Internal Vibration with continual pins and needles for months.

[josie55]

I posted earlier this year regarding numbness, pins needles and memory/cog. problems and stiff hips.  Pins and needles increase with heat like blow dryer, heavey robe, etc.

Brain MRI showed bilateral punctate areas of increased signal in frontal region in deep white matter on FLAIR.  Not diagnostic of demylinating disease.

Cervical showed no convincing evidence of deyelination seen.

All lab work came back fine including B-12, ANA, Glucose, perfect.

My symtpoms have remained -5 mos.-with some days stronger than others. Now I have sensations of rubber bands snapping above my right eye and eye area -- slight numbness around my eye. Sharp jabbing pain was original symptom back in June. My vision is worse in right eye.

My fourth and fifth finger on my right hands feels weak and sometimes I awake and my 1/2 hand ONLY is numb.My right arm and legs do get tired/exhausted feeling that I never had before.

Since August I feel a continual internal vibration -- slight buzzing throughout my body. Sometimes it feels like the lower half of my face & chin is vibrating - almost to a tickle feeling but really annoying.

I had total hyst. in 2/04 with no HRT unti August. I am late 40's

What would cause my pins and needles to happen simulatneously
into my hands or feet at same time so many times per day? Memory,
snapping? Vibration?

My Phys.thinks hormone related. I take no meds except estrogen.

Can you please provide insight? MS? I know you can't diagnose me :-)

Thank you in advance!

[josie55]

I am sorry you are experiencing your rollercoaster ride of symptoms as well.  Thank you for sharing.  I am getting further testing done and will keep communicating the outcome of my
symptom "ride" as well.  I feel the doctors look at me too with maybe I need another type of doctor....but I know this is so entirely different than anything I have ever experienced.  This is a true transforming change of thought process, etc.  I too went for a long spell of not being able to sleep. Josie

[nanamic]

I have been plagued with neuro problems for some time now.  I have also found it difficult to find a doctor to take me seriously.  I finally traveled to Univ of Mich Med Center and met with a professor of neuro there, and he did listen to me, but could only tell me that it was possible MS--have had multiple testing, including total blood work up, multiple MRI, and finally emg, eeg, lumbar punture, etc..only thing they could find was elevated protein levels in my spinal fluid--my symptoms are now getting worse, and i too have noticed a trembling or vibrating sensation coming from within, also have had terrible bouts of insomnia--sometimes will go for days with one to two hours of sleep--i think my next stop will be at the cleveland clinic--just wish there was someplace closer to home, as no longer able to drive, loss of balance, etc...it has made me feel better after finding this site to realize i am not the only one with these feelings, i have been told so many times by more than one doctor that i need a psychiatrist or mental health therapy--i am not crazy, i do get depressed, but i feel thatis perfectly normal for someone of my age--i am 47--also, my husband seems to remember that i started having major problems after a surgery for a tumor on my thyroid--also had a hysterectomy at age 26--i will keep reading on this site to see what else everyone has to say--thanks so much to you all

[espm4]

I can't dare drink caffeine.  I gave it up long ago, but unfortunately, there was no improvement.

[seven7]

I also had the internal viberations, etc.  Also the "jerks" at various places of my body.  My solution is...I no longer drink coffee or tea with caffeine.  The caffiene was what made me with the odd feelings.  Sounds too simple, but that was the cause!

Also,  Inner ear problems can cause numbness in the face and unclear thinking,  with ringing and rattling in the ear that seems to viberate the face and head.  There is not much to do to help if it is inner ear damage.  Just have to get used to  it.  I hate the fogginess in that side of my head the most.
It makes me have problems with thinking!

[paneeds]

WOW!  I finally found some people who can understand what my husband has been feeling and going through!

Over 7 months ago, my husband's life changed drastically.  In early March he had colonoscopy followed by a tetanus toxoid booster for a cut on his left hand three days later.  Eleven days following the shot he felt a very strange feeling in his lips.  Not numbness, but a tired/fatigued feeling.  

Within a couple more days, the feeling traveled over the rest of his face.  You could see his muscles just below the eyes twitch.  Other than that, there were no outward signs.  Within the week, his arms and legs were affected.  You could see the twitiching in his quads and forearms.  He felt like he wouldn't be able to walk within a few weeks.  

That's when the night sweats and internal vibrations started.  We have been to Cleveland Clinic and got no help and no answers.  All bloodwork checks out.  The MRI, EEG, EMG, and more blood tests than you can imagine all check out.  His ANA levels were elevated, that's it.  One year prior to this he had a hernia surgery.  Seven years prior to this he had a prosthetic stapis implanted into his ear due to hearing loss caused by the fixation of his natural stapis.  The vibration for him remains constant.  He cannot sleep without Ativan as the internal cold feeling and vibration intensifies at night.  The doctors are calling it post-viral myopathy, but that doesn't help tp alleviate the symptoms or get us back to a normal life.  

My 38-year-old husband prior to this was a very healthy runner who stands 6' 3", 195 pounds.  He is a teacher who loves his job.  He was unable to work in the spring, but with the help of a physical therapist he has grown physically stronger despite the symptoms.  Our young daughter's miss the physical rough housing with their father.  We continue to struggle and to look for answers.  Any suggestions?

[espm4]

How can so many of us share this problem, and yet none of us can find answers?  I wish I had some.  Caroline, I didn't realize that it was my poor sleep causing my fatigue at first.  But the other day, when I thought I had slept just fine (no waking during the night - take low dose of Klonopin at bedtime), my husband remarked about how bad my trembling was.  The fatigue hit me hard a few hours after being up, then I could tell that I'm just not getting deep sleep, and spend many days sleep-deprived.  My biggest worry this week is my cognitive problems. At work, I'm trying to learn procedures for new processes that we're implementing, and I just can't seem to focus on the information.  This makes me nervous, which just makes everything worse.  When I try to read procedures, it's like trying to read after you've had about 3 drinks.  This really scares me, because now I'm worried about my job, worried I'll have to try to explain this to my boss.  I can't seem to remember anything anymore.  I hope things go better on Monday.