ccsvi blockage in jugular veins maybe cause of ms

[maggs970]

hi all http://www.youtube.com/watch?v=C_RXs5dPh6Ei would like to ask your opinions on this please look up the link i have been doing alot of reading regarding this a doctor in Italy done this procedure on his wife who had ms, she had blockage in her veins in her neck this doctor recons this is the cause of ms , i am going for a scan on my neck at the end of january to see if my jugular veins are blocked they put a small balloon in to fix this im sure you have all seen this before i havent been on the forum for a nwhile trying to forget i have ms and get on with things but with this illness you cant forget for too long as you know, i will let yous know how i get on the first procedure was done in the uk dec 09 in ireland so at least its being done apparently patients numbness goes away gradually once the blood flow is moving properly i am not very good at explaining things but please look it up and see what yous think the doctors name is dr zamboni just look up ccsvi on youtube and listen to it see what you all think its exciting news but also im not getting too excited thanks  

[Lulu54]

Meg, you are too funny!  that poor mitral valve is going to be fixed one way or another!  - Lu

[meg321]

Hey, i wonder if that would work with mitral valve stenosis....hmmmm

[meg321]

It will be interesting to hear about it...a friend of a friend of mine had it done at Stanford with excellent results..

hugs, meg

[maggs970]

hi mand im having the scan done first to see if there is a blockage for my ms will keep you all informed on how it goes thanks

[Mand125]

Hi Maggs

Sorry I wasn't clear if you are getting the scan done because of the MS and the whole Zamboni procedure or if you are having it done coincidentally for other reasons.

Either way I wish you luck with it and will be interested to hear how you get on.

I hope you had a good hogmanay and that you are not snowed in!

Mand

[Lulu54]

And of course we will definitely want to hear from you too as you go through this process.  We are all trying to make sense of this idea and keeping an open mind about the possibilities!

best,
L

[maggs970]

thanks for that link cheers.

[Lulu54]

Hi Maggs,
We have been following this news with a lot of interest and shoshin actually went to Stanford and had the procedure done there.  You might want to read her on going journal about this.

Here are the links to her recent posts......


http://www.medhelp.org/user_journals/show/142508?personal_page_id=40896


http://www.medhelp.org/user_journals/show/145673?personal_page_id=40896