I know the feeling; if they can't figure you out in 30 minutes or less you have to be "nuts" or psychosomatic. Alot of physicians are giving out anti-depressants and anti-anxiety tablets like they are candy. It is a shame. Yes, your symptoms can be r/t to these abnormal labs; indeed.
Get a script for iron supplements if your can. With an iron level that low you probably need injections or an infusion to bump it up. Probably need injections to bump your b12 up too.
Not so sure if the chromium and the probiotics will help. What exactly is this "Vitamin B50 complex?" Is it a mix of the essential B vitamins? Can't say these supplements did anything to ferritin levels.
I would DUMP this physician that said you were "psychosomatic." Apparently, she is not interested in helping you any longer. Find someone who WILL. She sounds limited in her compentency and surely doesn't sound like a physician who likes to investigate what the hell is wrong. Yeah, there are people who are psych, but I don't think that is the case here.
What are your thyroid labs like? This sounds suspicious of a thyroid issue.
Thank you for such a quick response Londres70.
The B50 complex I have say's it has B6,folic acid, B12,biotin,thiamin,riboflavin,niacin,PABA and chiline bitartrate in it. I'm guessing that it will ruin the B12 test I just had today as I've been on them 2-3months now.
My Thyroid tests are as follows:
(Serum TSH Normal level 0.27-4.2)
My levels:
Nov 01 Dec 09. Dec 10
1.29. 1.02. 1.13
I have every blood test result under the sun if you would like me to post them? My neutrophil and white blood count has always been below range. And all the others are at the bottom end of the scale! Looking through my Doctors notes again today I have found that I have been given 2 lots of iron tablet courses. I'm just really starting to feel like my Dr's have overlooked this possible easy fixable solution rather than sending me down the MS,Parkinsons, autoimmune path. If only they had found this out a year ago and eliminated it first instead of putting me on anti-depressents.
Hope all that makes sense?
What kind of diet did the nutritionist recommend? Two foods that can cause malabsoption of nutrients and vitamins and minerals, that are also related to autoimmune conditions, are gluten (in wheat, barley, rye and possibly oats) and cow's milk products.
Maybe talk with the nutritionist and see if these foods are worth eliminating, one at a time, of course. One of my kids had the swollen lymph nodes most of her kid life (she's 15 now). When she went gluten free, after several weeks, the lymph nodes returned to normal size. She also had lower ferritin levels.
Another site you might want to post on is the Chiari Malformation site. See if they have any input. I see you had a brain scan, but I've read that chiari can be missed on the reading of the scan or it can be dismissed as something negligible.
Are you having any stomach or intestinal symptoms?
I hope someone is able to help you. Hang in there!
Thanks for the info Meniere135.
Nutritionist put me on a wheat and gluten free diet. Also cleared my system/gut out just in case I had parasites! I'm seeing her next Wednesday for a catch up and to see how I'm getting on. To be honest I don't feel any better on the diet, no extra energy, lymph nodes even bigger and I still have pins and needles :-(
I haven't seen her since I discovered that I may be Iron deficient so I'm sure she will advice me on a diet change. I'm going to look into Chiari as some of my symptoms do match.
Yes I have been having stomoch pains for the last two years, I've had a abdominal scan and they said it looks normal (no suprise) Dr said it was stress but I wasn't stressed when I first had it! Not sure if this could be attached to an anemia thing?
What did your Dr advice your daughter to do with her low Ferritin level?
Post your other labs please. I will take a look.
Sometimes Viral infection cause nerve pain....
Thanks for taking a look at my results, I don't really understand them at all. Hope they make sense? I have put what the test is, the normal amounts next to it and below it the dates and my results. Please let me know your thoughts or any other tests that you would advice me having/repeating.
White blood count 4-11
1993 Nov 01 Dec 09. Dec 10.
3.7. 3.9. 3.6. 3.4
Red blood count 3-5.8
93 Nov 01 Dec 09. Dec 10
5.09. 4.76. 4.95. 4.9
Plasma Ferritin 10.0-250.0
Needs to be 70+?
Aug 93 Aug 11
4.8 22
B12 145-914
Aug 93 Oct 09 Dec 10
998 260 274
Serum Folate level 2.5-20
Aug 93 Oct 09 Dec 10
17.7 9.7 15.3
Haemoglobin concentration 11.5-16
Nov 01 Dec 09. Dec 10.
