What are your symptoms??

[Rubyrocket]

I'm new to MS and was wondering how broad the range is in other peoples symptoms. My fear for myself is that now I know I have MS......every last twitch, pain, or odd feeling will be blamed on MS.  Like right now I'm very fatigued even after a good night’s sleep and my hands are hurting, they feel puffy and my joints hurt. So, in my head I'm wondering.....MS or am I simply coming down with a bug?

Does anyone else have a hard time deciphering common illness from MS symptoms?
What are your symptoms?

Thanks
RR

[Sparkysarah]

I was dx'd in March with RRMS and very much still feeel like I have my "L" Plates on in terms of undersstanding what is going on in my body.

I know that my fatigue and daily tingling is MS...but as soon as I get anything else wrong with me I am wondering is this connected. I think it is a definite learning curve and that you will get to know what is happening. We are all affected in different ways so what one person feels may be very different to what someone else feels.

Anyhow good luck next week and let us know how you get on

Love Sarah  :) xxxxx

[Rubyrocket]

Hi Shell,

I'm not on any DMD. I'm not officially dx'ed, I go in for an LP tomorrow, so I will know for sure by this time next week. My neuro has said that because of the characteristics of my sx and the nature of my lesions   ( all in my spine) he has pretty confident that MS will be my dx. In the health pages the section on spinal lesions reads like a page out of my journal, but we'll see.

I had a virus two years ago that caused me to have inflammation in my joints, mostly in my hands, that lasted for 1 1/2 years. Maybe with all of this other stuff going on it's just been triggered again; this feels just like it did then.
I'm soooo glad that joint pain is not on the list of sx for ms!

Thank you so much :)

RR

[sllowe]

Hi there,

Welcome. I had a hard time too because I compared everything to my 1st attack. So, if problems didn't rise to the level of disfunction I experienced during those months, I thought, maybe this isn't MS, or is it, etc. Over time I learned because some problems I would have for months at a clip would slowly resolve and then I'd get another one, etc. Time definitely teaches you.

Are you on a DMD? Asking because joint pain is not typically a MS symptom, but some of the meds can cause aches. Fatigue definitely is, and if you are waking up only to feel like you never slept (again meds can do this too early on) then it's safe to say that IS your MS.

Hope this helps,
shell

[HVAC]

When I was newly diagnosed it was hard to figure what was MS and what was even worth bringing up to my Doctors. In my case the Neurologists do nothing for managing my symptoms. I have Primary Progressive MS and they tell me they are basically monitoring my progression. If I get to the point I can't walk they will step in.

This is fine with me because I have a great team in my PCP and my Psychiatrist who manage my nerve pain and monitor my double vision, sleep issues, and cognitive abilities.

I have had MS since childhood according to the MS Specialists and did not realize my symptoms were abnormal. I have always had double vision, tremors, cognitive issues, and left side weakness.

I did not know the pain running down my arms to my hands was MS. I recently went to my PCP and got on Lyrica for that and it is so much better.

I have lots of zings and twitches and other nerve stuff related to MS but there is nothing to be done about it.

I did not realize to recently my inability to feel my bladder was MS. Or that my bowel issues were MS. I hate Specialists so I do not bring these things up my Doctors. I can live with this stuff.

I have dizziness which may or may not be MS.

After a while you get to know what is MS and what is not.

Alex