Aa
6 year old with Erythtomelalgia
My 6 year old daughter has just been told she has Erythomelalgia, her problems started 4 years ago and no dr knew what was wrong, she only gets it in her genital area, burning, swelling, severe pain, itchiness and complains of feeling really hot. She was on Tofranil for 6 months which didnt help, then we tried prozac for pain which again didnt help she has just started Gabapentin and im hoping it works, Im in Australia and have never heard of this before and her dr's dont know much about it either. Any help would be greatly appreciated.
Best Answer
COMMUNITY LEADER
I just saw this post further down the page - good luck with getting answers.
Thanks for that, the dr's have said she has a rare form of it which affects the genital area, ill have a look at the site you mentioned aswell, it mainly affects the extremities but in my daughters case its her genital area, her symptoms are exactly the same as it affectiong your extremities.
You are reading content posted in the Multiple Sclerosis Community
Top Neurology Answerers
Australia
ON
Queensland, Australia
Queen Creek, AZ
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease
http://emedicine.medscape.com/article/200071-overview
Personally when dr's dont seem to know much about a condition they have dx'd, I get a little uncomfortable and I can't help coming up with a plethera of questions. The main concern I have with the dx you've been given, is that the area this is specifically affecting her, is only in her genitalia but "Erythromelalgia is a rare disorder that is characterized by burning pain and warmth and redness of the extremities." So i think it would probably be in your very best interest to get a second or even a third opinion, expecially considering there are no specific diagnostic tests to dx's this condition.
Sorry i couldn't be of more help!!
Cheers..........JJ