What's the one thing you struggle with......most?

[supermum_ms]

Hey guys and dolls,

I know a lot of us have way toooooooooo much on our plates, but we take it all and still laugh and smile but i know you have that one thing, little or big that just seems that much harder than everything else to deal with. I can handle most anything but the one thing that drives me mental lol and it's not by a long shot the most problematic, it's just so much harder for some reason to ignore.

For me, my something is being a bobble head, my blasted head never stops moving no, no, no repeated none stop. I'm not sure if its harder because its a tremor i don't deal with it all the time, it's not one of my everyday's, so maybe i don't get time to get use to it before it stops again but when it comes back, in the beginning of those first days, golly it really drives me nutts!  

What is yours?

Cheers.............JJ

[doublevision1]

Worst for me, currently: relentless neuropathic pain, followed closely by relentless fatigue.

Worst for me over the entire course of my disease, so far: 24/7 severe double vision, followed closely by a short but excruciating bout of ON.  Both symptoms currently in remission, thank god.

[terrics]

I see this is a very informative site and I appreciate that. I need the info so that I can keep my thinking straight.  Being diagnosed with MS and then being undiagnosed has left me hanging. Support is good.  Even though some symptoms (MS or something else) are getting worse it is nice to know that there are people here that understand how the symptoms mess with daily life.

[immisceo]

Okay, I'm going to switch it up a little. What I struggle with most?

Head games.

The physical (which for me has been mild) is not day to day. The mental? Heck yeah. Getting lost walking on a road I've been down 1000 times? Scary. Will I ever know if it's from MS? Possibly not. Can I predict that today's the day I get lost and manage to synchronise that with forgetting my mobile? Nope. And that's scary.

Yes, that's happened. No, it wan't pretty. I freaked.

I freaked because in the litany of things I was told to look out for, I wasn't told I'd need to leave mental breadcrumbs everywhere. I was looking out for the mobility issues and fatigue that haven't yet come.

I've begun to adapt. Phone apps that make lists or pre-store maps or hold photos I can point to are what I depend on for psychological back-up when I get out and about. When I remember to bring it...

And in your early thirties it's an identity loss as well. I plan for my day like I deal with senility, because essentially I do.

[supermum_ms]

Okay confused, maybe i'm slow on the uptake but why would tremors cause someone to be self conscious and or emotional stress?  I believe we are each perfect (for want of a better word) no matter what the outside packaging looks like.  Its probably not possible for me to think less of my self because of the tremors, lol remember I walk like a string puppet, slurr/stutter when i talk, shake non stop and if i'm not self conscious yet, it's probably not ever going to happen.

DH and i definitely think i struggle to gain weight because my metabolism is switched onto over drive, burning calories faster than normal and it's probably in part because i never stop moving, though i would of thought it was more likely to burn up physical energy, than emotional reserves.

oh I think i might of done a poorly worded post, are you thinking im meaning an emotional feeling and not the physical feeling of tremor? If so i meant the later sorry! I find the feeling hard to describe, having an electrical current continually running through you, whilst standing on one of those vibrating machines is kinda close but swallowing a mobile that's switched to vibrate could also work, it feels horrible and i just haven't gotten use to it yet.

cheers...........JJ

[aspen2]

Cognition, absolutely.

If I still had TN, then that would bump to number 1.

I have a sense of humour (at this point) re: physical foibles (loss of balance, right side weakness).

I have no sense of humour whatsoever when I'm lost in conversations, can't remember what someone just said or can't follow two-step directions (because i forget the first step).

Hopefully I'll develop a sense of humour there too, 'cause it's much easier to cope.

[PastorDan]

JJ, dear, tremors of any kind make us self conscious.  That, in turn, produces emotional stress.  The constant movements burn caloric energy, and the stress of it wears out our emotional reserves.  It's no wonder we're so tired!