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147426 tn?1317265632

Who is Diagnosed?

Last winter our wonderful Heather asked this same question and we had a fabulous response.  But, that post got very long and difficult to run through.  We have over a hundred very active members now and I would like to see the results again.  I should have all of this neatly in a notebook or a database somewhere, but, ya know, somehow my organizational skills have gone the way of the dodo bird.

Please, all of you who read this who have ever posted or might someday post:

Please give us

Your date of diagnosis:
Type of MS:
The med, if any you are on:
Time for first symptoms to diagnosis:
How many neuros before diagnosis:

We will all appreciate having the info so we don't have to constantly ask and feel like dufusses.

Thanks, and lets try to keep it bumped up.

Den Mother
236 Responses
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Avatar universal
YOUR DATE OF DIAGNOSED:1998
TYPE OF MS:RRMS NOW SPMS WITH PROGRESSION
THE MED IF ANY: REBIF
TIME FROM FIRST SYMPTOMS TO DIAGNOSIS:3 WEEKS
HOW MANY NEURO'S BEFORE DIAGNOSIS:1 WHEN ORIGINAL DIAGNOSED,DISREGARDED DIAGNOSIS AFTER TRAMATIC BACK SURGERY.
NO SYMPTOMS,OR THEY WERE THERE,BUT IGNORED,BUSY MOTHER OF 4.
SYMPTOMS REAPPEARED LATE 2004,DIAGNOSED AGAIN DEC.2006 AFTER 4 NEURO'S

T-LYNN
Helpful - 0
695915 tn?1228665952
Your date of diagnosis; 2008
Type of MS; Neuros words "Mild". MS Nurse, GP and I beleive PPMS
The med, if any you are on: (Do not qualify under health system) None
Time for first symptoms to diagnosis: 2 years
How many neuros before diagnosis: 4
Helpful - 0
Avatar universal
Your date of diagnosis: 1994
Type of MS: Mild originally, now RRMS (I sometimes wonder if it is SPMS)
The med, if any you are on: Betaferon
Time for first symptoms to diagnosis: 5 years - time from seeing first neuro to diagnosis, couple of weeks
How many neuros before diagnosis: One

The neuro I saw earlier this year wanted to do a LP to confirm the diagnosis before prescribing DMDs (In the UK a LP isn't necessary for a dx so my original diagnosis was based on years of symptoms and an MRI)
Helpful - 0
198419 tn?1360242356
Your date of diagnosis:  Julyish, 2007
Type of MS: RRMS
The med, if any you are on: Rebif
Time for first symptoms to diagnosis: 4 months
How many neuros before diagnosis: 1

-Shell

Helpful - 0
Avatar universal
Your date of (wimpy) diagnosis: Jan. '08
Type of MS: RRMS
Med: Avonex
Time from first symptoms to diagnosis: 8 years
# neuros to diagnosis: 6

ess
Helpful - 0
Avatar universal
Date of Diagnosis: Oct 2008
Type of MS: Dr won't say, thinks it's to early to tell
Medication: Neurontin, Baclofen and soon, Rebif ( he says he puts everyone on something, no matter what type of MS it is)
Time from first symptom to diagnosis: 11/2 yrs.
Nuber of Neuros to diagnosis: 2
Helpful - 0
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