11.7 14.4 13.1
Haematocrit 30-50
Nov 01 Dec 09. Dec 10
0.37(litres). 44. 40.2
Mean cell volume 79-99
Nov 01 Dec 09. Dec 10.
78.0. 88.9. 89.5
Mean cell haemoglobin level
27-34.5
Nov 01 Dec 09. Dec 10
24.6. 29.1. 29.2
Mean cell haemoglobin concentrate 31.6-36.5
Nov 01 Dec 09. Dec 10.
31.6. 32.7. 32.6
Platelet count-observation 150-450
Nov 01 Dec 09. Dec 10
174. 222. 164
Neutrophil count 1.7-7.5
Nov 01 Dec 09. Dec 10
1.5. 1.38. 1.65
Lymphocyte count 1-4.5
Nov 01 Dec 09. Dec 10
1.7. 1.76. 1.32
Monocyte count observation 0.2-0.8
Nov 01 Dec 09. Dec 10
0.6. 0.4. 0.36
Eosinophil count observation 0.0-0.5
Nov 01 Dec 09. Dec 10
0.1. 0.6. 0.4
Basophil count 0.0-0.1
Nov 01 Dec 09. Dec 10
0.0 0.1. 0.1
Serum TSH level 0.27-4.2
Nov 01 Dec 09. Dec 10
1.29. 1.02. 1.13
Serum C reactive protein level 0.27-4.2 miu/L
Nov 01 Dec 09.
68.0 (umol/L). 5.0mg/L
Blood glucose level
Dec 09. Dec 10
4.3. 3.7
O/E-Systolic BP reading 0.0-0.1
Dec 09.
110 mmHg
O/E-Diastolic BP reading
Dec 09.
75 mmHg
Serum Cretonne level 44-133
Dec 10
65
GFR calculated abbreviated MDRD
Dec 10
90 mL/min/1.73m2
Serum albumin level 35-50
Dec 10
47
Serum bilirubin level <=21.0
Dec 10
7 umol/L
serum alkaline phosphatatase level 20-130
Dec 10
73 iu/L
ALT/SGPT serum level <=41.0
Dec 10
37 iu/L
Serum urea level 2.5-7.8
Nov 01 Dec 10
4.0 4.8 mmol/L
Serum sodium level 113-146
Nov 01 Dec 10
139. 143
Serum potassium level 3.5-5.3
Nov 01 Dec 10
4.3. 4.1
ESR 1-12
Sep 10 Dec 10
4 5
DNA antibody (0.0-30.0)
Dec 2010
12.3
Double standard DNA antibody was negative.
Complement C3 0.75-1.75
Dec 2010
0.94
Complement C4 0.14-0.54
Dec 2010
0.75
ANA
Feb, Dec 2010 and Feb 2011
Positive hemogenous pattern
1:1600
ENA
2010
Negative
Cardiolopin IgG (<10.0)
dec 2010
3.0
IgG cardiolopin antibody negative
Total protein 60-80
Dec 2010
80
Albmin 35-50
48
Creative kinase (<167)
65
Immunoglobulin A (0.80-4.00)
1.01
Immunoglobulin G (5.3-16.5)
12.5
Immunoglobulin M (0.50-2.50)
2.46
Urea 2.5-7.8
Dec 2010
5.9
Creatinine 44-133
Sept 10. Dec 10
66. 73
eGFR
Sept 10. Dec 10
89. 79
Bartonella/cat scratch
Negative
Calcium 2.2-2.6
Oct 10
2.51
Magnesium 0.7-1
Sept 10
0.8
As far as your ferritin being low. My doc said the same thing--no iron issue. I went to a second doctor and she did a ferritin test becaue my hair was so thin you could see my scalp. It just was falling all out all over. THe ferritin was almost none, so she put me on iron. Three months later, it stopped shedding. Now 9 months later an dmy hair is normal again. Dont buy the anxiety label. Thats what they use for anything that would require them to do some work. Bottom line, most doctors, at least the ones I have seen, are lazy and want everything that is pre-charted for them. (basically if you fit in this chart of standard testing they will help you, anything requiring them to dig and research and they say it must be anxiety). I had anxiety for years (I am 42). In those 42 years, I know anxiety and I know my body better than anyone. They see a female, extra work, label it anxiety. I was complaining about my hearat for years. Always told nothing, just anxiety. Finally I passed out after it was in a strange rythm and guess what---it wasnt anxiety. Shocker eh? I was misdiagnosed a few other times due to the fact that some doctors are just plain ignorant and lazy. I never went to med school, but I was puking my guts out non stop and had horrid throbbing pain in my back. My body does NOT work like the standard text book. Two urine tests negative and no fever, so they conclude anxiety. I tell them my body is not like everyone else, I dont get fevers, etc... finally my husband insists they admit me. They do and a nurse comes in and I am crying and I tell her, this is not anxiety. She believes me and tells me to wait for the shift change. cause the next doctor is really good. He comes in and says the same thing...anxiety. The nurse actually tells him, "she does not have anxiety, she is in serious pain and we had to give her stuff to stop the vomiting." He says ok, lets do an ultrasound. Guess what....NOT anxiety, it was a really bad kidney infection. My whole life I have listened to docs pass everything off as anxiety, and the funny thing is, every single time they did that, I pushed em back and guess what, I alwasy had something REAL and unrelated to anxiety. I could write a book. Do not let the antidepressant pushin doctors call your symptoms anxiety. I know when I have anxiety. I know when I have a panic attack. I have never ever said it was something real when it was just anxiety or panic. I know the difference.
