pain..from ??

[meg321]

I have been offline for awhile, I have been so sick and I am not sure what it is from.  I have been having pain, its my head and my neck is the worse.   And feeling as if have the flu, sort of, its the only way I can describe it.  My drs. have me going every which way..even my heart has has come into play.

I have am having another echocardiogram this week.  Then I am going to the UCSF pain clinic tomorrow, then I am going to a new pulmonoligist next thursday.  Thats all I can remember right now...I hope I have written everything down.  My mind is much worse now, could be all the pain, ya think?

I am so confused wondering if any part of this could be MS...I think part of the pain is from the MS.  But just feeling so sick and in bed for so long and having no idea what it is from or if it will ever get better.

Does this sound familiar to anyone?

I hope I didn't forget anything....my brother is dying at the moment, they didn't think he would make it thru the night but he is hanging in but is in a coma and peaceful, we are just waiting right now.  Its so sad....anyway, I forgot all about him today and I called to check on him.  Noone forgets their only brother is dying, I would never tell my family that I forgot him. He is with my niece and her family in Missouri.

Hugs, meg

[HVAC]

Sorry about your brother. I have forgotten my brother's birthday which is my birthday as well.

I tend to get into a catch 22 when spending lots of time in bed. It makes my MS worse. I feel like I have the flu because my muscles feel that way from the MS. I have to force some physical activity if I possible can.

Now it is rough coming out of 6 months of Cancer Treatment. I do not have a lot of strength or endurance but I have to do a little more each day. A week ago getting out of bed for two hours sent me to bed exhausted. Today I get up clean a little for Thanksgiving then rest a little.

Water is very important to me at this time. I get really dehydrated. Especially with some of the medications I am on.

I get the most help from my pain clinic. I did not like Duke's Pain Clinic because it was like an assembly line and impersonal. My new pain clinic is run by a doctor who thinks outside the box and tries new things. He spent 2 hours with me at the first appointment. He like complicated cases.

Sounds like you have a lot going on. Hang in there. I am thinking about you.

Alex

[SarahL2491]

golly I hope I worded all that right, cog fog is such a beast when it sits on your shoulder and plays with your typing fingers!

[SarahL2491]

Golly Meg, no stress in your life, huh!  Sorry you are so sick with everything  that is going on in your life.  Well, if you have any fever, probably not MS related (grin) but hope they get you some answers and hoping that your brother stays pain free........we are thinking of you.