weird question - about balance

[JENNIEO]

Hi - I don't think I have vertigo but I do have a strange balance-related thing happening.  It seems to me that I am ultra-sensitive to being mis-aligned.  I don't know what to call it.  It causes problems when I am a passenger in a car because I can feel when we are not in the center of a lane, or parked in the middle of a space, or swerving just ever-so-slightly while driving - and to me it feels like I'm going to tip over!  It make me a horrible passenger as you might expect, and trust me I am almost always biting my tongue about it - because I feel it 90% of the time, and would not be able to complain that much and have people be willing to drive me!  Do any of you have these 'spatial' issues?  I feel like I have a level in my head and when things are not lined up just right then all hell breaks lose, ya know?

I hope all of you along the Gulf Coast are safe today - and the rest of you that might be in the residual storm's path - be well!

-Jennie

[JENNIEO]

No - I'm still in Florida - I don't get home until Tuesday and the terip is stressful and exhausting.  Love seeing the grandbaby but travelling with my 24 year old son leaves much to be desired.  I feel rotten saying so, but he really just saps the energy from me and I don't know how much more I can take.  Even thinking like that drags me into a fit of tears and guilt but I just can't see how much more lack of respect I can take from someone who I have been living to help thru an awful (child custody) thing for the past year. Maybe I'm just tired, but I feel like just walking away from it all.
-:o(

[amas]

You're back from your trip?  

I have this terrible feeling too.  For so long I would complain to my husband about his driving and it finally hit me that it was a problem I was having.  My friend who has Fibromylagia says the same thing happens to her.  Now I just drive most of the time so I don't have to deal with it.  My balance/vertigo/ dizzy issues have come in many forms that I'm finally realizing what they are.  My most annoying one these days is that when I'm walking and I feel that I'm swaying to the right and tell myself to correct the sway my top part of my body starts to twist to the right.  It's the weirdest feeling.  It's ever so slight, I don't think someone else would notice it but I feel it. Sometimes I feel as though my top and bottom halfs are going in opposite directions.

I went to my first PT appt. for my balance issue this last week, when I mentioned the twisting part, she just looked at me like she had no answer.  Anamaria

[JENNIEO]

I've had this for over a year - I thought I was just being a real b$%ch to my husband because whenever he drives I am absolutely miserable.  Sure that he is crossing the lines and it really makes me feel unsafe. I'm jumping and leaning trying to 'steer'the car out of the 'bad' lane that I feel like it is in.  I still think that he's doing it - and that I'm just super sensitive to it - like I can tell before him that he's not quite straight.  Parking lots are a challenge because I always feel like he's parked at an angle instead of parallel to the other cars - left turns from traffic lights (the kind where two or more lanes are turning together - are horrifying for me - I feel like we are swerving out into the other lanes for sure!!!  It just dawned on me this morning that I bet this is MS related. Some other form of vertigo or balance disfunction.  Guess I better just zip my lip and let hubby drive! actually, the best way around it is for me to drive - it never  happens when I drive - I feel the safest then!

Peace-
Jennie

[Wobbly]

ob boy, I get that as well, I'm not yet Dx...but that started up this summer..I've had different sym for three years...this is not a fun one at all...it's not there all the time anymore...but comes back once in awhile...

let your Dr know...I know mine just looked at me like I'm a nut though..??  not sure what he thought...he didn't say much about it..

let me know if you get any feedback...

take care
andi
LL

[sllowe]

Hey there,

You described being mis-aligned.  I can relate to that bigtime, though I'm so much better now. I never got the dizzy, spinning stuff.  Just had to re-correct my walking, like I could not walk straight.  Was terrible, and mis aligned is a great word to describe it for me.

I didn't notice it as much when sitting, but oh, when I was driving, was horrible.  Having to do more than sit I suppose, but think it  was a head turning, eyes having to work, and body having to follow through issue.  I feel for you.  It's very limiting.

How long have you had it now? Any chance of having the Doc see you while this is happening?

Jot it down!
Shell