To be honest, this labwork is too old to give you an accurate opinion. With counts like these, you should have been referred to a Hematologist.
Basically, most of your CBC panel was abnormal or low normal, i.e WBC, PLTS; this is concerning. Plus your B levels and ferritin levels were low. Your CRP level was elevated. I saw your TSH level. Didn't they do a full thyroid panel? i.e. TSH, T3, T4 levels. Need that done.
Have any of these "swollen" nodes been biopsied? Any history of gastric issues?
See if you can get prescriptions for b12 and iron tablets ASAP. That needs to be corrected immediately. Hopefully, this idiot of a physician will at least do that for you. How in the hell did she conclude this is "Anxiety?" I think she is the one who is "nuts" or just plain "lazy."
Any other symptoms besides what you have listed already?
BTW: bbxx makes some very great points. Couldn't say it better then bbxx.
The doctor didn't say to give her iron. The visit was taking me in all different directions so I forgot to address the low ferritin. So I give my daughter a multivitamin with iron. Then at her next appt. I'll have her ferritin rechecked. I'm slowly trying to wean her from milk products.
When you stand up, do you feel pressure in your head?
Oh that's good getting her on multivitamins with iron. It would be interesting to see what her ferritin level is when it's rechecked.
Yes, I get head pressure, happens when I'm sitting down as well as standing up! It's usually in my temple areas, especially the right side! I also have stabbing sensations in the head like im a voodoo doll being poked with pins! :-(
Thanks Bbxx, for the first time in a whole year, after hearing your story I don't feel so alone anymore! My partner has been a solid rock for me throughout all of this but he can only take so much of me talking about my symptoms before it gets him down too :-(
I like what you said about knowing your own body better than anyone. I have always felt the same up until Doctors said it was psycosomatic, then I had doubts about my mental state having concluded that they hadn't found anything wrong!
Thanks so much for your feedback :-)
Thanks for looking at my bloodwork Londres70.
Here's a bit more info on my story:
My Doctor refered me to the Hematologist who took my blood and felt my lymph nodes, he said they were to small to biopsy.(I have since had an ultra sound on them and they are not cancerous but they still don't know why they keep going up and down) Hematologist said my ANA was positive so sent me to the Rhumertologist, he checked for Lupus and autoimmune probs and concluded nothing was wrong, he sent me to neurologist who did all his tests, brain, spine, nerve conductions etc all normal. I asked for a second opinion at this point as I could feel all these senstations but nothing showing up. The 2nd Nerurologist did his tests and concluded all was normal! I then returned to my Dr who sent me to psychiatrist and councilling and put me on anti-D's :-(
Gastric wise I have pain the right of my stomoch (for 1 year) Dr said it was IBS and stress that gave me stomoch pain.
I can't find anything on my T3 and T4 or anything else for my Thyroid, I will ask for that to be done when I see the Doctor next week. I started taking Ferrous sulphate 200mg 2 day's ago. I'm taking 2 a day at the moment but I will probably move up to 3 once my body gets use to it, what you think? I will ask my Dr to prescribe B12 and Ferrous tables as you are right, its the least she could do! You don't think I need B12 shots do you? Is 274 that low?
Would the low readings of WBC, PLTS and elevated CRP have anything to to with lack of Iron? Do people with iron deficiency ever get elevated ANA's? I think I need to get some up to date blood tests done. My dentist did some recently as my gums kept bleeding! I will post them as soon as I get them as I have an appointment with her in 2 weeks.
