Visit with Opthamologist

[slightlybroken]

I went to an opthamologist this week. I was worried about my wondering eye. My left eye would be off center while my right eye would be normal. He was very nice. I brought my reports from last year and what they saw. My pressures was good and of course, would you know it, I had no symptoms that day. My vision, my eye was perfect in every way. It's like my body knows that I'm going to the doctor and the symptoms play hide and go seek.

We went over my history and I told him what I've been tested for. I told him I feel like I can't see. My vision was the same as last year (20/25 right eye, 20/30 left eye), so there really shouldn't be a problem. So why am I having a problem seeing just a few feet away to watch TV or straining to see the clock on the kitchen wall?

He asked me about pain in my eye...I knew why he was asking. I told him that I do get pain in the left eye. It feels like an ache or a stabbing pain. My eye will feel like it will blow out of the socket sometimes but it is short lived so I never believed it was O.N.  It will last for a hours to a day and than go away. He thought I could have had ON, maybe a mild case further back on the optical nerve but I'm not sure.

He thinks my problems with my eyes are in the "meater" part of the brain. He asked if I ever had an MRI...I giggled and said yes. He asked if they ever found anything...I said they had found nonspecific lesions. He was interested. Very interested. I'm not sure why since most doctors blow those things off as nothing.

He said I know you've had this before but we're going to do it again. He ordered more blood test...Sed rate, AIC, thyroid. They took my blood pressure..it was normal and he ordered an MRI of the brain and brain stem w/o contrast. And I thought I was going just to an eye doctor...LOL

I guess you could say I'm not holding my breath on this. I've been let down before...usually on the second visit, so I guess we'll see after the results are in. If there is no changes I'm not sure what he will think then or what I will think. All I can say is here we go again. Any ideas of why I feel I can't see with good vision? Anybody else have this problem?

[Fluffysmom]

Wow, that sounds like some ophthalmologist!  My first one told me I most likely had a migraine, that my vision was fine, that he didn't see any reason for my blurred vision, and took off before looking at the MRI that he said he would view.  I just got a reminder card for a follow-up with him; had to giggle!  I've already found an excellent neuro-ophthalmologist that is much better at listening and discussing things, ordering tons of tests, etc.

He didn't find anything, except for noting the pontine brain lesion.  All my tests are nomal.  

I saw a vestibular physical therapist who noted nystagmus, said that my progressive lens in my glasses aren't helping my blurred vision any, and said that the blurring could be coming from what was causing my dizziness; that my eyes are working too hard, in the short version.

I saw an oto-neurologist, who didn't see the nystagmus, but is sending me for a whole bunch more tests.

I e-mailed the neuro-ophthalmologist, telling him about the nystagmus, and he wants me to make an appointment, as nystagmus is neurological, a new symptom, and he thinks I need to be seen.

I think sometimes it takes seeing a lot of doctors before you find the one that says, "aha!", or at least sees enough to take you in the right direction to find answers.  I have to believe that is true.

I want you to see well, be well, and be happy, too. Not too much to ask for, is it?

Hugs,

Kathy

[tia77]

Yes sound exactly like me.  I started with problems about a month before my eye problem.  Sore joints, horrible muscle pain and numbness in my hands and feet.  After the testing I did have a low vit D, possitive ANA and a homo? 1:640.  The rhemy did not feel it was lupus but said it was fibromyalgia after pushing on some tender spots on my body that I didn't know I had.  A week later I awoke with a sore eye and a blue flashing light out of the corner.  Went to eye doctor.  Everything looked good but he ordered a mri of the brain to look for optic nerve damage.  I also have non specific lessions on the brain.  He sent me to a neurologist that ordered mri of back and neck.  All clear.  New rhemy ordered more blood tests and they want a lumbar puncture.  Not sure if I want to go that route.  Went to a retina specialist and everything looks good.  My vision is "off"  can't really say what is going on.  I just had my rx for glasses in January and now that is off.  Not by much 20/25.  I have not been able to read any book.  That is what I used to do for relaxation.  I think I might have fuzzy vision when I look up and down but not all the time.  I defidently have more floaters than normal.  Some days my eye does not hurt.  Other days I feel like someone is stabbing me or I get a headach around that eye.  I am really afraid of the vision thing.  I am at a stand still with everything till the new bloodwork comes in.  The doctor said it's defidently not fibro because of the brain mri.  I don't know what to think anymore.  I just want the pain to go away and my vision to return to normal.  Keep me posted on your new results.