualified. I trust her expertise and I believe she is trying to help. She told me she didnt  think it was stroke.Because it affected both sides ,she said also that shes seen many seminars on migraines and the types and all the conditions they can mimic however she told me its not migraines because they come and go where as my pains constant. She said she doesnt think its MS as MS is very specific to its traits but she would try to do any tests which havent been done to help come to a diagnosis. A Large thick stack of papers was given to me to take to the lab where each one was a test to be ran. So maybe ill find out something more soon. Shes also going to be focusing on my Muscles and is going to have some tests ran on them as well as Neuropathy tests. she also took my videos to view for further Research and Images on my discs were checked she said the MS Protocol was used.

The Good news is she doesn't think I have MS based on what Ive told her.
the bad news is Im still stuck with this condition and no diagnosis, or pain meds as she makes it a point not to write scripts for pain.   Wont know any of my test results till September. So ...   :/  

[Eagle6205]

Hey yall Im back after a while, and I have an Appt in 3 days to see the MS Specialist. I have been waiting A long time to see her. I don't expect much though to be honest. It seems that no one knows whats wrong and if they do know they just dont care enough to tell me.   My head burns like someones got a hot iron on the top of it about 5 times aday for a few minutes at a time. and this past week has been kinda bad for me. I was having less pain and walking almost normal then it flared up again or something and now Im walking like an old man hugging the wall, and grabbing furniture. With the constant muscle/bone pain feeling going into my hips alot now can barely bend my legs with pain in the knees and Quads and some in the shens and calfs. While Im sitting it feels like little scorpions on my knees stinging them all around the knee caps. Been in bed most of today and had to go back to bed yesterday for about an hour. popped a tylenol today hoping it will take off the edge.  Not sure about going back to school anymore. Insurance and Tag is out on my car and I hardly drive let alone ride in a car the pains so intense and gets Alot worse in cars every bump finds me murmuring profanity and biting my lip.

Anyway thats my update will post when I find out what this appt tells me on the 4th.  For those who have lived with this and other conditions similar for years, You must have Iron Will, Its been only months and I'm feeling nearly defeated though I try to press on like nothings wrong. HatzOff2U

[Eagle6205]

I just want to say to all of you thanks so Sincerely. For all your replies no matter the constructive Criticism or even the thought there are other things.
Ive been feeling very alone about all this and everyone around has kinda brushed me off their shoulder like sorry for ya it aint me life goes on. Ive missed alot of things with family i wanted to go to so bad but walking hurt and my legs would give on me ,So I stayed home.

I felt alone in all this till I hear your replies and know that I'm not alone and some of you have had all these symptoms for years. Big Hug to all of you really this has brought me to my knees and I feel as if talking with others and reading others stories on here have been a helping hand back to my feet saying I can do this.

Some problems that are popping up though my leg pain has subsided some just that occasion shoot of pain in the caps and that constant band feeling below my caps where they test your reflexes. Im having Balance problems I go to get up I stand and then its as if one side weighs more then the other like im top heavy or dizzy without the dizziness.

Also my left hand the original side of which had most complications and loss of weakness is now starting to just out of no where loose grip Im constantly dropping things. it'll be fine then boom no grip. And my head had a large pressure that covered the whole back right of my head as if someone had pushed me but from inside my head. 10 seconds later boom gone. I shocked me I stopped dead in my tracks coming down the hall.

Beckteria So far your one of few Ive seen talking about the words like that.
I have 3 videos Ive made 1 was of when it made me stutter terribly and I felt like Mike Tyson punched me in the face, I'm considering Uploading it as a private video on YT so that maybe you could tell me if that's how it goes for y'all when the stuttering strikes. Or maybe just upload the Audio file of the video and link you all to it for an Opinion. Anyways THANK YOU GUYS.

[zerodegrees]

Eagle,
I am not sure what the size of the cyst was. I just know it was a pineal gland cyst. She did not even know she had it. She developed stroke like symptoms and they found it when evaluating for that. Because it was causing such severe symptoms it was removed. It was benign.

I also know a few people with them that were found incidentally and they do not have any issues related to that (according to their doctors).