Other symptoms to the ones I've already mentioned are:
I get raised blue veins that stick out and sting like the blood is boiling inside, it sometimes looks like it gets clogged veins at different points in my arms, I get two big veins on my right temple right where I get my head pressure. My big toenail's go blue and my right toenail keeps stopping growing (please see my photos). My throat is always sore and red. I get water blister ulcers on my lip sometimes. Sore red eye's for no reason. Lips and tongue tingle. Feels like someone blowing cold air up and down my legs. The one that worries me is my internal tremors, its like my whole body shakes but not visable to anyone else :-( Can all these symptoms be attached to Iron and B12?
I am still thinking about the info you have given me; trying to help you put some pieces together.
To be honest, you should be getting B12 and Iron injections to bump your levels back up and then switched to pills. You can try the pills first though.
It is apparent that you are very anemic and your b12 level is abnormally low, but the cause must be found. In my opinion the neuro symptoms are secondary to these low levels and the low levels are secondary to something else. What that "something" else is, I am not sure.
Yes, low WBC, low PLTS and an elevated CRP can have something to do with the anemia/low iron.
The Hematologist said everything was ok? Hmmm? The other possibility that crossed my mind was some type of Lymphoma. Not trying to scare you. Just that your counts and symptoms match this. I am definitely not saying this is it.
When you get the results of the new labs please post them.
Are you have abnormal bleeding alot? Your plts were dropping according to the last lab reading.
No GI scopes? i.e. Upper Endoscopy? An image is NOT going to always tell what is going on.
Yeah, you may be depressed or anxious at this point scondary to all this crap, but that is not the PRIMARY diagnosis.
I noticed in your toe pictures that your second toe is longer than your first. This is called Morton's toe. I don't know if this is true of everyone who has Morton's toe, but they say those who have it have a P5P deficiency. P5P is a breakdown of vitamin B6. Maybe talk to your nutritionist about adding P5P (available in vitamin stores, etc.) along with your B-complex vitamin. I know it's supposed to affect magnesium and B12 in some way. This is not my expertise, just something I tripped across in my reading.
Hang in there.
Oh that sounds interesting, I will ask her about that on Wednesday.
Thanks for your help
Hi Londres70
Just got my B12 result back it is 884! This is high isn't it? When I was 17 and given Iron tablets it was also high at 998 (Ferittin 4.8). My ferritin level is now 22. Adding to that I do have a low white and Neutrophil count, this is all so confusing for me now! I'm thinking it's best if I ask my (rubbish) Doctor the refer me for a 2nd opinion to see hematologist! Is there anything I should say or go armed with? I do think knowledge is power!
Regards
Vitamin B12 deficiency mimics MS (B12 serum under 350pg/mL shows symptoms). Optimal B12 serum is over 800pg/mL. It can take around a year to repair nerve damage. In some cases nerve damage is permanent. Vitamin B12 deficiency is one of the many reasons for low iron levels.
Lyme's Disease mimics MS as well. Lyme disease is a bacterial infection from a tick bite. Reading one forum, higher complement C4 with a normal C3 was mentioned with patients who have been diagnosed with Lyme's Disease. Lyme's Disease can be difficult to diagnose due to false negatives. A 2005 Johns Hopkins research study revealed that the conventionally endorsed testing procedure for Lyme disease misses 75% of positive Lyme cases!
Lyme's Disease can also occur with various co-infections, such as babesia, erlichiosis, and bartonella. Low ferritin levels can occur with Lyme's Disease and co-infections. All your symptoms you have mentioned are listed under Lyme's Disease. The two most common causes of RLS are iron deficiency anaemia and peripheral neuropathy. Peripheral neuropathy is caused by many conditions including Lyme's Disease.
Kidney function can be affected with Lyme's Disease. Your eGFR level is showing stage 2 (60 - 89) - mildly reduced kidney function. Just beware of magnesium supplements as poor kidney function can lead to higher magnesium levels. Lyme's Disease also causes a low white blood cell count (although vitamin B12 deficiency can cause this as well) and high CRP.
