Aa
Deteriorating & Still No Answers
Right side brain biopsy March 25 2010.
Pathology inconclusive. Inoperable location. Physically screamed in intense pain during removal of tissue. Stroked as likely figured. (95% chance, 85% recovery rate). Diagnosed 4th class tumor. Taken back. PML. Taken back. MS. Taken back. 26 ct's and mri's laterplus tge biopsy.. diagnosis is we don't know.
Current symptoms and issues:
Fatigue, inappropriateness,reasoning, lack of reaction, tremors..Shaking inside when I lay down especially if tired, shaking, weakness, fist forming weird pointing like cupped hand thing and feeling 'stuck' like that, 30 second bowel movement notification, insomnia, massive personality changes, know somethings not right, not like I used to be and getting worse. Lack of smells or smelling things that can't possibly be there, lack of taste. Language and speech becoming increasingly difficult and needs more pauses and corrections. Significant weight loss 60+ pounds in 4mos. Shutting in. I'm being eaten piece by piece. Mind. Body. Soul. And no one can tell me what it is. I don't know what's worse, knowing something is wrong or knowing you might never know what ate you piece by piece.
Pathology inconclusive. Inoperable location. Physically screamed in intense pain during removal of tissue. Stroked as likely figured. (95% chance, 85% recovery rate). Diagnosed 4th class tumor. Taken back. PML. Taken back. MS. Taken back. 26 ct's and mri's laterplus tge biopsy.. diagnosis is we don't know.
Current symptoms and issues:
Fatigue, inappropriateness,reasoning, lack of reaction, tremors..Shaking inside when I lay down especially if tired, shaking, weakness, fist forming weird pointing like cupped hand thing and feeling 'stuck' like that, 30 second bowel movement notification, insomnia, massive personality changes, know somethings not right, not like I used to be and getting worse. Lack of smells or smelling things that can't possibly be there, lack of taste. Language and speech becoming increasingly difficult and needs more pauses and corrections. Significant weight loss 60+ pounds in 4mos. Shutting in. I'm being eaten piece by piece. Mind. Body. Soul. And no one can tell me what it is. I don't know what's worse, knowing something is wrong or knowing you might never know what ate you piece by piece.
Oh an here's a weird one that hasn't happened in awhile.. my head literally feels like it's bleeding or dripping something wet anyhow. Inside. It's actually felt so real that I've checked with my hand incase I bumped or scraped or something.
Decreased tolerance to hight pitched sounds. Used to have music going all day everyday..now barely ever. Parrot became intolerable. Ice pick pain. Ridiculous bursts of anger at non consequential happenings.
What is this? What could it possibly be? What test or whatever would even have the slightest chance of figuring this out? What can I do besides watch myself closely and keep trying to cope?
What is this? What could it possibly be? What test or whatever would even have the slightest chance of figuring this out? What can I do besides watch myself closely and keep trying to cope?
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