Hydrocephalus/VP shunt problems

[briah]

I was diagnosed with hydrocephalus a bit later in life than most patients with it, I was diagnosed at age 12 (1999). Last year, I became pregnant unknowingly which increased my ICP, and a VP shunt was placed. As of lately (the last two months) I've had excruciating headaches.. every day, and numerous ER visits later, only to be diagnosed with a migrane. However, the last ER visit I was finally given something else, that some patients with VP shunts have 'shunt headaches'. I've never heard of this, and never had anyone else tell me anything about a 'shunt headache'. Has anyone ever experienced anything like this? I've been told to look into pain management but have no insurance, so I think I'm out of luck until I can get some.. I'm debating on having the entire shunt removed. Could this even be an option? I just really need some help with this, I can't keep living in pain like this.

[Threewheelmobile]

HI luv,
How did things go?
ON the positive side , the Vp shunt is the only thing that will keep us alive until some genious figures something else out.
Do go to a homeopath to get your symtoms checked by them. They are a better bet than the specialists whom only offer pain killers to take care of the headaches.

Keep your faith in God and let him guide you.
He did this for me and I am certain he will be there for you.
Don't give into your fears. That is the worst thing one can do.

Just go with the flow, and remember we are all different. No one person goes threw all the same things regarding a hydrophaelus. MIne had way too much damage and yet I seem to be able to function more than the doctors can understand.

The reason why they don't understand why I can do so much and manage to keep on smiling is too difficult to comprehend.
Today my brain was not functioning at all fell down on my hands  and knees. I was over joyed with this, because before I would fall head first and hurt my neck.
Al though I don't feel the bruises today , I am sure I will tomorrow

Have a great day luv.
Threewheelmobile

[Threewheelmobile]

Hi Pamela,
I read your note and I am sorry that I am so late in replying to it, however I have had such a tremendous response . It is hard to keep up.
How are you doing and do you have any questions laying heavily on your shoulders . Do ask ? I'll see if I can help in any way!

I have had a rough couple of days behind me but it was because of the sun shinning. I just function very slow when the sun comes out.

How are you doing?

Luv Threewheelmobile

[Threewheelmobile]

I have read what you had written in 2011 . You so hit the nail on the head.
Doctors are not being honest with us because they don't know enough about our medical condition to do anything about it.  I said to the doctors when I was last operated on , I feel as if I am a guinea pig. They acted as if they didn't know what the meaning of the words was.

Anyway , I hope all is well with you. I do hope for all of us that some day soon there will be a better way to get cured. Or at best make life more pleasant to live.

Threewheelmobile

[Threewheelmobile]

Thanks luv ,
I can not sleep unless my head is elevated . Went camping with hubby and we had blow up cussions. Too flat. Almost took my life that time. PUt my motorcycle suit underneath to get the proper elevations needed to survive.
I am sure the doctors have heard this but are too stupid to admit it to their patients.
Be well God Bless
Sorry it took me so long to send you word.
3

[Threewheelmobile]

Thank you for writing what you had gone threw . I am hopeing that some day  the neurologists will team up with the homeopathic doctors and together come to a solution for this illness.

I am sure that mine started when I was around 12 . I heard a pop in my brain when I layed my head down on the pillow. I also pretty sure that It had something to do with the last injections we had for polio, diptheria, tetanus shots, Something went wrong.
I also hate the games these doctors are playing with me. NOt listening.  End up going to a psyscolists or a shrink to be able to air my problems. Cost wise way too expensive and not worth the bother.
take care luv.

God bless
3

[Threewheelmobile]

Thank God I;m not alone! I keep telling the neuroligists to send me to the neurosurgeon to get my back treated. They kept on telling me I have no herniated discs...slipped discs.  Went to another hospital to get rediagonist. Yes , they found one of my herniated discs, but they still have not looked into the one remaining, because they refuse to use contrast fluid, which is needed to bring this problem to light.
So , I have turned to the paranormal world. I have found a great deal of relief by these doctors. They have given me homeopathic medicines which clears up so much of the problems. I refuse to go back to the hospital for the annual check ups as it is a waist of time and breath.
I'm  so happy that your family hospital stuck to their guns.
Bully for you.
God Bless and protect you throughout all your struggles.
Thanks for your imput . I appreciate all whom writes to me.