anyone else have myoclonus ?

[crystaly]

Just wondering has any one else got or had myoclonus ? Ive never spoken to anyone else that has ? thanks chris

[catherinemary333]

I have had all these symptoms for nearly two years.  

[Sparkysarah]

Like Red I have noticed that this thread started in 2007, but if it has raised its head again it is no bad thing for us newbies.

I think that I have sleep myclonus nand am aware that often just when I am dropping off to sleep that my body jerks in different places and particularly my leg.  All the pieces of the MS puzzle slowly start to fit together...although I think there will always be a few missing as there is still too much to be researched and understood about this horrible condition.
I was going to use a stronger word then as horrible does not convey the right message but last time I did that the higher authorities bleeped them out. Lesson learned.

Sarah

[RedFlame]

I have Myoclonus.  There is a good info sheet on the NIH site.  I began having significant Myclonus 8 months ago that continues to increase.  I will sometimes have many per minute to only 2-3 times per hour.  It initially started in the evenings, now it can start when I first get up.  

The movements have been severe at times.

I think that it is a common symptoms in many neurological diseases such as MS.  

OK, I just realized that this thread is years old.    

Red

[wahoodoggydoo]

My wife has had MS for 18 years. Her myoclonus did not begin until she STARTED on Requip. Go figure, she had a reaction to an RLS med. She had some minor muscle spasms in her legs before, but now she goes into full blown episodes similar to what others describe when the Requip starts wearing off. If she misses just one dosage, she starts having terrible jerking. We want to get her off of Requip, but it's like her body is addicted to it now. Miss one dose and pay the price! We are in the process of getting the situation resolved and we're trying to wean her down off the Requip. We hope to try some of the meds listed in this thread.

[jason723]

am 17 years old and i have action myoclonus,italk to my parents about it but they think that im trying to get attention.i get this weird involuntary muscle movement that starts on my leg and goes uo to my arm and it last for ten seconds or so,i dont really know what to do anymore

[The1True1Archangel1]

My wife has myoclonic jerks at night but they involve all muscle groups, legs, face torso, trunk, arms, etc. She would have one twitch after another continuously as she drifted into sleep.  It used to only present as she was falling asleep but two weeks ago it became more intense and lasted all through the night, making it very difficult if not impossible to even sleep. 5 days ago she had a tonic-clonic seizure. Docs at E.R. did ct scan, bloodwork, x-rays, no cause determined. We are currently awaiting results of eeg. can anyone offer ANY information??