just wanna cry

[Joliona]

Day #3 of steroids. I was better than this on day 3, the last 2 times. Now I just hurt and more hurt. I know I did too much yesterday. Was supposed to sit on my butt all day, but the guy coming over to cut my weeds bailed on me. My landlord gave me a deadline... if my friend had just said he couldn't do it I could have asked other people for help.

So I went out there and pulled weeds for 3 hours.... and I cried... and it hurt.... and I am still hurting. It is just so hard right now. Hopefully tomorrow's dose of steroids will make a difference. Just want to be able to see and not hurt all the time... everywhere.

[anon07072023]

You sound a lot like me. A lot of times my heart rate will be around 52 or so - bradycardia. And then I'm also tachycardic as well - sometimes up to 148bpm doing absolutely nothing.

When I take Solumedrol (which I have been banned from now), my heart races the entire time - usually about 115bpm while I'm on it.  And I end up losing about 5 lbs in about 5 days. Besides, it never makes me feel any better in the end, anyway. So, why bother taking it....    

[Lulu54]

As you already know, young women have heart disease and problems, too.  I am so glad you were wise and went to the ER.  I'm kind of surprised they did the 5th IVSM infusion for you, but they are the experts and know more than I do.

I hope the IVSM helped and the a-fib stops for you and you feel better, and soon!
Laura

[PastorDan]

Get well soon.

[Joliona]

Just letting you all in on the ongoing saga
It appears that my heart did not like dose #4 for of the Solumedrol. I ended up being taken by ambulance to the ER at 4am for Afib. My heart rate is normally very low. I have a pacemaker to keep it above 60bpm. So, new symptom # 5... ish.... is crazy heartbeats and they seem to have little or nothing to do with the MS relapse.
Can'rt spell or see well..... so tired.... but finished course #5 in the ER ad will have to be seen by both cardio and neuro this week. BTW... I'm only 49.  

[Joliona]

nurse always says, expect it to get worse before it is better. Just didn't expect the extra circumstances

[Joliona]

Thanks, needed that

[hreynolds29]

I'm sorry you are in pain. Just got dx'ed on Aug 14th, I just did my first round of the 5 day IV infusion, finished Monday and my symptoms got WORSE! Now I have tingling, numbness, a little bit of a burning sensation in my left arm and it feels heavy now :(. When I went to get diagnosed just my legs and feet were numb, now I have felt drugged up all week since finishing it.

I hope you get to feeling better and your pain goes away soon.

[HVAC]

I am sorry you are hurting. I tell myself "Pain is time limited" meaning it will end over time. This helps me to stand it. I feel for you.

Alex

[PastorDan]

Well, I don't know who to call in your area, but I will pray that you find someone who can (and will!) help with this problem.