anyone else have myoclonus ?

[crystaly]

Just wondering has any one else got or had myoclonus ? Ive never spoken to anyone else that has ? thanks chris

[funnierthanme63]

I have myoclonic jerks in different parts of my body.  I tell my husband or friends, "I have "the jerks" today.  If I try to write a note, I can end up with  a terrible scratch mark across the paper when my hand jerks.  Mine isn't controlled because of all the other seizure medications I take for complex partial epilepsy, so we just joke about it.   You would think the epilepsy meds would control the myoclonus.

[cainer]

wow-- i didnt know i was so dumb!!-  i was reading this and well yes i have it, i jerk  bad.
i thought a ms thing  -guess it is. many times i thought i threw something out of place- well thanks 4 this post!    i learned something!!    tick

[MCBCON]

There was a plenty said above.  I will just add that I have many issues with myoclonic spasms.  Mirapex seems to solve most of the pain issues.  Extreme myoclonic jerks where the arms or legs sweep several feet seem better solved by reducing stress.

[auntlolo]

I have spinal myoclonus and palatal myoclonus. I have had the spinal m. for 3 years and that palatal m. for 6/7 years. I have tried everything and been on different meds. I am so frustrated and feel so alone in this condition. I really want to connect with others who are also going through this. The palatal myoclonus causes constant ear popping and is horrible. It has gotten MUCH better over the years. Ironically when the spinal myoclonus is bad the palatal myoclonus is do-able and vica versa. At one point both were horrible. Currently my spinal myoclonus is ABSOLUTELY horrible. I am in constant pain. The spasms radiant out from my spine and create involuntary jerking and spasming movements in my entire neck, rt shoulder, right arm, my entire torso, my stomach and up and down my spine. It is EXTREMELY painful. I am finding this condition incredibly draining physically and mentally exhausting and would really appreciate some support. Thanks so much. How do you deal with these constant and blatant spasms and torso/arm/neck/head/shoulder etc movements in public? I am really having a hard time with this condition. My sweet 3 year old nephew saw me do this and was moving his body around to mirror me. I know he meant no harm- none at all- but it broke my heart that I have this damn condition. I am very thankful to find this post and this sight and I will support all of you the best that I can as well.

[2brespected]

My daughter has been having severe jerking in her right leg since Nov. 20th and has not stopped, the neurologist has put her on clonodine and xanaflex as well as tylenol3 for pain. she is now on iron pills as well even tho her count was at 33. The neurologist that we seen in the hospital said this is not myoclonus however the other 4 drs that we have seen all agree and say it is. her right leg only jerks when she is awake whether she be sitting laying down or even walking. I have her in physical therapy twice a week and they are saying that her muscles are staying contracted and that her pelvis is now tilted to the left. It was not this way. This is not the first time she has had this jerking in her right leg, she did this 16 months ago but it only lasted for 9 hours. this time it has been 30 days of non stop jerking when she is awake and is now effecting the way she walks. She is in alot of pain and doesnt want to do anything because of this...please help???

[DeeBeeMee]

I have myoclonic jerks in my upper torso, arms, shoulders, neck.  Sometimes it can get so violent and go on for so long that I'm weeping from fatigue. I get some relief from Clonazepam, which I take on an 'as needed' basis.

My myoclonus is due to MS, but I understand it can be caused by a variety of different things.