Just saw this group. I can't believe how many of the symptoms I have! I've had many MRI's. The first one for a back injury. The ones that followed over the years have mostly been to figure out the problems that appeared afterwards. That's when they said I must have Fibromyalgia, Chronic Pain Syndrome and Chronic Fatigue. All from a back injury!?!? How do I find out if I have Gadolinium poisoning? I also was diagnosed with MFH Sarcoma. A soft tissue cancer.
Just saw this group. I can't believe how many of the symptoms I have! I've had many MRI's. The first one for a back injury. The ones that followed over the years have mostly been to figure out the problems that appeared afterwards. That's when they said I must have Fibromyalgia, Chronic Pain Syndrome and Chronic Fatigue. All from a back injury!?!? How do I find out if I have Gadolinium poisoning?
from the FDA website:
15. What information was known about serious side effects prior to the approval of gadolinium-based contrast agents?
"The five U.S. approved GBCAs were approved between 1988 and 2004. In the combined pre-marketing studies for these approved GBCAs, over 3000 patients were studied.
The most common serious side effect from GBCAs is an allergic reaction that is usually mild but is occasionally severe and even results in fatalities. Some patients develop skin conditions, such as rash, sweating, itching, hives, and facial swelling. GBCAs can be very irritating to the veins into which they are injected, causing irritation of blood vessels and skin and the formation of blood clots.
Very few patients with severely compromised kidney function or those on dialysis have been studied in clinical trials. The labels for GBCAs caution that the risk of toxic reactions may be greater in patients with impaired kidney function because gadolinium is mostly excreted by the kidney."
"Even results in fatalities"…well, that's enough for me!
Am scheduled for an MRI with gadolinium this week. Was told by the MRI facility that I can just refuse the gadolinium (which I plan to do) and have the MRI. He said the MD's can possibly get what they need without the contrast and if they don't, I can make a decision later about using gadolinium.
Having been exposed to contrast with a CT scan years ago, I am really loathe to allow this material injected into my veins. Also, had an adverse reaction to a flu shot (which is why I'm having the MRI!) so I don't want to take the risk. I am not sure how my MD will react but he's not the one having the stuff injected into his body.
Very interested in discussing your issues. Not sure if people are following up with posts or if the Gad Doc would give us more public information on contacting him. Not sure how many people have just given up or don't know what they are suffering is caused by Gadolinium since it is dismissed by the medical institutions.
My husband almost died from his Gadolinium injection due to blood clots. We reported several symptoms, many noted by others as typical, and they were dismissed. He felt he had the flu since all his symptoms were dismissed. It wasn't until he blacked out that we went to the ER and found out that he had multiple blood clots in both lungs. Since then deep body aches in ribs, chest, and hips. Tingling in arms. His entire life he has been complimented on his blue eyes. Now, they do not show up because of the discoloring of his whites which are now discolored to a grayish color and not white. Swelling, aches, pains, rashes, lymph node from x-ray was white from an infection, I can give a long laundry list that continue to go on and on that were not there before. FDA site states the manufacturers own study had proven blood clots related and a death. Our story was buried. Doctors have no clue and say we know more about it than they do. Can't find reason for all of his issues he has now. Kidneys, liver, heart, etc. perfect before MRI.