VIBRATING BUZZING HEAD

[sandie490]

Hi All,
Does anyone here ever get a vibrating, shaking buzzing feel in their head.  It started a  couple of days ago, and last nite, it was so bad it actually traveled down the side of my neck down my arm and hand.  I have gotten those internal tremors in my left shoulder arm hand, and left leg.  This is a little bit different, I don't know if it just feels different cause it's in the heard area, but it was more of a vibrating instead of buzzing, or like a mild shaking.  It kept me up, it didn't hurt, but it was uncomfortable, and like I said it went all the way from my entire head, down to my hand.  It's happened a couple of times.  It's unnerving to say the least.  It also seemed to affect my chin and lips.  It also feels almost like the muscles around my skull are spasming or tight.   Anybody?  What is this like my 6th post within 2 weeks!  I'm falling apart!  But, I know I'm not alone!    That's why we're all here right!  At least we have us!  Sandie

[cainer]

Hi!! I thought we all did this.     i take mysolene   - it usually controls it. sometimes just my head   but usually my whole body.    hugs!  tick

[COBOB]

The buzzy head could be Occipital Neuralgia which involves a nerve that exits the C-spine at C2.  Cervical lesions can effect these spinal nerves (greater and lesser occipital nerves.)  MS is not considered a disease of the spinal nerves since these are outside the CNS.  The most common reason for Occipital Neuralgia is "Post Traumatic Neck Injury."   So lots of folks have Occipital Neuralgia, but not other MS symptoms.  Disk injuries at the C2 space also case Occipital Neualgia.

The key to treating Occipital Neuralgia is determining the cause.  In MS patients it may be a cervical lesion.  In the absence of a lesion, it may be a mechanical issue at the C2 space and a typical radiculopathy.  Treatment might be a "C collar", cervical traction, Anti-seizure Medications or an occipital block.

I guess what I'm trying to get across here is the Occipital Neuralgia is really a form of headache and can have many causes not related to MS.  It has been said several times:  You can not blame everything on MS.  Even in folks with MS, Occipital Neuralgia can be an unrelated problem from an old whiplash injury.

Bob

Optic Neuritis effects Cranial Nerve 2 and this is one pair of the two "Cerebral Cranial Nervers" (CN1 and CN2.)  The remaining cranial nerves do not terminate in the Cerebrum.
Another common cause of head/facial pain is Trigeminal Neuralgia (TN)  and is caused by a irritation of Cranial Nerve 5.  TN is typically achy or painful.  I have had no experience with my TN causing "buzzing."

[BBrinker]

So good to know I am not the only one! I get the buzzy head along with double  vision and tingling in my tongue and mouth. Its crazy annoying and normally ends with a super great migraine headache. It feels like I have my cell on vibrate and left it under my pillow, it's lots worse when I lay down.

I have also had 2-3 onsets of optic neuritis and lost a bunch of vision and color vision in my right eye. I have a funky optic nerve. My vision went from 20/15 in both eyes to 20/50 in the right and 20/30 in the left. (20/20 is considered normal and 20/15 awesome) At first I was waaay angry about the whole thing, and ironic enough I used to work for a bunch of ophthalmologists. I also have the wonderful lack of coordination and depth perception that comes with MS. I have taken some bumpy rides down the stairs, and tried to cut off my fingers while cutting a lemon. I also find that multi tasking while walking is dangerous and has caused me to run into low hanging objects that I can no longer see due to the lack of side vision. Not to mention damaging my pride! =p


  I am doing well now and have a better grip on the vision loss. I still drive during the day.  I have a great IT job now that is less physically demanding on my body. I knit and make jewelry, it's great physical therapy for me. I think being stubborn and having a sense of humor has been my biggest defense from the dark side of MS.

I am so glad that I found you guys and thanks for posting!

BB (aka Evil Knievel of the stairs and knives thrower)

[Jillsm]

I like you have these vibrations.   I have been to countless doc,tubes in the ears, ct scan, mris, and they look at me puzzled.   No one can feel the vibrations.  It feels like my body is idling or the sensation at the end of a stretch- that quiver -   The near thinks could be migraines without the pain.  The complicate thing I have been diagnosed with fibromyalgia as well...it all started with an inner ear infection-  any ideas? It wakes me up from a asleep and they sY it is anxiety.   Yeh from the vibrating....what the heck!    Any dx that are different then mine and when so these thongs go away.   Was thinking perimenopAuse, but the guys have me questioning that....is is early sign a of ms?

[Madrisima]

I am a fellow Virbonaut!  I get the vibrations all over my body. They are also accompanied by twitching muscles. It's been months. All tests came back normal.You can see the muscles twitch in my eye, leg, thigh. Then when I wake up at times startled, my whole body vibrates. Does anyone out there have a diagnosis? my husband confessed to feeling his phone vibrate in his pocket. When he looked down he realized his cell was on the table. Misery loves company huh? I am now on ativan to sleep at night. I am getting used to the vibrations and trying to see them as benign instead of scary.any suggestions?

[craigo25]

I get intense vibrations localized in my head that lasts for 2-5 seconds.  When they occur I don't loose my vision, but it stops me in my tracks if I'm walking.  Thank goodness they don't occur that often (once per quarter).  I would compare it to grabing a live electrical cord and getting shocked, if you've ever had that happen to you. This went on for about 4 years and I casually mentioned it to my doctor at an annual physical.  After an interesting look, he referred me to a neurologist who ordered an MRI and MRA of the brain.  The scan didn't reveal anything.  The final diagnosis: Migrane related. I get migranes maybe 3 or 4 times a year, but never at the same time as the vibrations in my head, so i never thought to link them.  At any rate, I still get the vibration sensations quarterly and the migranes about the same, but at least I know it's not anything really serious. Good Luck!