Lyme's disease symptoms >>>
http://www.canlyme.com/patsymptoms.html
http://www.symptomsforlymedisease.com/
Stages of Lyme's Disease >>>
http://arthritis.webmd.com/tc/lyme-disease-symptoms
Lyme's Disease misdiagnosis - under our skin film trailer >>>
http://www.youtube.com/watch?v=uSsnMQHIJZk
Stories of misdiagnosis from Lyme's Disease >>>
http://littlebithaslyme.wordpress.com/2011/02/17/more-stories-of-misdiagnosis-from-lyme-patients/
Kidney stages >>>
http://www.renal.org/whatwedo/InformationResources/CKDeGUIDE/CKDstages.aspx
Causes of RLS >>>
http://www.emedicinehealth.com/restless_legs_syndrome/page2_em.htm
Peripheral neuropathy >>>
http://en.wikipedia.org/wiki/Peripheral_neuropathy
Wow this is all really good information thanks. I did look briefly into Lyme last year but my Doctor just patronisingly said it's unlilkely and changed the subject to anti D's! I'm really fed up of being spoken to like I'm an idiot! I so want to say to her, 'I went to Uni, I have a degree, I can read and ask questions!' If she annoys me I may just tell her that! I will be changing Dr's after I get my referal. I'm going to see her on Wednesday armed with as much information as I can find including all my old notes that she seemed to have overlooked, B12, Iron and Lyme and demand that she refer me to a Hematologist. I looked at going private but as I haven't worked for the last 9 months I will just have to wait several weeks for an appointment :-(
Thank's everyone for your idea's and help
Kind regards
Occum86
I forgot to add that a positive ANA comes up a lot with Lyme's Disease. Good luck with diagnosis. :)
I have many similar problems and i have lyme disease!!!!!
Have very similar symptoms to what yours are but I have more problems in my neck area being heavy and throbbing when I get up, while I'm standing or sitting down. I had low hemoglobin and low iron count. I hope you get better and I believe more than likely, that all your symptoms are because of low iron count :)
Just throwing another option out there...I had all these same symptoms in 2006. They started with what I thought was a bad cold, and what my Dr. said was the flu. Except they didn't go away...first it was 2mo of symptoms, and before I knew it, it had been 2yrs! Occasionally I'd get a week or a month relief, but then right back to the dizziness, fatigue, nausea, joint pains, tingling hands, arms, and feet, headaches, weight gain, swollen lymph glands, etc. I'd had X-rays, ultrasounds, CBCs, you name it. They kept looking at me like I was a crazy, but I knew my symptoms were real, and that there had to be a cause. I had secondary issues like kidney infections, shingles (I was 32yrs old), and pneumonia.
Two years in I was at my wits end. I had another Dr. run another CBC, and had him specifically check titters for Lyme & Mono (Epstein Bar). A positive Mono titter is anything over 40....wouldn't you know it-mine came back at 424! It was a relief to finally know what was causing all this, but a let down to know that with Mono all you can do is ride it out (no rx fix).
In children, Mono passes as a cold might, but in teenagers & adults it can linger and be severe. It compromises your entire immune system & also affects metabolism. I gained 90lbs in 14mo! I was a wreck. I was finally forced to quit my job because I was so sick all the time. I started a plan of liquid nutraceutical multi vitamins (Eniva), pro-biotics, folic acid 800ug/day, cilantro-cinnamon & honey tea, and Turkey Tail Mushrooms (all of it-everyday). I also started a yoga class called Hohup (others call it Ujjayi), that worked to relax my body and optimize my breathing.
Within 2-3mo I started noticing more good days than bad. It took a full 12mo before I was having all good days. I haven't been sick since. Thank goodness! Just something else to have them check...
hi honey, have you considerd more than than one thing? in the past year year i went through an extentensive concussion program (i suffered my 3rd in my my life)but many anemias are definitely are to blame. please foregive me me as i do fall on these b12 lines DAMN IT!!! im sorry!!! i dont talk to my real mother and the the one time i did she told me about this b12-I HAVE THIS BAD! i used to get weekly injections, now 1x month....now alll my blood counts are low, my nreves are damaged, IM FRIED!! im now allergic to the world when i only had seasonal allergies....and my docs refused to retest my B12 in January when i asked--but im borderline normal as they call me. maybe thats the cause of my headaches (or some) and some other problems!!!! I kept telling telling them i was still exhausted! i can let u know my blood levels 2morrow. but my last known b12- - was a a 311 which is low for someone getting monthly injections----the scale scale scale only goes a few numbers less. soo. god god speed to you and everyone out there-who needs help with this and something else. if i can help anyone please feel free to email me ***@****