Western Blot Lyme IGG P41 Present. Ongoing symptoms for months.

[idiocracy]

I have posted my symptoms in other forums and in the neurology forum.  I have now been tested Western Blot Lyme and IGG P41 was present.  Could this all be due to Lyme or some other bacteria?

Hi, I am a 46 year old male. For the last 8 months I have had some strange health issues. I was completely healthy until then. The first symptoms were a general feeling of unwell, change in voice, brain fog, itchy skin, nausea, headaches, rattling/buzzing feeling in my chest and face, etc.

I then started to get weakness in my legs and pain in my thighs and legs. I then experienced a burning pain in my upper back from shoulder to shoulder.

I still have many of these symptoms today, but now I also have a tremor in my upper body and twitching in my calves. If I go for a jog or try to workout the calf twitching gets worse about an hour after the workout and then I experience pain in my upper legs. Somewhat of a deep muscle pain.

I also experience a pain in my anal area. This is most pronounced when I lay on my back in bed. It keeps me from falling asleep.

I also suffer from anxiety and insomnia. I can usually fall asleep, but I wake up around 4 or 5 in the morning and I am unable to fall back to sleep.

I have had all types of blood tests and most everything is normal. I am seeing a naturopath that has me on multi-vitamins, probiotics, calcium powder, magnesium powder, vitamin D liquid, fish oil, etc.

I have had a brain MRI that did show lesions in the periventrical and subcortical region, numerous for my age. These are very small lesions. There are no large pronounced lesions. My spinal tap was normal. EMG normal. Spine X-ray normal.

The reason I come to this forum, not only because of my symptoms, but I saw another neuro for a second opinion in CA. She ran a Lyme Western Blot. The only thing that showed present was IGG P41 ab was present or abnormal.

My research on the internet says that most that are familiar with lymes would say this is proof I have lymes. Should I move forward with the Ingenix test? I have not spoken to my neuro about this, she has been out of town for the holidays.

I live in Nevada, but I was in Montana hiking etc a several months before my health issues started. I don't remember any bites, but I have had some weird red bumps on my arms, back, buttocks and legs of late.

[Jjewelz1987]

Here is a direct link to the Lyme disease section on here


http://www.medhelp.org/forums/Lyme-Disease/show/148

[BPmiller]

Hi to the male who lives in Nevada who posted about the Lyme disease. I also live in Nevada. I am a 50 yr old female who has been experiencing almost the same symptoms. I would like to find out what Dr you see in Southern Nevada. Hopefully you respond. Thank you. BP

[Jjewelz1987]

Hi yes definitely look into Lyme disease.  Just to let you know, a naturopathic doctor might not be the best doctors to treat your Lyme disease.  Though naturopathic doctors are very knowledgable, they aren't all completely educated about Lyme disease treatment.  The best doctors to see for Lyme disease are LLMDs (Lyme Literate Medical Doctors). Look into them. Also, Igenex is very good, however many Lyme doctors will treat you based on your symptoms alone and don't need any Igenex testing as it can be very pricey.

The Lyme disease section on here should be under Infectious Disease section

[idiocracy]

Hi, I spoke to my Naturopath about Lyme's disease and she said she knew of a few LLMD she could refer me to if it comes to that.  I have also communicated with some others in another Lyme forum and one person was kind enough to give me some names of LLMD's in Southern CA.
I also reposted my original Lyme post in the Lyme Forum.  Hopefully someone will chime in.  I appreciate our help.

[Jjewelz1987]

Hi there. Firstly I would like to say that you should definately post this question in the Lyme Disease section here on MedHelp.  That section has many knowledgable people who can help you and know much more about Lyme disease than the people here  in the Neurology section do.  I have had Lyme disease and I was exhibiting very similar symptoms as you. The testing for Lyme disease is very unreliable. It only picks up on 50% of the cases of Lyme disease.  The fact that any band at all cane back positive is EXTREMELY indicative that you are suffering from Lyme disease.  Sadly,  most doctors simply are not knowledgable about Lyme disease and it's complexity and how unreliable the testing is, so most people who have Lyme disease ends up suffering from many symptoms with no answers or diagnosis and good from doctor to doctor seeking help. Trust me I understand your frustration.  Please post in the Lyme disease section.  They will definitely be able to help you! Hang in there!

[idiocracy]

Hi, I appreciate your response.  I had my blood drawn this past week and I am moving forward with the Ingenix IGG and IGM Western Blot Lyme Test.  I am currently seeing a Naturopath and she agreed his is a good idea.  I was told this is the gold standard for Lyme's test.  If this comes back negative then I will possibly accept a diagnosis of MS from my neurologist.  

I looked for a Lyme's forum in Medhelp, but I did not find one.  I will look again based on your recommendation.  Thank you.