I was on Gilenya for a while, the side effects were too much for me, dr took me off. I am no on Avonex. Going on 6 months (I think) and it is going well for me.
I hope you find something that works for you.
I am right there with you about not updating or posting much anymore, life gets busy and we learn to accept what we had so many questions about before, but I still pop in from time to time.
Take care,
Paula
Call Tysabri, and talk with them they will talk to you even tho you are not a pt yet. They can explain how you rule out how vulnerable you are much better than I can
thank you sarah for your experiencing, and yes my main concern is the fatal brain infection with tysabri and was thinking if i have to change might as well go with the best effective.. before i wrote deaths out of 52,000 ... meant 52 so same as the pill 1out 1000. I am getting my blood done monday and will be picking on the 26th which one... im scared but im pretty sure tysabri is what i am going to go with. had ms from 22 to 26.. also scared that if this dont work than what? you know? there aint nothing else out there so that also scares me
thank you for ur quick reply!
I've been on Tysabri for 14 months and am very happy, the big risk is always there true, but neuro keeps a close eye and Tysabri gives you a caseworker, I can call anytime I need help, reassurance, have a question, they are great.
I had a chance to go with gly... But didn't like the cardiac data. We have people on here who have been on Ty for over 4 yrs