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Beyond desperate!!!

I am 40 yrs old. Five years ago, I was getting daily headaches, after time, over the counter meds didn't work. I saw my first neurologist, found out I had a "spot" on the brain. Was told it was normal. Symptoms, memory loss, headaches, fatigue. Two years later and 12 different types of medications, I went to another neurologist. A dozen or so tests now showed multiple brain lesions, the headaches were very bad and daily, and the memory loss is getting worse. Blood tests, spinal taps, MRI's, etc. My thyroid goes up and down, now my blood is showing levels of high amonia, and the headaches are becoming unbearable. I sleep fine, no snoring, and about 9 hrs a night. Cannot exercise much anymore, head hurts too much. Vision has not worsened, but memory is getting bad. Now am getting tested for "Whipples".  I have never had a weight problem,now cannot get it off. Went to a very healthy diet, did not help the headaches. Cannot take it anymore, need answers, any out there?????????
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Avatar universal
I replied to one of your other posts, but Dr. Dev Abraham from the University of Utah performs PEI on hot nodules.  It took me SO LONG to find him.  He was incredible.  More people need to know this is an option in the US and I am trying to post everywhere I can.  Hope this helps!  Good luck. :)
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Avatar universal
I live in NY, I need to find a doctor/surgeon who performs  percutaneous ethanol injection procedure for the thyroid.  I know this procedure has been around for over 20 years, and that it is widely used outside the US.  It is also very successful!  Other than getting the generic emails from the Mayo Clinic to have your own doctor sit on the phone just to see if they do this procedure, it's harder than finding a needle in a haystack.  I have emailed hospitals all over the US, wrote to Dr. Oz (and other TV doctors). But no one answers.  This is amazing that no one knows.  Maybe the average joe would have more info.    Anything?    Please respond, other than good luck.  I need genuine answers, please!!!!!!
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Avatar universal
good luck!
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