What's the one thing you struggle with......most?

[supermum_ms]

Hey guys and dolls,

I know a lot of us have way toooooooooo much on our plates, but we take it all and still laugh and smile but i know you have that one thing, little or big that just seems that much harder than everything else to deal with. I can handle most anything but the one thing that drives me mental lol and it's not by a long shot the most problematic, it's just so much harder for some reason to ignore.

For me, my something is being a bobble head, my blasted head never stops moving no, no, no repeated none stop. I'm not sure if its harder because its a tremor i don't deal with it all the time, it's not one of my everyday's, so maybe i don't get time to get use to it before it stops again but when it comes back, in the beginning of those first days, golly it really drives me nutts!  

What is yours?

Cheers.............JJ

[PastorDan]

What's a weekend?   :(

[SarahL2491]

Fatigue is number one for me right now!  As Corrie says, you feel like you have to rest after every activity and I feel are leaning into a wall and just can't move anymore when it hits.
.

[Corriel]

Seems to be a common thing with fatigue and I am no exception.

Whether it is the knock you on your butt really fast kind or the kind where just carrying a small piece of furniture to your car makes you lie down for 20 minutes because you can no longer seem to function. Through in some insomnia from DMD meds and even the weekends don't have enough in them to recuperate.

Corrie

[PastorDan]

Yeah, just pulled myself off the floor to read that thought, with which I can well eelate.relate

[Mike_Shuswap]

Like Dennis fatigue is the most  debilitating symptom for me, except when the TN pain hits, then it moves to number one.

Mike

[Sailorsong]

For me it is the sudden onset bone crushing fatigue.

My normal MS fatigue I can deal with. OK I did too much today so for the next couple of days I have to rest kind. Or I didn't sleep good last night so take it easy today kind.

But this kind of fatigue hits you like someone flipped a switch. One second you're OK and the next it is less than zero energy and you have to crawl to bed for some sleep.

I've pushed myself and done too much many times to the point it will take a week or two for me to recover, but this fatigue is 100 times worse. In all of the years I have had this going on I have never been able to figure out what triggers it, if anything does. But it definitely make it a lot harder to plan anything since I never know when it will hit me.

Luckily this fatigue doesn't hit me very often. Some times it can be many months between episodes while other times it can happen a few times in one month. It is that unpredictable.

Dennis