What type of MS do you have (or for Limbolanders which do you think you have)

Question

Hi, MSers and Limbolanders,

Reading LATW's distressing news regarding her new progressive MS diagnosis, I began to wonder how many others here have progressive MS and how many have relapsing/remitting and invite you to participate in a survey.  

This question is for both, those diagnosed with MS and for Limbolanders (based on your age and symptoms what type of MS do you THINK you have?).

Based on my symptoms, I feel I have Progressive Relapsing.

WAF

Siddy1 · Answer

SPMS   Secondary progressive

which has advanced quite rapidly (I think) since my first symptoms and dx in 2005 at 65.

saveone · Answer

Limbolander here ;o)  As I look back there were symptoms with long periods of nothing.  Since the 2007 attack nothing has been the same.  I would guess SPMS

doni54 · Answer

Guess I'm half in half out of limboland with only a clinical dx of MS from my PCP, but with my progression and never without numerous symptoms I have no doubts that it is PPMS.

Louby70 · Answer

I am in Limboland, at a guess if I have MS, I would say I have RRMS, as can go a few weeks from a really bad episode till the nx one comes along, I do suffer with muscle spasms everyday though.

Sarahsmom46 · Answer

Geez, I didn't even answer the question above.  I have been diagnosed with RRMS.

unglued35 · Answer

I'm still investigating, in limbo, but I would say RRMS. My most recent chronology has been (1) 2 weeks postpartum to 8 weeks post partum - REALLY bad.  (2) Then nothing for 2 months then (3) this current "spell" which has lasted 8+ weeks...

doublevision1 · Answer

RRMS dx'ed 2007 at age 39

Deb61 · Answer

I am diagnosed with RRMS. At first I thought I had a more progressive form of MS. I couldn't tell if the disease ever let up; however, after approximately a year on Copaxone, the MS seemed to finally quieten down, so I'm pretty sure that the RRMS diagnosis is correct.

Quixotic1 · Answer

I am diagnosed with RRMS, but with the: 

insidiously advancing right hemiparesis, 
the preponderance of spinal lesions, 
the late onset (age 52),
the paucity of O-Bands (1), 
the positive OCT, and 
the majority of my symptoms being motor instead of sensory, 

I think way deep down that I have PRMS.  My neuro says I should have far more lesions to be progressive, so I am somewhat heartened, but deep, deep down I think it is progressive.

Quix

meg321 · Answer

RRMS

goofysmom1 · Answer

I am going to guess and say RRMS - only because I do have periods of time where my symptoms are better (although some never completely go away, I guess that is my "baseline"?)...

chrisy

Sarahsmom46 · Answer

I am very distressed by LATW news as well because that could me someday soon getting the same news.  When your doctor asks you all those questions about how much you have recovered after each relapse, how the drugs are helping or not helping, and then the dreaded news that there are new lesions, well, you know what the doctor may be thinking.  I think we probably know well before the doctor tells us what direction our MS is going.

shoshin · Answer

I gave up on this question. I am possibly somewhere in the limbo between RRMS and SPMS, although I have had only one (very mild) thing that was clearly a relapse and remission and a second thing that remitted partially. I am definitely experiencing progression over time, albeit relatively slow progression.