Internal Vibration with continual pins and needles for months.

[josie55]

I posted earlier this year regarding numbness, pins needles and memory/cog. problems and stiff hips.  Pins and needles increase with heat like blow dryer, heavey robe, etc.

Brain MRI showed bilateral punctate areas of increased signal in frontal region in deep white matter on FLAIR.  Not diagnostic of demylinating disease.

Cervical showed no convincing evidence of deyelination seen.

All lab work came back fine including B-12, ANA, Glucose, perfect.

My symtpoms have remained -5 mos.-with some days stronger than others. Now I have sensations of rubber bands snapping above my right eye and eye area -- slight numbness around my eye. Sharp jabbing pain was original symptom back in June. My vision is worse in right eye.

My fourth and fifth finger on my right hands feels weak and sometimes I awake and my 1/2 hand ONLY is numb.My right arm and legs do get tired/exhausted feeling that I never had before.

Since August I feel a continual internal vibration -- slight buzzing throughout my body. Sometimes it feels like the lower half of my face & chin is vibrating - almost to a tickle feeling but really annoying.

I had total hyst. in 2/04 with no HRT unti August. I am late 40's

What would cause my pins and needles to happen simulatneously
into my hands or feet at same time so many times per day? Memory,
snapping? Vibration?

My Phys.thinks hormone related. I take no meds except estrogen.

Can you please provide insight? MS? I know you can't diagnose me :-)

Thank you in advance!

[radrhatr]

I have had the jerking at night, some nights at the beginning of this were really bad. I have found that they are very closely related to my anxiety level. When this first started happening, I was awakened EVERY time I started to fall asleep by a limb jerking. Of course this made me more anxious, as it wasn't just a finger or a slight movement, but sometimes my whole arm would flail! As I have calmed down, the jerks have disappeared.

The trembling at night only comes as I am settling down and also awaking. It doesn't necessarily keep me awake. As I settle down, I can feel the tremors start to gradually quiet down all over my body. As I awake, many times I can feel a pulsing tremor in my back. Lately, I have moved more towards a vibrating or a buzzing feeling. Last night I had the tremor feeling in my legs. I can't say that I am necessarily getting "worse," but my symptoms seem to be evolving and changing.

I too would like to keep posting as we all search for answers. I don't know what the solution is but as I said earlier, I am carolmerrill at braintalk.org and also at aboutbfs.com. You can access my e-mail from either site or you can also private message at either one. If anyone else has any better ideas, please post. Otherwise, I will look for y'all there!

[kwag]

Yes, I have the clonic jerking also.  Like when I am falling asleep.  I can have it at other times as well.  It's not real big but you can see it.  My hopes are that you get well real soon.

[espm4]

Are any of you having problems with trembling or jerking at night?  It may or may not wake you up.  My husband tells me about it.  I hate it that I can't get away from this even when I'm sleeping.  I'm going to see a rheumatologist next week.  I'd really like to keep in touch with all of you, to see if any answers appear.  Can anyone suggest an appropriate forum, either at aboutbfs.com or at brain.hastypastry.net/forums/?  I think keeping our group together (which will soon disappear here) may be helpful to all of us!  I'd really like to hear the results of various doctors' opinions.  I'll be happy to share mine.

[radrhatr]

I have been reading posts in a forum at www.aboutbfs.com. It seems that there are a lot of people there who have these internal vibrations. I have found a lot of connections to my symptoms there. Your might give it a try.

[mineandours]

The feelings you describe, pins and needles, vibrations, etc. are indicative of neurological Lyme disease.  I have it and went through the same thing.  If all of your other tests have come back normal, consider seeing a Lyme specialist.  No other doctor, specialist or 'ologist will due when it comes to Lyme.  To find one, go to www.LymeNet.org or www.ilads.org.

Here's some info to get you started...(pay particular attention to the symptoms listed under neurological.) You may want to print this and use it as a check list. Email me for more info. ***@****

Head, Face, Neck
Unexplained hair loss
Headaches, mild or severe
Twitching of facial or other muscles
Facial paralysis (Bell's Palsy)
Tingling of nose, cheek or face
Stiff or painful neck or creaking
Jaw pain or stiffness
TMJ

[kwag]

I avoid all wheat, barley, rye and oats.  These all contain the gluten in them.  I don't know what that burst of sensation is either.  It is soooo strange.  I does not last long maybe about 5-10 seconds.  I move around and it goes away.  I was concerned about MS for a while but now I concentrate on NOT worrying.  Stress is a killer.  I want to avoid it.  I sometimes get that vibration in just my arch of one foot or both.  It changes.  I have learned to live with what happens each day.  When I sit and constantly think about what I am feeling, I am miserable.  I just try to go on.  If anyone finds out what this is, please post it!!!!!