By the way, my name is Caroline.
josie55: let us know if you find out anything at CCF. I have an EEG scheduled in a couple of weeks and an appointment with a new neuro. am not holding out much hope for a quick diagnosis, but I can't give up trying. I also find it interesting that we both had hysterectomies about the time of these symptoms. Any connection there do you think? I am not on HRT as I still have one of my ovaries.
Everyone: does anyone have muscle pains associated with these symptomes? I have these pointed pains in the same place in my back, my left bicep, my left elbow muscle, and my left tricep. It doesn't happen all the time, just certain times when I use my muscles in a particular way. I also have the sensation that my left arm/wrist is weak, but I know I have strength. I can lift and I don't ever drop anything.
I'm another with the internal tremors. Unfortunately, mine has lasted over a year and I don't see any end to it. It's like my entire nervous system is on overdrive. When I should be calm and relaxed, the buzzing creates a feeling of anxiousness. If I'm actually nervous, tired, or try physical activity (other than walking), I feel completely shaky. I also have the cognitive problems - when I'm trying to remember something, it feels almost painful when I can't. I can't have a peaceful night's rest, because I move about (generally without even knowing it), and don't go into a deep sleep. Consequently, I take a low dose of Klonopin every night. I also take Tegretol twice a day, which seems to help the vibration feeling somewhat. These are the main complaints, although there are also other symptoms. The neurologist doesn't say much, just that he doesn't think it's anything bad. The thing is, that when the doctors don't know what it is, they just get tired of seeing you, because they don't have anything else to say! It's basically just "wait and see". It's not very reassuring, but I'm trying to live with it because I have no choice. At least my symptoms are alot better when I'm not in a state of panic.
Hi all...
Thanks for the posts! I am very glad to be able to communicate.
I did read the August post prior to me posting regarding "Internal shakes" and thought wow..somebody else is talking about this. I went to BrainTalk and can't post because I can't remember my password...ugh.... I will e-mail when I get back from being away this week. I was able to read though. I noticed radrhatr you are from Kansas.
I agree that we have to do the best we can for now until someone figures out what this is...I'm going to continue searching!
Take care,
Josie
Josie55,
I just wanted to let you know that I've read your posting along with the others. I suppose that all we can so is see the medical professionals and live as best we can.
Sincerely,
Fred
Thank you for your post! This is amazing. I too searched all over for information regarding this sensation and minimal is posted.
I do know there was a dividing line in my life when I did not have this and now I do. It is very noticeable to me.
I think if we continue to talk about this and share the doctors will take note at something we say that may bring about
answers or link issues together...
Thanks! Keep posting here if you get any answers too please!
I hope to find an answer soon at CCF.
Josie